Walking With Hope

“I studied everything I could about ECD and thought I had a death sentence coming very soon.” – by Hugh Welborn.

A Spiritual Journey Through ECD

The journey to a diagnosis can be stressful for the entire family. Positive support is critical to a patient’s outlook and response to the news. Despite the effects of COVID and the rarity of his newly found disease, William Dean finds his path and fights to stay...

Unexpected Hope in Israel

An Erdheim-Chester disease patient tells her hope-filled story for Rare Disease Day 2021.