by Asmaa Javed | Apr 29, 2025 | News
Hope in the Lab: MSK Research Sheds Light on ECD and the Brain A newly published study featured in the March 26, 2025, Memorial Sloan Kettering Cancer Center (MSK) Research Highlights offers important insight into how Erdheim-Chester Disease (ECD) and similar...
by Asmaa Javed | Apr 29, 2025 | News
The Erdheim-Chester Disease Global Alliance (ECDGA) is honored to support forward-thinking research that helps unravel the mysteries behind Erdheim-Chester Disease (ECD). One of our most compelling funded projects, awarded in 2023 with a two-year, $200,000 research...
by Asmaa Javed | Apr 29, 2025 | News
The Erdheim-Chester Disease Global Alliance (ECDGA) is proud to spotlight one of the innovative research projects currently funded through our grant program. Led by Dr. Francesco Peyronel at Meyer Children’s Hospital IRCCS and the University of Florence in Italy, this...
by Asmaa Javed | Apr 29, 2025 | News
After a day filled with knowledge, shared stories, and powerful conversations at the 2025 Patient & Family Gathering, the ECD Global Alliance invites all attendees to join us for a heartfelt and memorable Celebration Dinner—a time to pause, reflect, and honor the...
by Asmaa Javed | Apr 29, 2025 | News
When living with a rare condition like Erdheim-Chester Disease (ECD), daily choices—like what’s on your plate—can make a meaningful difference in how you feel. While there is no specific “ECD diet,” eating in a balanced, mindful way can support overall health and help...
