ECD Global Alliance community member writes on his involvement in the Dabrafenib and Trametinib therapeutic trial at the National Institutes of Health.
ECD Global Alliance Volunteers Recognized During National Volunteer Week By Elizabeth Anderson, May 16, 2017 In the U.S., from April 23 – 30, volunteers from around the world were acknowledged for their contributions. The ECD Global Alliance (ECDGA), a non-profit...
An Erdheim Chester Experience from a Chinese ECD Patient: 2012 to 2017 As written by Anzhen Qin, April 27, 2017 My First time hearing this rare disease’s name was December 2012 when I received a internal fixation surgery on my left arm. My doctor made a slip of my...
