by Asmaa Javed | Apr 4, 2025 | Partners
by Asmaa Javed | Mar 26, 2025 | News
An Introduction for Those Newly Diagnosed If you or a loved one has recently received a diagnosis of Erdheim-Chester Disease (ECD), you may be feeling overwhelmed, confused, or even scared. That’s completely understandable. ECD is an ultra-rare condition, and most...
by Asmaa Javed | Mar 26, 2025 | Webinars
Part 4: Nutrition Education Services Center Tuesday, April 15, 2025 1:00 PM Central Time (US and Canada) Register Here Speakers: Margaret N. Martin, RD, MS, LDN, CDCES, Manager, Nutrition Education at LLS Margaret Martin is a Licensed Dietitian and Nutritionist in the...
by Asmaa Javed | Mar 21, 2025 | News
At the 10th Annual ECD Conference in Barcelona, something truly unique happens—patients, families, and medical experts come together in the same room, with a shared purpose: driving progress in the understanding, care, and treatment of Erdheim-Chester Disease (ECD)....
by Asmaa Javed | Mar 21, 2025 | News
Erdheim-Chester Disease (ECD) is a complex and rare condition that can affect multiple organs and systems in the body. From the bones and heart to the kidneys and brain, ECD’s impact is often widespread. Because of this, a team-based, multidisciplinary approach to...
