What one UK family faced with Erdheim-Chester Disease. By Chesnee Green September 13, 2018 Erdheim-Chester Disease (ECD) patients are fighting a daily battle with their mental and physical health. Likewise, the caregivers are also fighting a daily battle. Many times,...
One of the biggest American Cancer Society events of the year hosted an Erdheim-Chester Disease team! By Chesnee Green, September 21, 2018, Nashville TN. – Erdheim-Chester Disease Global Alliance (ECDGA), a non-profit based in DeRidder LA, continually searches for a...
A passion for football, and brothers love, showed one rare disease that family is first. Written by Chesnee Green September 1, Columbia, MO – Fall is upon us! For many this means pumpkin spice and sweaters, for others it’s the pigskin and gridiron: Football! For the...
Written by an ECD family with the intention to raise awareness. “Special thanks to Dr. Roei Mazor for his invaluable contributions to this article for its medical accuracy, and for his unwavering care and treatment of my dad over the past four+ years.” – Michael...
