This is a final and important reminder that February 1, 2026 is the deadline for ALL submissions: registrations at the early bird rate, award nominations, patient posters, and financial assistance requests related to the 2026 ECD Global Alliance Patient & Family Gathering.
Please review the items below carefully and take action before February 1.
FEBRUARY 1 DEADLINES — ACTION REQUIRED
- Event Registration (Early Bird Deadline)
Early bird registration ends February 1, 2026 for:
- Patient & Family Gathering – Register HERE
- 2026 ECDGA Award Nominations
Nominations for the Mark Heaney Award for Awareness and the Community Champion Award must be submitted by February 1, 2026.
Submit Nominations HERE
- Financial Assistance Requests
February 1, 2026 is also the deadline to request financial assistance for attendance at the 2026 ECDGA Patient & Family Gathering. Requests submitted after this date cannot be considered.
Request Assistance HERE
- Patient Poster Submissions
February 1 2026 is the deadline to submit a Patient Poster for the 2026 ECDGA Patient and Family Gathering
Submit your poster HERE
EVENT DATES & LOCATION
Birmingham, Alabama
- Meet & Greet: April 29, 2026
- Patient & Family Gathering: April 30, 2026
Hosted by the ECD Global Alliance and the UAB School of Medicine
IMPORTANT
If you are planning to:
- Register at the early bird rate
- Nominate someone for an award
- Request financial assistance
- Submit a Patient Poster
You must complete these steps by February 1, 2026.
For questions or assistance, please contact us at support@erdheim-chester.org.
Thank you for your continued engagement, commitment, and support of the ECD community. We look forward to welcoming you to Birmingham this spring.