The Boy with Erdheim-Chester Disease 15-year-old is diagnosed with ultra-rare blood cancer found predominately in adults and lives to tell the tale By Elizabeth S. Anderson, ECD Global Alliance July 13, 2017 “Do you know any other young adults with Erdheim-Chester...
An ECD patient, along with friends and family, set out to raise awareness of ECD and funding for the ECDGA with a local restaurant fundraiser! This radio interview helped spread the word.
The Fresh Faces Project Stands With ECD Survivors: These Are Their Stories Interview with Dawn Smith By Calynn M. Lawrence December 2017 I was born and raised in Chicago by a loving mother who not only taught me how to be the best mom I could be, but also gave me the...
Caitlyn Captures Hope This inspiring young advocate shares her thoughts on ECD. By Jessica Corkran, ECD Global Alliance November 28, 2017 Meet Caitlyn Walch, patient advocate star in the making. As an 11-year-old granddaughter of ECD patient Tony Giambra, she has been...
