{"id":41686,"date":"2025-05-26T17:16:49","date_gmt":"2025-05-26T22:16:49","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/?post_type=tribe_events&#038;p=41686"},"modified":"2025-11-18T22:40:28","modified_gmt":"2025-11-19T04:40:28","slug":"%e7%ac%ac%e5%8d%81%e5%b1%8a%e5%b9%b4%e5%ba%a6%e6%97%a9%e4%ba%a7%e5%84%bf%e6%82%a3%e8%80%85%e5%8f%8a%e5%ae%b6%e5%b1%9e%e8%81%94%e8%b0%8a%e4%bc%9a","status":"publish","type":"tribe_events","link":"https:\/\/www.erdheim-chester.org\/zh\/event\/10th-annual-ecd-patient-family-gathering\/","title":{"rendered":"\u7b2c\u5341\u5c4aECD\u60a3\u8005\u53ca\u5bb6\u5c5e\u8054\u8c0a\u4f1a"},"content":{"rendered":"<p><span class=\"register-here\"><a href=\"https:\/\/secure.qgiv.com\/for\/bpfg\/event\/barcelonapatientfamilygathering\/\" target=\"_blank\" rel=\"noopener\">\u5728\u6b64\u6ce8\u518c<\/a><\/span><\/p>\n<p>ECD\u5168\u7403\u8054\u76df\u7684\u4f7f\u547d\u4e4b\u4e00\uff0c\u662f\u5411\u60a3\u8005\u63d0\u4f9b\u6240\u9700\u7684\u4fe1\u606f\uff0c\u5e2e\u52a9\u4ed6\u4eec\u7ef4\u62a4\u81ea\u8eab\u5065\u5eb7\u548c\u751f\u6d3b\u8d28\u91cf\u3002\u4e3e\u529e\u201c\u60a3\u8005\u53ca\u5bb6\u5c5e\u805a\u4f1a\u201d\uff08PFG\uff09\u7684\u76ee\u7684\u662f\u51dd\u805a\u60a3\u8005\u548c\u5bb6\u5c5e\u7684\u529b\u91cf\uff0c\u5e76\u589e\u8fdb\u4ed6\u4eec\u5bf9\u57c3\u5c14\u5fb7\u6d77\u59c6-\u5207\u65af\u7279\u75c5\u7684\u8ba4\u8bc6\u548c\u7406\u89e3\u3002.<\/p>\n<p><img loading=\"lazy\" decoding=\"async\" class=\"aligncenter wp-image-22940\" src=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2024\/10\/Picture3.jpg\" alt=\"\" width=\"2000\" height=\"586\" srcset=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2024\/10\/Picture3.jpg 812w, https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2024\/10\/Picture3-300x88.jpg 300w, https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2024\/10\/Picture3-768x225.jpg 768w\" sizes=\"(max-width: 2000px) 100vw, 2000px\" \/><\/p>\n<p>PFG \u4e3a\u4e0e\u4f1a\u8005\u63d0\u4f9b\u4e86\u4e00\u4e2a\u4ea4\u6d41\u5e73\u53f0\uff0c\u5e76\u4e3a\u4ed6\u4eec\u521b\u9020\u4e86\u5411\u4e00\u652f\u7531\u5177\u6709 ECD \u60a3\u8005\u62a4\u7406\u7ecf\u9a8c\u4e14\u6b63\u5728\u8be5\u9886\u57df\u5f00\u5c55\u7814\u7a76\u7684\u56fd\u9645\u533b\u7597\u4e13\u4e1a\u4eba\u5458\u56e2\u961f\u63d0\u51fa\u95ee\u9898\u548c\u8868\u8fbe\u5173\u5207\u7684\u673a\u4f1a\u3002\u901a\u8fc7\u5206\u4eab\u7684\u4fe1\u606f\uff0c\u60a3\u8005\u80fd\u591f\u5feb\u901f\u4e86\u89e3\u6709\u5173 ECD \u7684\u66f4\u591a\u4fe1\u606f\u53ca\u53ef\u80fd\u7684\u6cbb\u7597\u65b9\u6848\uff0c\u5e76\u83b7\u6089\u6700\u65b0\u7684\u7814\u7a76\u6210\u679c\u3002.