“A Leap Forward in Rare Disease Treatment” Erdheim-Chester disease community collaborates to change the course of a disease Dec 31, 2015A film was created to increase awareness of ECD and provide hope to those fighting this disease. A special thanks to the video participants and Trovagene, Inc. for sponsoring the film.
Louisiana Governor proclaims annual Erdheim-Chester Disease awareness week Dec 31, 2015Louisiana is the ECDGA’s office location and the state has issued a Proclamation for its first-ever ECD Awareness Week.
SOBI, Inc. Awards Erdheim-Chester Disease Non-Profit Grant for Care Center Creation Dec 31, 2015First of its kind – ECD Referral Care Centers were made possible in part by pharmaceutical funding.
International Erdheim-Chester Disease Conference Dec 31, 2015TMC Houston News announces the 3rd Annual Symposium in their events section.
Small-Town Non-Profit Grants Big Funds for Leading Research Dec 31, 2015The Erdheim-Chester Disease Global Alliance awards two grants in 2015 for top ECD research projects from leading research institutions.
