by Asmaa Javed | Dec 31, 2018 | Press Releases
The ECD Global Alliance announces the launch of the Registry for Patients with Erdheim-Chester Disease led by Memorial Sloan Kettering Cancer Center (MSK), in New York, NY. The next step in building the registry database includes recruiting patients with ECD to...
by Asmaa Javed | Dec 31, 2018 | Press Releases
Medical residents and physicians at Houston Methodist Hospital in Houston, TX learned about Erdheim-Chester disease from ECD Care Center lead, Mark Heaney, MD, PhD from Columbia University Medical Center. Also in attendance was ECDGA President, Kathy Brewer.
by Asmaa Javed | Dec 30, 2018 | Press Releases
The Erdheim-Chester Disease Global Alliance welcomes the Stanford Histiocytosis Program at Stanford Health Care as the newest ECD Emerging Care Center.
by Asmaa Javed | Dec 30, 2018 | Press Releases
The University of Miami hosted a medical presentation to further residents’ education in histiocytic disorders. The speaker, ECD Care Center lead Dr. Ronald Go of Mayo Clinic in Rochester, MN, discussed the features and management of Erdheim-Chester disease and other...
by Asmaa Javed | Dec 30, 2018 | Press Releases
Hematologists from around the world eagerly engage with ECDGA exhibitors to learn more about this rare disease.