A Florida fundraiser was held in December 2017 by patient Iris Vagnini. She used her creative hobby of taking exceptional photos in her garden to create a desk calendar to raise funds for the ECDGA. The advertisement and sales of this product created an opportunity to raise awareness of ECD and earned nearly $2,000 for the organization!
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- Erdheim-Chester Disease Global Alliance 2025: The Year in Review
- Final Reminder: February 1 Deadline for Registration, Abstracts, Awards, & Financial Assistance
- Final Reminder: February 1 Deadline for Registration, Awards, Patient Posters & Financial Assistance
- Join Us for the 2026 ECDGA Patient & Family Gathering in Birmingham, AL, Early Bird Deadline February 1, 2026
- The Strength of Support: How the ECDGA Support Network Empowers the ECD Community

