Asmaa Javed | Erdheim-Chester Disease Global Alliance

Topic: Survivorship in Erdheim-Chester Disease: Incorporating the patient voice

Topic: Survivorship in Erdheim-Chester Disease: Incorporating the patient voice

Sep 8, 2025

Date: September 23, 2025 Time: 1:00 PM CT Speaker: Gaurav Goyal, M.D. University of Alabama at Birmingham Dr. Goyal was born and raised in India and completed his Hematology-Oncology Fellowship at the Mayo Clinic in Rochester, Minnesota. During his time at the Mayo...

Frame Family Foundation

Sep 7, 2025

Supports patients and families affected by histiocytic disorders while promoting research and awareness worldwide.

Histiocure Foundation

Sep 7, 2025

A foundation working to improve the lives of histiocytosis patients by funding research, raising awareness, and supporting families.

Eric’s Journey Foundation

Sep 7, 2025

A U.S.-based foundation dedicated to supporting families, raising awareness, and advancing research for histiocytic disorders.

CHANCE Association (Children Against Cancer)

Sep 7, 2025

A patient-focused group that supports children with cancer and rare diseases, raising awareness and funding research to improve care.

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