by Asmaa Javed | Jan 23, 2019 | Past Awards
Nicole Coufal, MD, Ph.D. (University of California, San Diego US) Year Awarded: 2019 Amount: 50,000 USD In 2019, a $50,000 young investigator award was granted to Nicole Coufal with the University of California, San Diego. Study Title: “Pathophysiology of...
by Asmaa Javed | Jan 11, 2019 | Patient and Family Gathering
Location: Milan, Italy 2019 Patient & Family Gathering Schedule of Events All patients and loved ones interested in learning more about ECD and meeting other families are encouraged to attend the following events. The registration fee for the 2-day event includes...
by Asmaa Javed | Jan 2, 2019 | News
Vaccination Statement The ECD medical community strongly encourages that COVID vaccinations be pursued by everyone. Conversations are advised between individuals and their medical teams about specific situations for ECD patients, and others with underlying health...
by Asmaa Javed | Dec 31, 2018 | Press Releases
The ECD Global Alliance awards an Erdheim-Chester disease research grant to MSKCC to define the disease-initiating cell population in ECD and compare genetic alterations.
by Asmaa Javed | Dec 31, 2018 | Press Releases
The ECD Global Alliance welcomes Duke Cancer Institute in Durham, NC into the referral care center network that serves ECD patients worldwide. Richard F. Riedel, MD will be leading the institute’s team at the Emerging Referral Care Center.
