by Asmaa Javed | Sep 26, 2025 | APV-D Resources
Offers guidance on AVP Deficiency (Diabetes Insipidus) treatment, including information on managing symptoms and accessing support. AVP Deficiency Treatment with a download for Advice For AVPD-DI Patients
by Asmaa Javed | Sep 23, 2025 | Webinar Recordings
Presented by Dr. Gaurav Goyal, University of Alabama at Birmingham In partnership with the Erdheim-Chester Disease Global Alliance (ECDGA) This presentation explores the importance of survivorship research in Erdheim-Chester Disease (ECD) and the critical role...
by Asmaa Javed | Sep 9, 2025 | Insurance and Financial Assistance
Air Charity Network is a charitable organization that provides access for people in need who are seeking free air transportation to specialized health care facilities or distant destinations due to family, community, or national crisis. Air Charity Network serves all...
by Asmaa Javed | Sep 9, 2025 | News
The July 31 Canada Monthly Chat was a truly special event, featuring guest speaker Gary Tobin, who shared his extraordinary journey of resilience and survival after being diagnosed with stage 4 Acral Lentiginous Melanoma. This session was recorded so the broader...
by Asmaa Javed | Sep 8, 2025 | Webinar Recordings
Pat Gildroy, lead administrator of the Facebook Group, “Got Arginine VasoPressin Deficiency?” about the resources, symptoms, tests, and the patient experience for those living with Arginine Vasopressin Deficiency, formerly known as Diabetes...