<\/p>\n<p><span class=\"register-here\"><a href=\"https:\/\/secure.qgiv.com\/for\/bpfg\/event\/barcelonapatientfamilygathering\/\" target=\"_blank\" rel=\"noopener\">\u5728\u6b64\u6ce8\u518c<\/a><\/span><\/p>\n<h3>\u6982\u8ff0<\/h3>\n<p>ECD\u5168\u7403\u8054\u76df2025\u5e74\u60a3\u8005\u53ca\u5bb6\u5c5e\u805a\u4f1a\u5c06\u4e8e5\u670826\u65e5\u5728\u5df4\u585e\u7f57\u90a3\u83f2\u62c9\u4e07\u4e3d\u9152\u5e97\u4e3e\u884c\u3002\u672c\u6b21\u805a\u4f1a\u5c06\u6c47\u805a\u60a3\u8005\u3001\u5bb6\u5c5e\u3001\u62a4\u7406\u4eba\u5458\u3001\u4e34\u5e8a\u533b\u751f\u3001\u7814\u7a76\u4eba\u5458\u4ee5\u53ca\u652f\u6301\u7ec4\u7ec7\u6210\u5458\uff0c\u5171\u540c\u5206\u4eab\u5173\u4e8eECD\u8bca\u65ad\u3001\u6cbb\u7597\u53ca\u65e5\u5e38\u751f\u6d3b\u7684\u77e5\u8bc6\u4e0e\u7ecf\u9a8c\u3002 \u5c4a\u65f6\u5c06\u8bbe\u6709\u5b66\u4e60\u73af\u8282\u3001\u5206\u4eab\u73af\u8282\uff0c\u4ee5\u53ca\u4e0e\u540c\u6837\u53d7ECD\u5f71\u54cd\u7684\u4eba\u58eb\u5efa\u7acb\u8054\u7cfb\u7684\u73af\u8282\u3002\u6211\u4eec\u5e0c\u671b\u6b64\u6b21\u805a\u4f1a\u80fd\u8ba9\u6240\u6709\u53c2\u4e0e\u8005\u66f4\u5168\u9762\u5730\u4e86\u89e3\u76f8\u5173\u4fe1\u606f\uff0c\u5e76\u5bf9\u672a\u6765\u5145\u6ee1\u66f4\u591a\u5e0c\u671b\u3002.<\/p>\n<p><strong>\u73b0\u573a\u5c06\u63d0\u4f9b\u540c\u58f0\u4f20\u8bd1\u670d\u52a1\uff0c\u65b9\u4fbf\u8bb2\u82f1\u8bed\u3001\u6cd5\u8bed\u3001\u5fb7\u8bed\u3001\u610f\u5927\u5229\u8bed\u548c\u897f\u73ed\u7259\u8bed\u7684\u4eba\u58eb\u53c2\u4e0e\u3002.<\/strong><\/p>\n<h3>\u6d3b\u52a8\u65e5\u7a0b\u8868<\/h3>\n<p><strong><u>2025\u5e745\u670825\u65e5\uff0c\u661f\u671f\u65e5\u2014\u2014\u4f1a\u8bae\u524d\u7684\u6d3b\u52a8<\/u><\/strong><\/p>\n<p style=\"padding-left: 40px;\"><strong>\u4e0b\u53485\u70b9\u81f36\u70b9 \u5929\u4e3b\u6559\u5f25\u6492<\/strong><br \/>\n\u6b22\u8fce\u611f\u5174\u8da3\u7684\u4eba\u58eb\u5728\u4f1a\u8bae\u5f00\u59cb\u524d\u53c2\u52a0\u4e00\u573a\u5929\u4e3b\u6559\u5f25\u6492\u3002\u6b64\u6b21\u201c\u60a3\u8005\u53ca\u5bb6\u5c5e\u805a\u4f1a\u201d\u7684\u8d5e\u52a9\u4eba\u67e5\u5c14\u65af\u00b7\u5df4\u5c14\u7eb3\u7ef4\u65af\u795e\u7236\u5c06\u4e3b\u6301\u5f25\u6492\u3002.