by Asmaa Javed | Jul 29, 2025 | News
We are sharing an opportunity to participate in the University of Alabama at Birmingham (UAB) Survivorship Study—a vital research effort focused on understanding the experiences, challenges, and needs of individuals diagnosed with Erdheim-Chester Disease (ECD). Your...
by Asmaa Javed | Jul 24, 2025 | Webinar Recordings
Watch webinar on youtube Xavier Solanich, MD, PhD is an internal medicine physician at Bellvitge University Hospital (BUH), where he specializes in the treatment of patients with immunological disorders and rare diseases, including histiocytosis. In addition to his...
by Asmaa Javed | Jul 14, 2025 | Webinars
Date: Jul 24, 2025 Time: 4:00 PM CEST (Barcelona Time) Speaker: Xavier Solanich, MD, PhD Xavier Solanich, MD, PhD is an internal medicine physician at Bellvitge University Hospital (BUH), where he specializes in the treatment of patients with immunological disorders...
by Asmaa Javed | May 26, 2025 | Patient and Family Gathering
Part of the ECD Global Alliance’s mission is to educate and support patients with the information they need to advocate for their health and quality of life. The purpose of a Patient and Family Gathering (PFG) is to unite patients and family members, as well as...
by Asmaa Javed | May 26, 2025 | Medical Symposium
Medical professionals from around the world will gather in Barcelona May 26-28 to share scientific findings, patient outcomes, and case studies related to Erdheim-Chester Disease. We welcome you to join your professional colleagues to share and learn about new...
