{"id":85511,"date":"2025-08-23T14:56:38","date_gmt":"2025-08-23T18:56:38","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/?p=85511"},"modified":"2026-08-13T13:01:53","modified_gmt":"2026-08-13T18:01:53","slug":"%e6%9d%a5%e8%ae%a4%e8%af%86%e4%b8%80%e4%b8%8b%e6%96%91%e9%a9%ac%e9%bd%90%e5%90%89-%e6%88%91%e4%bb%ac%e8%82%a9%e8%b4%9f%e9%87%8d%e8%a6%81%e4%bd%bf%e5%91%bd%e7%9a%84%e6%96%b0%e5%90%89","status":"publish","type":"post","link":"https:\/\/www.erdheim-chester.org\/zh\/meet-ziggy-the-zebra-our-new-mascot-with-a-big-mission\/","title":{"rendered":"\u6765\u8ba4\u8bc6\u6591\u9a6c\u9f50\u5409\uff1a\u6211\u4eec\u80a9\u8d1f\u91cd\u4efb\u7684\u65b0\u5409\u7965\u7269\uff01"},"content":{"rendered":"<div style=\"width: 1080px;\" class=\"wp-video\"><video class=\"wp-video-shortcode\" id=\"video-85511-1\" width=\"1080\" height=\"608\" poster=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/08\/Screenshot-2025-08-23-at-2.58.33-PM.png\" preload=\"metadata\" controls=\"controls\"><source type=\"video\/mp4\" src=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/08\/A_realistic_cinematic_202508181055_yfmfz-1.mp4?_=1\" \/><a href=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/08\/A_realistic_cinematic_202508181055_yfmfz-1.mp4\">https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/08\/A_realistic_cinematic_202508181055_yfmfz-1.mp4<\/a><\/video><\/div>\n<p>&nbsp;<\/p>\n<p>\u57c3\u5c14\u5fb7\u6d77\u59c6-\u5207\u65af\u7279\u75c5\u5168\u7403\u8054\u76df\uff08ECDGA\uff09\u5f88\u9ad8\u5174\u5411\u5927\u5bb6\u4ecb\u7ecd\u6211\u4eec\u56e2\u961f\u7684\u6700\u65b0\u6210\u5458\u2014\u2014<strong>\u6591\u9a6c\u9f50\u5409\uff01<\/strong><\/p>\n<p>\u9f50\u5409\u53ef\u4e0d\u662f\u4e00\u53ea\u666e\u901a\u7684\u6591\u9a6c\u3002\u5bf9\u4e8e\u57c3\u5c14\u5fb7\u6d77\u59c6-\u5207\u65af\u7279\u75c5\uff08ECD\uff09\u60a3\u8005\u800c\u8a00\uff0c\u9f50\u5409\u8c61\u5f81\u7740\u8ba4\u77e5\u3001\u5e0c\u671b\u548c\u793e\u533a\u3002\u4e3a\u4ec0\u4e48\u662f\u6591\u9a6c\uff1f\u533b\u5b66\u754c\u6709\u4e00\u53e5\u8001\u8bdd\uff1a\u201c\u542c\u5230\u8e44\u58f0\uff0c\u5148\u60f3\u5230\u9a6c\uff0c\u800c\u4e0d\u662f\u6591\u9a6c\u3002\u201d \u8fd9\u53e5\u683c\u8a00\u65e8\u5728\u9f13\u52b1\u533b\u751f\u5728\u89e3\u91ca\u60a3\u8005\u75c7\u72b6\u65f6\uff0c\u9996\u5148\u8003\u8651\u5e38\u89c1\u75c5\u75c7\u3002\u5982\u4eca\uff0c\u7f55\u89c1\u75c5\u7fa4\u4f53\u7528\u6591\u9a6c\u6765\u547c\u5401\u4eba\u4eec\u5173\u6ce8\uff1a\u7f55\u89c1\u75c5\u786e\u5b9e\u5b58\u5728\uff0c\u4e0d\u5e94\u88ab\u5ffd\u89c6\u3002 \u6211\u4eec\u7684\u9f50\u5409\u5df2\u52a0\u5165 ECDGA \u56e2\u961f\uff0c\u4f5c\u4e3a\u4ee3\u8a00\u4eba\uff0c\u4ee5\u4e00\u79cd\u6709\u8da3\u4e14\u8d34\u8fd1\u751f\u6d3b\u7684\u65b9\u5f0f\u5e2e\u52a9\u63d0\u9ad8\u516c\u4f17\u610f\u8bc6\u3001\u9f13\u52b1\u652f\u6301\uff0c\u5e76\u4f20\u64ad ECDGA \u7684\u4f7f\u547d\u3002.<\/p>\n<p>\u57289\u67088\u65e5\u81f314\u65e5\uff08???