ECDGA Welcomes Newest Care Center in London, UK

The Erdheim-Chester Disease Global Alliance (ECDGA) is proud to announce the addition of a new ECD Care Center at University College London Hospitals (UCLH), located in London, England (NW1 2PG).

This marks the 42nd ECD Care Center worldwide and the third recognized Care Center in England, reflecting ongoing efforts to improve access to expert Erdheim-Chester Disease (ECD) care across the globe.

 

About the New Care Center

  • Institution: University College London Hospitals (UCLH)
  • Location: London, NW1 2PG
  • Lead Physician: Satyen Gohil, MD, Department of Hematology
  • Designation: Full Referral Care Center

Dr. Gohil and his team bring valuable experience in diagnosing and managing ECD. With a demonstrated commitment to supporting the ECD community, this center is now available to serve patients seeking expert consultation and care in the UK and beyond.

“When dealing with a condition as rare as ECD, being able to find specialist doctors and nurses who know and care about the condition is essential. Being part of the ECD global alliance is a great resource for patients and shows that they are not alone; they can connect with others, and it is a source of strength when they finally have their diagnosis.”
Satyen Gohil, MD, Department of Hematology

This addition reflects the ECDGA’s mission to expand access to care and ensure that patients have knowledgeable providers in their region. As always, individual patient needs vary, and we encourage all diagnosed individuals to consult with their healthcare providers regarding referral or consultation with any Care Center.

Explore ECD Care Centers Near You

To learn more about recognized Care Centers and how to access expert care, visit the ECDGA Care Center Directory.

The Erdheim-Chester Disease Global Alliance (ECDGA) does not provide medical advice, diagnoses, or treatments. All content is for informational purposes only. Please consult with a healthcare provider for medical concerns.