by Asmaa Javed | Dec 30, 2020 | Press Releases
ECDGA awards a research grant to the University of California-San Diego to improve the understanding of ECD and LCH, in addition to generating hypotheses and models that will allow for novel drug screening standards.
by Asmaa Javed | Dec 30, 2020 | Press Releases
An observational study of informal caregivers (ICs) of patients with Erdheim-Chester Disease (ECD) and other histiocytic diseases is now recruiting. Caregivers of patients participating in the Registry for ECD Patients are specifically requested, if possible, and the...
by Asmaa Javed | Jan 2, 2020 | News
The following link is to the protocol for an ECD study as announced by Dr. Augusto Vaglio of the University of Parma in Italy. ECD patients are invited to participate by sending in medical records. The study aims to gather medical records for 120 ECD patients and then...
by Asmaa Javed | Jan 2, 2020 | News
Caregiver Information Any caregiver interested in connecting with others who love and care for ECD patients, please contact the organization. Caregiving is a very difficult job. For many carers, the physical and emotional demands are constant and leave you feeling...
by Asmaa Javed | Jan 2, 2020 | News
Foreign Language Instructions to Register for the ECD Conference in Barcelona on 26 May 2025 Open Chrome as your internet browser. Go to the registration page at – https://secure.qgiv.com/for/bpfg/event/barcelonapatientfamilygathering Click on the three vertical...
