As 2025 comes to a close, the ECD Global Alliance reflects with gratitude on the strength and generosity of our incredible community. Because of your support, we continue to advance research, provide critical resources for patients and families, and expand awareness of Erdheim-Chester disease among medical professionals worldwide.
This year, we are thrilled to announce a remarkable opportunity to double your impact.
Thanks to the generosity of community members, all gifts made to the ECDGA between now and December 31, 2025, will be matched dollar-for-dollar, up to $90,000.
Your donation will go twice as far in supporting:
- Ongoing and emerging ECD research
- Patient and caregiver programs
- Educational outreach for clinicians
- Global advocacy initiatives
Every contribution—large or small—brings us another step closer to improving outcomes and quality of life for those affected by ECD.
Make your gift today and help us reach our full matching goal before the year ends. Together, we can fuel hope, progress, and meaningful change for our community.
Thank you for your continued support and partnership.
Donate Today!

