{"id":92680,"date":"2025-09-08T15:59:41","date_gmt":"2025-09-08T20:59:41","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/?p=92680"},"modified":"2025-09-10T22:52:33","modified_gmt":"2025-09-11T03:52:33","slug":"2025%e5%b9%b4%e6%97%a9%e6%95%99%e5%ae%a3%e4%bc%a0%e5%91%a8%e5%ae%9a%e4%ba%8e9%e6%9c%888%e6%97%a5%e8%87%b314%e6%97%a5","status":"publish","type":"post","link":"https:\/\/www.erdheim-chester.org\/zh\/ecd-awareness-week-2025-is-september-8-14\/","title":{"rendered":"2025\u5e74\u65e9\u671f\u513f\u7ae5\u53d1\u5c55\uff08ECD\uff09\u5ba3\u4f20\u5468\u5b9a\u4e8e9\u67088\u65e5\u81f314\u65e5\u4e3e\u884c"},"content":{"rendered":"

2025\u5e749\u67088\u65e5\u81f314\u65e5\u662fECD\u5ba3\u4f20\u5468<\/b>, \uff0c\u6211\u4eec\u9700\u8981\u60a8\u5e2e\u52a9\u63d0\u9ad8\u516c\u4f17\u610f\u8bc6\uff0c\u5e76\u5411\u5168\u4e16\u754c\u5c55\u793a\u6210\u4e3aECD\u5927\u5bb6\u5ead\u4e00\u5458\u7684\u610f\u4e49\u3002.<\/p>\n

\u201c\u5ba3\u4f20\u5468\u201d\u4e4b\u6240\u4ee5\u91cd\u8981\uff0c\u662f\u56e0\u4e3a \u57c3\u5c14\u5fb7\u6d77\u59c6-\u5207\u65af\u7279\u75c5\uff08ECD\uff09\u6781\u4e3a\u7f55\u89c1\uff0c\u4ee5\u81f3\u4e8e\u8bb8\u591a\u4eba\u2014\u2014\u751a\u81f3\u5305\u62ec\u533b\u7597\u754c\u4eba\u58eb\u2014\u2014\u90fd\u4ece\u672a\u542c\u8bf4\u8fc7\u8fd9\u79cd\u75be\u75c5<\/b>. \u901a\u8fc7\u53c2\u4e0e\u8fd9\u9879\u5168\u7403\u6027\u884c\u52a8\uff0c\u60a8\u6b63\u5728\u5e2e\u52a9\u6539\u5584\u65e9\u671f\u8bca\u65ad\u3001\u589e\u8fdb\u516c\u4f17\u5bf9\u8be5\u75be\u75c5\u7684\u4e86\u89e3\uff0c\u5e76\u8ba9\u793e\u4f1a\u5404\u754c\u66f4\u52a0\u5173\u6ce8\u6211\u4eec\u793e\u533a\u7684\u9700\u6c42\u3002.<\/p>\n

 <\/p>\n

\u4ee5\u4e0b\u662f\u60a8\u53ef\u4ee5\u53c2\u4e0e\u5176\u4e2d\u7684\u4e24\u79cd\u7b80\u5355\u65b9\u5f0f\uff1a<\/strong><\/p>\n

