by publer | Dec 15, 2025 | News
Reminder: Abstract Submissions Close February 1, 2026 The ECD Global Alliance invites clinicians, researchers, and medical professionals to submit abstracts for consideration at the 2026 ECDGA Medical Symposium, taking place on May 1, 2026, at the Marnix E. Heersink...
by publer | Dec 11, 2025 | News
As 2025 comes to a close, the ECD Global Alliance reflects with gratitude on the strength and generosity of our incredible community. Because of your support, we continue to advance research, provide critical resources for patients and families, and expand awareness...
by publer | Dec 2, 2025 | News
The Erdheim-Chester Disease Global Alliance (ECDGA) is pleased to announce the addition of Nottingham University Hospitals NHS Trust in Nottingham, United Kingdom, as an officially recognized ECD Referral Care Center. Under the leadership of Dr. Mark Bishton, the...
by publer | Nov 29, 2025 | Social Posts
Erdheim-Chester Disease is ultra-rare, but our community is powerful — and your donation helps amplify every voice.Remember: All gifts will be matched up to $90,000.Let’s spread awareness. Let’s support families. Let’s fuel research.
by publer | Nov 25, 2025 | News
The Erdheim-Chester Disease Global Alliance (ECDGA) is proud to participate once again in Giving Tuesday and our End of Year Campaign—a time when our community comes together to create hope, connection, and progress for those affected by Erdheim-Chester Disease (ECD)....