<\/p>\n<p><strong>2025\u5e745\u670826\u65e5\uff0c\u661f\u671f\u4e00<\/strong><\/p>\n<p style=\"padding-left: 40px;\"><strong>\u4e0a\u53488:00-8:30 \u7b7e\u5230\u53ca\u6b27\u9646\u5f0f\u65e9\u9910<\/strong><br \/>\n\u4e0e\u5927\u5bb6\u4e00\u8d77\u4eab\u7528\u4e00\u987f\u6e05\u6de1\u7684\u65e9\u9910\uff0c\u4e3a\u8fd9\u4e00\u5145\u6ee1\u5e0c\u671b\u7684\u8d44\u8baf\u65e5\u505a\u597d\u51c6\u5907\u3002.<\/p>\n<p style=\"padding-left: 40px;\"><strong>\u4e0a\u53488:30\u81f3\u4e0b\u53484:40 \u60a3\u8005\u53ca\u5bb6\u5c5e\u805a\u4f1a<\/strong><br \/>\n\u82b1\u4e0a\u4e00\u6574\u5929\u65f6\u95f4\uff0c\u5411\u533b\u7597\u4e13\u4e1a\u4eba\u58eb\u3001\u60a3\u8005\u53ca\u5176\u4ed6\u4eba\u58eb\u6df1\u5165\u4e86\u89e3ECD\u3002.<\/p>\n<p style=\"padding-left: 40px;\"><strong>\u4e0b\u53486:00-8:00 \u5e86\u795d\u665a\u4f1a<\/strong><br \/>\n\u4e0e\u60a3\u8005\u3001\u5bb6\u5c5e\u3001\u670b\u53cb\u4ee5\u53ca\u533b\u62a4\u4eba\u5458\u5171\u5ea6\u4e00\u4e2a\u5145\u6ee1\u5e0c\u671b\u4e0e\u559c\u5e86\u7684\u591c\u665a\u3002.<\/p>\n<h3>\u6709\u54ea\u4e9b\u4eba\u53c2\u52a0\uff1f<\/h3>\n<p>\u672c\u6b21\u6d3b\u52a8\u9762\u5411\u6574\u4e2aECD\u7fa4\u4f53\uff0c\u5305\u62ec\u60a3\u8005\u3001\u62a4\u7406\u4eba\u5458\u3001\u5bb6\u5c5e\u4ee5\u53caECD\u533b\u7597\u4e13\u4e1a\u4eba\u5458\u3002\u6b22\u8fce\u9080\u8bf7\u60a8\u7684\u5bb6\u4eba\u3001\u670b\u53cb\u4ee5\u53ca\u533b\u7597\u56e2\u961f\u6210\u5458\u53c2\u52a0\u3002.<\/p>\n<p><span class=\"register-here\"><a href=\"https:\/\/secure.qgiv.com\/for\/bpfg\/event\/barcelonapatientfamilygathering\/\" target=\"_blank\" rel=\"noopener\">\u5728\u6b64\u6ce8\u518c<\/a><\/span><\/p>\n<h3>\u4e3b\u6301\u4eba<\/h3>\n<p><a href=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2024\/10\/Picture2.jpg\"><img loading=\"lazy\" decoding=\"async\" class=\"alignleft wp-image-22983\" src=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2024\/10\/Picture2.jpg\" alt=\"\" width=\"160\" height=\"188\" \/><\/a><a