The ECD Global Alliance is excited to announce that our 3rd Annual Fun Run will take place from June 1–30, 2026!
Registration is officially open, and we invite patients, caregivers, families, friends, and supporters from around the world to join us for this special month-long event. Participants can walk, run, bike, roll, or choose another activity while helping raise awareness and support for the Erdheim-Chester Disease community.
This year, our goal is to raise $25,000 to support the ECD Global Alliance’s mission of providing education, advocacy, awareness, and patient support globally.
The Fun Run is designed for everyone — participate from anywhere in the world and at your own pace while helping make a difference for those affected by ECD.
Throughout the month, we will also offer bonus fundraising incentives that can help participants increase the amount they raise, so be sure to watch for upcoming emails and announcements with details about these special opportunities.
We encourage everyone to:
- Register today
- Invite friends and family to participate
- Share your journey on social media
- Help spread awareness about Erdheim-Chester Disease
Together, we can make this year’s Fun Run our biggest and most impactful yet!