\uff09\u7684ECD\u5ba3\u4f20\u5468\u671f\u95f4\uff0cZiggy\u5c06\u51fa\u6f14\u4e00\u7cfb\u5217\u65b0\u89c6\u9891\u3002\u8fd9\u4e9b\u89c6\u9891\u65e8\u5728\u66f4\u4fbf\u6377\u5730\u666e\u53caECD\u76f8\u5173\u77e5\u8bc6\uff0c\u5e76\u5f70\u663e\u6211\u4eec\u5168\u7403\u5927\u5bb6\u5ead\u7684\u51dd\u805a\u529b\u3002.<\/p>\n<p>\u6211\u4eec\u5e0c\u671b\u60a8\u80fd\u5173\u6ce8\u6211\u4eec\u7684\u793e\u4ea4\u5a92\u4f53\u8d26\u53f7\u548c\u7f51\u7ad9\uff0c\u89c2\u770bZiggy\u7684\u89c6\u9891\u3002\u901a\u8fc7\u5411\u60a8\u793e\u4ea4\u5708\u4e2d\u7684\u670b\u53cb\u4ecb\u7ecdZiggy\uff0c\u60a8\u53ef\u4ee5\u5e2e\u52a9\u63d0\u9ad8\u4eba\u4eec\u5bf9\u65e9\u671f\u513f\u7ae5\u53d1\u5c55\uff08ECD\uff09\u7684\u8ba4\u8bc6\uff0c\u5e76\u7ee7\u7eed\u5efa\u7acb\u8054\u7cfb\uff0c\u4ee5\u652f\u6301\u65e9\u671f\u513f\u7ae5\u53d1\u5c55\uff08ECD\uff09\u7fa4\u4f53\u3002.<\/p>\n<p><em>\u57c3\u5c14\u5fb7\u6d77\u59c6-\u5207\u65af\u7279\u75c5\u5168\u7403\u8054\u76df\uff08ECDGA\uff09\u4e0d\u63d0\u4f9b\u533b\u7597\u5efa\u8bae\u3001\u8bca\u65ad\u6216\u6cbb\u7597\u3002\u6240\u6709\u5185\u5bb9\u4ec5\u4f9b\u53c2\u8003\u3002\u5982\u6709\u533b\u7597\u95ee\u9898\uff0c\u8bf7\u54a8\u8be2\u533b\u7597\u4fdd\u5065\u4e13\u4e1a\u4eba\u5458\u3002.<\/em><\/p>","protected":false},"excerpt":{"rendered":"<p>&nbsp; The Erdheim-Chester Disease Global Alliance (ECDGA) is excited to introduce our newest team member\u2014Ziggy the Zebra! Ziggy isn\u2019t your average zebra. Ziggy represents awareness, hope, and community for those [&hellip;]<\/p>\n","protected":false},"author":14,"featured_media":174733,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","cybocfi_hide_featured_image":"yes","wds_primary_category":0,"footnotes":"","_links_to":"","_links_to_target":""},"categories":[51],"tags":[4365,2252,374,3284,4361,4367,4360,4362,376,3844,4364,4368,4366,2402,4359,4363,4358],"class_list":["post-85511","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-news","tag-awarenessmatters","tag-erdheimchester","tag-erdheimchesterdisease","tag-globalawareness","tag-hopeandcommunity","tag-joinourherd","tag-nonprofitlife","tag-patientvoices","tag-raredisease","tag-rarediseaseawareness","tag-spreadhope","tag-storytellingforchange","tag-tealpower","tag-teamecdga","tag-teamziggy","tag-unitedforecd","tag-ziggythezebra"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/posts\/85511","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/users\/14"}],"replies":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/comments?post=85511"}],"version-history":[{"count":2,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/posts\/85511\/revisions"}],"predecessor-version":[{"id":174734,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/posts\/85511\/revisions\/174734"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/media\/174733"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/media?parent=85511"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/categories?post=85511"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/tags?post=85511"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}