href=\"https:\/\/shformacion.es\/dr-xavier-solanich-moreno\/\" target=\"_blank\" rel=\"noopener\">\u6cfd\u7ef4\u5c14\u00b7\u7d22\u62c9\u5c3c\u5947\uff0c\u533b\u5b66\u535a\u58eb\u3001\u54f2\u5b66\u535a\u58eb<\/a> \u662f\u4eca\u5e74ECD\u4f1a\u8bae\u7684\u4e3b\u6301\u4eba\u3002\u7d22\u62c9\u5c3c\u5947\u535a\u58eb\u662f\u8d1d\u5c14\u7ef4\u7279\u683c\u5927\u5b66\u533b\u9662\u5185\u79d1\u4e13\u79d1\u533b\u751f\uff0c\u81ea2010\u5e748\u6708\u8d77\u4e00\u76f4\u5728\u8be5\u9662\u6267\u4e1a\u3002 \u4ed6\u9886\u5bfc\u8d1d\u5c14\u7ef4\u7279\u683c\u533b\u9662\u7684ECD\u8f6c\u8bca\u6cbb\u7597\u4e2d\u5fc3\uff0c\u9664ECD\u60a3\u8005\u5916\uff0c\u8fd8\u63a5\u8bca\u5176\u4ed6\u7f55\u89c1\u75c5\u60a3\u8005\uff0c\u5982\u7f57\u8d5b-\u591a\u592b\u66fc\u7efc\u5408\u5f81\u3001\u539f\u53d1\u6027\u514d\u75ab\u7f3a\u9677\u75c5\u4ee5\u53ca\u67d0\u4e9b\u9057\u4f20\u6027\u4ee3\u8c22\u75be\u75c5\uff08\u5c24\u5176\u662f\u6208\u8c22\u75c5\uff09\u3002 \u4ed6\u8fd8\u63a5\u8bca\u7cfb\u7edf\u6027\u81ea\u8eab\u514d\u75ab\u6027\u75be\u75c5\u60a3\u8005\uff0c\u4e3b\u8981\u5305\u62ec\u7cfb\u7edf\u6027\u8840\u7ba1\u708e\u3001\u4e3b\u52a8\u8109\u5468\u708e\/\u540e\u8179\u819c\u7ea4\u7ef4\u5316\u4ee5\u53caIgG4\u76f8\u5173\u6027\u75be\u75c5\u3002\u6b64\u5916\uff0c\u4ed6\u8fd8\u62c5\u4efb\u773c\u79d1\u987e\u95ee\uff0c\u8d1f\u8d23\u8461\u8404\u819c\u708e\u3001\u514d\u75ab\u6027\/\u7f3a\u8840\u6027\u89c6\u795e\u7ecf\u708e\u53ca\u773c\u7736\u5047\u6027\u80bf\u7624\u7b49\u60a3\u8005\u7684\u8bca\u65ad\u4e0e\u7ba1\u7406\u2026\u2026<\/p>\n<p>\u7d22\u62c9\u5c3c\u5947\u535a\u58eb\u8fd8\u4efb\u804c\u4e8e\u8d1d\u5c14\u7ef4\u7279\u683c\u751f\u7269\u533b\u5b66\u7814\u7a76\u6240\uff08IDIBELL\uff09\u7684\u7cfb\u7edf\u6027\u75be\u75c5\u4e0e\u8870\u8001\u7814\u7a76\u7ec4\u3002 \u4ed6\u66fe\u53c2\u4e0e\u591a\u9879\u56fd\u5185\u53ca\u56fd\u9645\u7814\u7a76\u9879\u76ee\uff0c\u81f4\u529b\u4e8e\u7cfb\u7edf\u6027\u81ea\u8eab\u514d\u75ab\u6027\u75be\u75c5\u3001\u514d\u75ab\u7f3a\u9677\u53ca\u5176\u4ed6\u7f55\u89c1\u75be\u75c5\u7684\u7814\u7a76\u3002\u6b64\u5916\uff0c\u4ed6\u8fd8\u4ee5\u9996\u5e2d\u7814\u7a76\u5458\u6216\u5408\u4f5c\u8005\u7684\u8eab\u4efd\u53c2\u4e0e\u4e86\u591a\u9879\u4e34\u5e8a\u8bd5\u9a8c\uff0c\u5e76\u6210\u529f\u83b7\u5f97\u4e86\u7ade\u4e89\u6027\u516c\u5171\u8d44\u91d1\u652f\u6301\u3002\u51ed\u501f\u5176\u7814\u7a76\u6210\u679c\uff0c\u4ed6\u5728\u591a\u4efd\u88ab\u6536\u5f55\u7684\u79d1\u5b66\u671f\u520a\u4e0a\u53d1\u8868\u4e86\u591a\u7bc7\u8bba\u6587\u3002.