by Asmaa Javed | May 2, 2025 | Webinar Recordings
Listen to Kevin O’Brien, NP, and Josef Lacy discussing mental health challenges and effective techniques for overcoming them. Gain insights firsthand from an ECD patient who shares his inspiring journey triumphing over mental health issues.
by Asmaa Javed | May 2, 2025 | Webinar Recordings
Listen to an experienced ECD caregiver as she shares her insights and coping mechanisms for self-care.
by Asmaa Javed | May 2, 2025 | Webinar Recordings
Discover insights from a leading expert on Rosai-Dorfman Disease. Gain a deeper understanding of this rare condition, its symptoms, diagnosis, and the latest treatment options. Don’t miss out on expert knowledge that could make a difference!
by Asmaa Javed | Apr 29, 2025 | News
In less than three months, the global Erdheim-Chester Disease (ECD) community will come together for the 10th Annual ECD Conference in Barcelona. This milestone event unites medical experts, researchers, patients, and families in a shared mission: to advance...
by Asmaa Javed | Apr 29, 2025 | News
Raising awareness for a rare disease like Erdheim-Chester Disease (ECD) takes more than facts and figures—it takes people. It takes passion, imagination, and community spirit. And during Volunteer Month, we’re thrilled to recognize a very special kind of volunteer:...
