by Asmaa Javed | May 2, 2025 | Webinar Recordings
Discover insights from a leading expert on Rosai-Dorfman Disease. Gain a deeper understanding of this rare condition, its symptoms, diagnosis, and the latest treatment options. Don’t miss out on expert knowledge that could make a difference!
by Asmaa Javed | Apr 29, 2025 | News
In less than three months, the global Erdheim-Chester Disease (ECD) community will come together for the 10th Annual ECD Conference in Barcelona. This milestone event unites medical experts, researchers, patients, and families in a shared mission: to advance...
by Asmaa Javed | Apr 29, 2025 | News
Raising awareness for a rare disease like Erdheim-Chester Disease (ECD) takes more than facts and figures—it takes people. It takes passion, imagination, and community spirit. And during Volunteer Month, we’re thrilled to recognize a very special kind of volunteer:...
by Asmaa Javed | Apr 29, 2025 | News
When someone first hears the words Erdheim-Chester Disease (ECD), it can feel like stepping into unfamiliar territory—an ultra-rare diagnosis that most have never encountered. But from the very beginning, one thing the ECD community makes clear is this: you are not...
by Asmaa Javed | Apr 29, 2025 | News
Hope in the Lab: MSK Research Sheds Light on ECD and the Brain A newly published study featured in the March 26, 2025, Memorial Sloan Kettering Cancer Center (MSK) Research Highlights offers important insight into how Erdheim-Chester Disease (ECD) and similar...