<\/p>\n<h3>\u8bae\u7a0b<\/h3>\n<p>\u8be6\u7ec6\u8bae\u7a0b\u5c06\u5728\u4f1a\u8bae\u53ec\u5f00\u524d\u516c\u5e03\u3002.<\/p>\n<h3>\u9152\u5e97<\/h3>\n<p>\u5df2\u4e3a\u201c\u60a3\u8005\u53ca\u5bb6\u5c5e\u805a\u4f1a\u201d\u9884\u7559\u4e86\u4e00\u6279\u5ba2\u623f\uff0c\u5730\u70b9\u4f4d\u4e8e\u2014\u2014<\/p>\n<p><a href=\"https:\/\/www.marriott.com\/en-us\/hotels\/bcnrf-renaissance-barcelona-fira-hotel\/overview\/\" target=\"_blank\" rel=\"noopener\">\u5df4\u585e\u7f57\u90a3\u83f2\u62c9\u6587\u827a\u590d\u5174\u9152\u5e97<\/a><br \/>\n\u6b27\u6d32\u5e7f\u573a50-52\u53f7\uff0c\u6d1b\u5e03\u96f7\u52a0\u7279\u5965\u65af\u76ae\u5854\u83b1\u7279\uff0c,<br \/>\n\u897f\u73ed\u7259\u5df4\u585e\u7f57\u90a3\uff0c08902<\/p>\n<p>\u8bf7\u5728\u9152\u5e97\u89c4\u5b9a\u7684\u622a\u6b62\u65e5\u671f\u524d\uff0c\u901a\u8fc7\u4ee5\u4e0b\u94fe\u63a5\u5b8c\u6210\u9884\u8ba2\u3002.<\/p>\n<p><a href=\"https:\/\/urldefense.com\/v3\/__https:\/www.marriott.com\/event-reservations\/reservation-link.mi?id=1727274366753&amp;key=GRP&amp;guestreslink2=true__;!!C3t69QB3aUNwaBo5Tg!0YqER0euD5kdBUgfqASZPNbLxw7ozmgq9OicuSBWzDO5au8JRPu2LTzzb9t_Ug57ce6ST19xjfo4-EBoMtOS11KUpqMXdreyJTr_QZMPWQ$\" target=\"_blank\" rel=\"noopener\"><strong>\u9884\u8ba2ECD\u5168\u7403\u8054\u76df\u4f1a\u8bae\u7684\u56e2\u4f53\u4f18\u60e0\u4ef7<\/strong><\/a><\/p>\n<p><strong>\u56e2\u4f53\u623f\u8d39\uff1a<\/strong> \u5355\u4eba\u95f4\uff1a240\u6b27\u5143\/\u665a\uff1b\u53cc\u4eba\u95f4\uff1a260\u6b27\u5143\/\u665a<br \/>\n<strong>\u9152\u5e97\u9884\u8ba2\u622a\u6b62\u65e5\u671f\uff1a<\/strong> 2025\u5e744\u670821\u65e5<\/p>\n<h3>\u65c5\u884c<\/h3>\n<p>\u5df4\u585e\u7f57\u90a3\u7684\u4ea4\u901a\u67a2\u7ebd\u662f\u4f55\u585e\u666e\u00b7\u5854\u62c9\u5fb7\u62c9\u65af\u5df4\u585e\u7f57\u90a3-\u57c3\u5c14\u666e\u62c9\u7279\u673a\u573a\u3002\u673a\u573a\u4e0e\u9152\u5e97\u4e4b\u95f4\u7684\u4ea4\u901a\u65b9\u5f0f\u5305\u62ec\uff1a<\/p>\n<ul>\n<li><strong>\u5730\u94c1\u3002.<\/strong> L9 Sud\u5730\u94c1\u7ebf\u8fde\u63a5\u673a\u573aT1\u548cT2\u822a\u7ad9\u697c\u4e0e\u5df4\u585e\u7f57\u90a3\u83f2\u62c9\u4e07\u4e3d\u9152\u5e97\u3002\u8be5\u9152\u5e97\u6240\u5728\u7684\u5730\u94c1\u7ad9\u4e3aEuropa Fira\u7ad9\u3002\u5730\u94c1\u6bcf\u5929\u4e0a\u53485\u70b9\u81f3\u5348\u591c\u8fd0\u8425\u3002.