https://www.erdheim-chester.org/wp-content/uploads/2026/02/ezgif-2f1f6a9c7f99874a.mp4 Your support helps create awareness, compassion, and hope. Here’s how you can help today: Share your story Make a gift to support our mission Learn more and advocate for rare disease...
https://www.erdheim-chester.org/wp-content/uploads/2026/02/RebeccaBooneStory-m.mp4 Ziggy recently had the pleasure of interviewing Rebecca Boone about her journey with ECD. Rebecca shared her personal experiences, challenges, and the impact ECD has had on her life....
