We are 10 YEARS STRONG!!
The ECDGA is raising funds for the future and we need your help! We ask you to request 10 of your friends or family to donate $10 each for a 10-week celebration!
From October 10 to December 12, the 10-10-10 event will be our simplest year-end fundraiser ever! Here are some tips to get your network ramped for giving!
How to Invite Donors
- Send a letter or email explaining what the organization is about and how it has helped you on your journey
- Post the donation request to your social pages, tagging others to donate
- Host donation page in memory of a loved one
Social Media Help
- Join in the conversations on the ECDGA social pages found HERE
- Use the media hashtags to get more views of your post: #10yearsstrong, #raredisease, #ErdheimChester, #rarecancer, #endECD
- Tag your friends so that they can see your fundraising efforts by using the @ symbol in front of their name
Global Community Ideas
- Spread the word in other languages by
- Contact the news media in your country to write a story about your journey
How do donations help?
- $10 = Sends educational information to 10 physicians
- $25 = Provides monthly website service to share information
- $50 = Pays one month of phone service for patient calls
- $75 = Covers a communication moderator throughout the week
- $100 = Provides medical literature to a university
Thank you for considering this opportunity to help the ECDGA continue on its mission to help all those affected by Erdheim-Chester!