<\/li>\n<li><strong>\u79c1\u4eba\u63a5\u9001\u670d\u52a1\u3002.<\/strong> \u9152\u5e97\u7f51\u7ad9\u4e0a\u6ce8\u660e\uff0c\u53ef\u5e94\u8981\u6c42\u63d0\u4f9b\u79c1\u4eba\u63a5\u9001\u670d\u52a1\uff0c\u8d39\u7528\u4e3a101\u6b27\u5143\uff08\u5355\u7a0b\uff09\u3002.<\/li>\n<\/ul>\n<h3>\u5956\u5b66\u91d1\u5e2e\u52a9<\/h3>\n<p>\u5982\u679c\u60a3\u8005\u6216\u5bb6\u5c5e\u56e0\u7ecf\u6d4e\u539f\u56e0\u65e0\u6cd5\u53c2\u52a0\u6d3b\u52a8\uff0c\u6211\u4eec\u63d0\u4f9b\u6570\u91cf\u6709\u9650\u7684\u5956\u5b66\u91d1\u3002\u5982\u9700\u7533\u8bf7\u5956\u5b66\u91d1\uff0c\u8bf7\u8054\u7cfb ECDGA\uff1a <a href=\"mailto:support@Erdheim-Chester.org\">support@Erdheim-Chester.org<\/a> \u8bf7\u5c3d\u65e9\u63d0\u4ea4\u7533\u8bf7\u3002\u60a8\u9700\u8981\u63d0\u4f9b\u60a8\u7684\u59d3\u540d\u3001\u7535\u5b50\u90ae\u7bb1\u5730\u5740\u3001\u5728\u793e\u533a\u4e2d\u7684\u8eab\u4efd\uff08\u60a3\u8005\u3001\u62a4\u7406\u4eba\u5458\u3001\u5bb6\u5c5e\uff09\u4ee5\u53ca\u4e00\u4efd\u9700\u6c42\u8bf4\u660e\u3002\u6211\u4eec\u5c06\u57282\u6708\u5e95\u524d\u544a\u77e5\u5927\u5bb6\u6211\u4eec\u80fd\u63d0\u4f9b\u54ea\u4e9b\u5e2e\u52a9\u3002.<\/p>\n<h3>\u5ba3\u4f20\u63d0\u540d\u673a\u4f1a<\/h3>\n<p>\u6b22\u8fce\u5927\u5bb6\u63d0\u540d\u65e9\u671f\u513f\u7ae5\u53d1\u5c55\uff08ECD\uff09\u9886\u57df\u7684\u9886\u519b\u4eba\u7269\u2014\u2014 <a href=\"https:\/\/ecdga.questionpro.com\/2025-ECDGA-Award-Nomination\" target=\"_blank\" rel=\"noopener\">https:\/\/ecdga.questionpro.com\/2025-ECDGA-Award-Nomination<\/a>. \u8bf7\u63d0\u4ea4\u201c\u9a6c\u514b\u00b7\u5e0c\u5c3c\u5956\u201d\u63d0\u540d\uff0c\u4ee5\u8868\u5f70\u60a8\u8ba4\u4e3a\u901a\u8fc7\u5728\u533b\u7597\u754c\u63d0\u9ad8\u5bf9ECD\u7684\u8ba4\u8bc6\uff0c\u4ece\u800c\u6539\u5584\u4e86ECD\u60a3\u8005\u751f\u6d3b\u7684\u533b\u7597\u4e13\u4e1a\u4eba\u58eb\u3002\u60a8\u53ef\u4ee5\u63d0\u540d\u4efb\u4f55\uff08\u60a3\u8005\u3001\u62a4\u7406\u4eba\u5458\u3001\u533b\u7597\u4e13\u4e1a\u4eba\u58eb\u3001\u670b\u53cb\u7b49\uff09\u81ea\u613f\u5949\u732e\u65f6\u95f4\uff0c\u81f4\u529b\u4e8e\u6539\u5584\u6240\u6709\u53d7ECD\u5f71\u54cd\u4eba\u7fa4\u751f\u6d3b\u7684\u4eba\u58eb\u3002 \u83b7\u5956\u8005\u540d\u5355\u5c06\u4e8e5\u670826\u65e5\u7684ECD\u5e86\u795d\u665a\u4f1a\u4e0a\u516c\u5e03\u3002.