by Asmaa Javed | Sep 7, 2025 | Partner Associations
The Erdheim-Chester Disease Global Alliance connects patients, families, and researchers worldwide, supporting those affected and advancing research on this rare disease.
by Asmaa Javed | Sep 7, 2025 | Partner Associations
Is a French association dedicated to supporting patients and families affected by histiocytic diseases. They work to raise awareness, provide reliable information, encourage research, and create a strong community of solidarity for those facing these rare...
by Asmaa Javed | Sep 7, 2025 | Partner Associations
Is a non-profit association in Italy that supports patients and families affected by rare immunological and histiocytic disorders. They focus on providing assistance, spreading awareness, promoting medical research, and creating a network of solidarity among patients,...
by Asmaa Javed | Sep 7, 2025 | Partner Associations
Is an Italian patient advocacy group dedicated to supporting individuals and families affected by Hemophagocytic Lymphohistiocytosis (HLH). They provide information, raise awareness, promote research, and offer guidance to help improve the quality of life for patients...
by Asmaa Javed | Jul 29, 2025 | News
We are sharing an opportunity to participate in the University of Alabama at Birmingham (UAB) Survivorship Study—a vital research effort focused on understanding the experiences, challenges, and needs of individuals diagnosed with Erdheim-Chester Disease (ECD). Your...
