A nonprofit organization that may help provide a one-month supply of expensive medications at no cost. These medicines are unopened, originally packaged, and legally donated by individuals who no longer need them. Availability varies and is not guaranteed.
In this educational webinar, Dr. Mohammed G. Atta, MD, nephrologist at Johns Hopkins Hospital, shares an in-depth overview of how Erdheim-Chester Disease (ECD) can affect the kidneys and what research has taught us about kidney outcomes in people living with this rare...
This patient education session features Dr. XinXin Cao, a hematologist at Peking Union Medical College Hospital, an ECD referral care center. She talks about common histiocytic disorders, including Erdheim–Chester disease (ECD), Langerhans cell histiocytosis, and...
In this special ECD webinar, Dr. Jerome Razanamahery, an internal medicine doctor at Dijon University Hospital, an ECD referral care center, talks about Erdheim-Chester Disease (ECD). He explains what ECD is, why it can be hard to diagnose, and how new targeted...
Together, We Move Forward From the Erdheim-Chester Disease Global Alliance As we step into 2025, the Erdheim-Chester Disease Global Alliance (ECDGA) reflects on another meaningful year of connection, progress, and unwavering commitment to our mission. From our...