<\/p>\n<p><strong>\u53c2\u4f1a\u8005\u4f53\u9a8c<\/strong><\/p>\n<p>\u201c\u6211\u4eec\u90fd\u5728\u540c\u4e00\u6761\u8239\u4e0a\uff0c\u9f50\u5fc3\u534f\u529b\uff0c\u6211\u4eec\u7684\u65c5\u7a0b\u4f1a\u66f4\u52a0\u7f8e\u597d\u3002\u201d<\/p>\n<p><strong>\u2013 \u82cf\u73ca\u00b7\u5b89\u5fb7\u68ee\uff0cECD\u5927\u5bb6\u5ead<\/strong><\/p>\n<p>\u201c\u6211\u4ece\u4e8b\u533b\u7597\u4fdd\u5065\u5de5\u4f5c\u5df2\u670920\u591a\u5e74\uff0c\u5374\u4ece\u672a\u89c1\u8fc7\u6216\u63a5\u89e6\u8fc7\u8fd9\u6837\u4e00\u7fa4\u5145\u6ee1\u7231\u5fc3\u3001\u5c3d\u5fc3\u5c3d\u529b\u7684\u533b\u7597\u4fdd\u5065\u4e13\u4e1a\u4eba\u5458\u548c\u5fd7\u613f\u8005\uff01\u201d<\/p>\n<p><strong>\u2013 \u6025\u8bca\u79d1\u5c31\u8bca\u60a3\u8005<\/strong><\/p>\n<p>\u201c\u6211\u77e5\u9053\u4ed6\u4eec\u65e0\u6cd5\u6cbb\u6108\u6211\u7684\u75c5\uff0c\u751a\u81f3\u65e0\u6cd5\u89e3\u7b54\u6211\u6240\u6709\u7684\u7591\u95ee\uff0c\u4f46\u5149\u662f\u77e5\u9053\u4ed6\u4eec\u4e00\u76f4\u5728\u6211\u8eab\u8fb9\uff0c\u5728\u503e\u542c\u6211\u7684\u5fc3\u58f0\uff0c\u5e76\u4e14\u7406\u89e3\u6211\u6b63\u5728\u7ecf\u5386\u7684\u4e00\u5207\uff0c\u8fd9\u5c31\u8db3\u591f\u4e86\u3002\u201d<\/p>\n<p><strong>\u2013 \u6025\u8bca\u79d1\u5c31\u8bca\u60a3\u8005<\/strong><\/p>","protected":false},"excerpt":{"rendered":"<p>The ECD Global Alliance is excited to convene the 10th annual Patient &#038; Family Gathering in Barcelona, Spain. The meeting will be hosted in partnership with Bellvitge Universitari Hospital on 26 May 2025. All patients, family members, friends, and medical professionals are welcome!<br \/>\n<\/br><\/br><br \/>\nECD\u5168\u7403\u8054\u76df\u7684\u4f7f\u547d\u4e4b\u4e00\uff0c\u662f\u5411\u60a3\u8005\u63d0\u4f9b\u6240\u9700\u7684\u4fe1\u606f\uff0c\u5e2e\u52a9\u4ed6\u4eec\u7ef4\u62a4\u81ea\u8eab\u5065\u5eb7\u548c\u751f\u6d3b\u8d28\u91cf\u3002\u4e3e\u529e\u201c\u60a3\u8005\u53ca\u5bb6\u5c5e\u805a\u4f1a\u201d\uff08PFG\uff09\u7684\u76ee\u7684\u662f\u51dd\u805a\u60a3\u8005\u548c\u5bb6\u5c5e\u7684\u529b\u91cf\uff0c\u5e76\u589e\u8fdb\u4ed6\u4eec\u5bf9\u57c3\u5c14\u5fb7\u6d77\u59c6-\u5207\u65af\u7279\u75c5\u7684\u8ba4\u8bc6\u548c\u7406\u89e3\u3002.