    \n
  1. \u5411\u5f53\u5730\u533b\u7597\u4e13\u4e1a\u4eba\u58eb\u5206\u53d1ECD\u5ba3\u4f20\u518c
    \n<\/strong>\u60a8\u53ef\u4ee5\u901a\u8fc7\u5411\u5f53\u5730\u7684\u533b\u751f\u3001\u62a4\u58eb\u548c\u8bca\u6240\u5206\u53d1\u5b98\u65b9\u7684ECD\u5ba3\u4f20\u518c\uff0c\u5e2e\u52a9\u4ed6\u4eec\u4e86\u89e3\u76f8\u5173\u77e5\u8bc6\u3002.
    \n\ud83d\udcc4\u00a0\u4e0b\u8f7d<\/a> \u8be5 \u533b\u7597\u4e49\u8bca\u5ba3\u4f20\u5355\u3002.<\/strong>
    \n\u672c\u5ba3\u4f20\u5355\u63d0\u4f9b\u4e86\u5173\u4e8e\u5982\u4f55\u7d22\u53d6\u5ba3\u4f20\u518c\u4ee5\u53ca\u5982\u4f55\u5206\u4eab\u5ba3\u4f20\u518c\u7684\u7b80\u660e\u8bf4\u660e\u3002.<\/li>\n
  2. \u4e3e\u529e\u793e\u533a\u7b79\u6b3e\u6d3b\u52a8<\/strong>
    \n\u60a8\u53ef\u4ee5\u5728\u793e\u533a\u5185\u7ec4\u7ec7\u4e00\u573a\u7b80\u5355\u7684\u6d3b\u52a8\uff0c\u4ee5\u6b64\u63d0\u9ad8\u4eba\u4eec\u5bf9\u65e9\u671f\u513f\u7ae5\u53d1\u5c55\u7684\u8ba4\u8bc6\u5e76\u4e89\u53d6\u652f\u6301\u3002\u65e0\u8bba\u89c4\u6a21\u5927\u5c0f\uff0c\u90fd\u80fd\u4ea7\u751f\u79ef\u6781\u5f71\u54cd\uff01
    \n\ud83d\udcc4\u00a0    \u4e0b\u8f7d<\/a> \u8be5 \u65e9\u671f\u513f\u7ae5\u53d1\u5c55\uff08ECD\uff09\u7b79\u6b3e\u5ba3\u4f20\u5355\uff1a\u5165\u95e8\u6307\u5357\u3002.<\/strong>
    \n\u6211\u4eec\u6574\u7406\u4e86\u4e00\u4e9b\u6709\u8da3\u4e14\u7b80\u5355\u7684\u521b\u610f\uff0c\u52a9\u60a8\u8f7b\u677e\u5165\u95e8\u2014\u2014\u4ece\u201c\u5ba3\u4f20\u6b65\u884c\u201d\u548c\u201c5\u516c\u91cc\u8dd1\u201d\u5230\u201c\u6591\u9a6c\u4e3b\u9898\u201d\u5ba3\u4f20\u6d3b\u52a8\uff0c\u5e94\u6709\u5c3d\u6709\uff01<\/li>\n<\/ol>\n

    \u5f53\u6211\u4eec\u6bcf\u4e2a\u4eba\u90fd\u4ed8\u8bf8\u884c\u52a8\u2014\u2014\u65e0\u8bba\u884c\u52a8\u591a\u4e48\u5fae\u5c0f\u2014\u2014\u8fd9\u4e9b\u5fae\u5c0f\u7684\u884c\u52a8\u6c47\u805a\u8d77\u6765\uff0c\u5c31\u80fd\u6210\u5c31\u4e00\u4ef6\u5927\u4e8b\u3002.<\/p>\n

    \u672c\u5468\uff0c\u8ba9\u6211\u4eec\u4e00\u8d77\u53d1\u58f0\u5427\uff01 <\/strong>\u65e0\u8bba\u60a8\u4ee5\u4f55\u79cd\u65b9\u5f0f\u652f\u6301\u201c\u65e9\u671f\u513f\u7ae5\u53d1\u5c55\u5ba3\u4f20\u5468\u201d\uff0c\u8bf7\u5728\u793e\u4ea4\u5a92\u4f53\u4e0a\u53d1\u5e03\u76f8\u5173\u5185\u5bb9\uff0c\u5e76\/\u6216\u5c06\u7167\u7247\u53d1\u9001\u7ed9\u6211\u4eec\u4ee5\u4fbf\u53d1\u5e03\uff01<\/p>\n

    \u8c28\u81f4\u8c22\u5ff1\uff0c,<\/p>\n

    ECD\u5168\u7403\u8054\u76df\u56e2\u961f<\/b>
    \n\ud83c\udf10\u00a0    www.erdheim-chester.org<\/a><\/u><\/p>","protected":false},"excerpt":{"rendered":"

    ECD Awareness Week is September 8\u201314, 2025, and we need YOU to help raise awareness and show the world what it means to be part of the ECD family. Awareness […]<\/p>\n","protected":false},"author":14,"featured_media":92790,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","cybocfi_hide_featured_image":"","footnotes":"","_links_to":"","_links_to_target":""},"categories":[250,51],"tags":[101,4559,3190,4564,374,4560,2261,102,4562,2398,4565,4561,4558,376,4563],"class_list":["post-92680","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-community-fundraisers","category-news","tag-awareness","tag-cancerresearch","tag-ecd","tag-education","tag-erdheimchesterdisease","tag-genemutations","tag-globalhealth","tag-histiocytosis","tag-hope","tag-medicalresearch","tag-nonprofit","tag-patientcommunity","tag-patientstories","tag-raredisease","tag-support"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/posts\/92680","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/users\/14"}],"replies":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/comments?post=92680"}],"version-history":[{"count":0,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/posts\/92680\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/media\/92790"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/media?parent=92680"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/categories?post=92680"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/tags?post=92680"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}