by Asmaa Javed | Dec 26, 2024 | Community Fundraisers
Bob and Phyllis Rodgers hosted the ECD Angel of Hope Park-to-Park 5K Fun Run on Sept. 19 during ECD Awareness Week to raise funds and awareness of the rare disease. They managed to raise awareness across the nation and $5,248 for the ECDGA!
by Asmaa Javed | Dec 26, 2024 | Community Fundraisers
This challenge was presented anonymously by one of our members who pledged to match, dollar for dollar, every donation made from October 27 to December 31, 2015, up to $25K. We are very excited to report that $90K was raised for the ECD community!! The $25k matching...
by Asmaa Javed | Dec 26, 2024 | Community Fundraisers
Running Vines Winery in Chesterton, IN hosted a fundraiser and awareness event in honor of ECD patient, Hank during Rare Disease Day weekend. They provided live music, food, and ECD awareness shirts and hoodies for purchase. After advertising in the community and...
by Asmaa Javed | Dec 26, 2024 | Community Fundraisers
Culver’s of Highland, Indiana held a fundraiser for ECD on Rare Disease Day 2016. Interested patrons dined on this day during the designated time. By grabbing an event flyer at the restaurant from ECD patient Ashley, 10% of the cost of their meal went to fund ECD...
by Asmaa Javed | Dec 26, 2024 | Community Fundraisers
This Arizona restaurant fundraiser was a success, raising over $2,000 while spreading awareness of Erdheim-Chester disease! The Gabby’s Grill restaurant owners, Jim and Kelley Cabral, donated 25 percent of all receipts contributed during this one-night event. The...