<br \/>\n<\/br><\/br><br \/>\nPFG \u4e3a\u4e0e\u4f1a\u8005\u63d0\u4f9b\u4e86\u4e00\u4e2a\u4ea4\u6d41\u5e73\u53f0\uff0c\u5e76\u4e3a\u4ed6\u4eec\u521b\u9020\u4e86\u5411\u4e00\u652f\u7531\u5177\u6709 ECD \u60a3\u8005\u62a4\u7406\u7ecf\u9a8c\u4e14\u6b63\u5728\u8be5\u9886\u57df\u5f00\u5c55\u7814\u7a76\u7684\u56fd\u9645\u533b\u7597\u4e13\u4e1a\u4eba\u5458\u56e2\u961f\u63d0\u51fa\u95ee\u9898\u548c\u8868\u8fbe\u5173\u5207\u7684\u673a\u4f1a\u3002\u901a\u8fc7\u5206\u4eab\u7684\u4fe1\u606f\uff0c\u60a3\u8005\u80fd\u591f\u5feb\u901f\u4e86\u89e3\u6709\u5173 ECD \u7684\u66f4\u591a\u4fe1\u606f\u53ca\u53ef\u80fd\u7684\u6cbb\u7597\u65b9\u6848\uff0c\u5e76\u83b7\u6089\u6700\u65b0\u7684\u7814\u7a76\u6210\u679c\u3002.<\/p>","protected":false},"author":20,"featured_media":60201,"template":"","meta":{"_et_pb_use_builder":"off","_et_pb_old_content":"","_et_gb_content_width":"","cybocfi_hide_featured_image":"yes","_tribe_events_status":"","_tribe_events_status_reason":"","_tribe_events_is_hybrid":"","_tribe_events_is_virtual":"","_tribe_events_virtual_video_source":"","_tribe_events_virtual_embed_video":"","_tribe_events_virtual_linked_button_text":"","_tribe_events_virtual_linked_button":"","_tribe_events_virtual_show_embed_at":"","_tribe_events_virtual_show_embed_to":[],"_tribe_events_virtual_show_on_event":"","_tribe_events_virtual_show_on_views":"","_tribe_events_virtual_url":"","wds_primary_tribe_events_cat":0,"footnotes":"","_links_to":"","_links_to_target":""},"tags":[],"tribe_events_cat":[293],"class_list":["post-41686","tribe_events","type-tribe_events","status-publish","has-post-thumbnail","hentry","tribe_events_cat-ecd-patient-family-gathering","cat_ecd-patient-family-gathering"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/tribe_events\/41686","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/tribe_events"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/types\/tribe_events"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/users\/20"}],"version-history":[{"count":0,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/tribe_events\/41686\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/media\/60201"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/media?parent=41686"}],"wp:term":[{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/tags?post=41686"},{"taxonomy":"tribe_events_cat","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/tribe_events_cat?post=41686"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}