by Asmaa Javed | Dec 31, 2024 | Voices of ECD
A passion for football, and brothers love, showed one rare disease that family is first. Written by Chesnee Green September 1, Columbia, MO – Fall is upon us! For many this means pumpkin spice and sweaters, for others it’s the pigskin and gridiron: Football! For the...
by Asmaa Javed | Dec 31, 2024 | Voices of ECD
Written by an ECD family with the intention to raise awareness. “Special thanks to Dr. Roei Mazor for his invaluable contributions to this article for its medical accuracy, and for his unwavering care and treatment of my dad over the past four+ years.” – Michael...
by Asmaa Javed | Dec 31, 2024 | Voices of ECD
Erdheim-Chester disease is not the same for all patients. By Tina Koslosky
by Asmaa Javed | Dec 31, 2024 | Voices of ECD
An Erdheim-Chester Disease family reports on the state of healthcare in a large region of Italy. By Mariangela Melino
by Asmaa Javed | Dec 31, 2024 | Voices of ECD
Losing her husband to Erdheim-Chester disease does not stop this caregiver from having hope for others still fighting. By Maria Assunta Di Pietro
