\u8bf7\u5927\u5bb6\u548c\u6211\u4e00\u8d77\u6b22\u8fce\u9edb\u5b89\u00b7\u65bd\u83b1\u7eb3\u51fa\u4efbECD\u5168\u7403\u8054\u76df\u65b0\u4efb\u4e3b\u5e2d\u3002.<\/p>\n
\u81ea2018\u5e74\u4ee5\u6765\uff0c\u9edb\u5b89\u4e00\u76f4\u662fECDGA\u8463\u4e8b\u4f1a\u4e0d\u53ef\u6216\u7f3a\u7684\u4e00\u5458\uff0c\u5e76\u81ea2021\u5e74\u8d77\u62c5\u4efb\u526f\u4e3b\u5e2d\u3002\u5728\u6b64\u671f\u95f4\uff0c\u5979\u5c55\u73b0\u51fa\u4e86\u975e\u51e1\u7684\u540c\u7406\u5fc3\u3001\u6d1e\u5bdf\u529b\u548c\u575a\u97e7\u54c1\u8d28\u3002\u4f5c\u4e3a\u4e00\u4f4d\u5728\u5927\u578b\u4f01\u4e1a\u548c\u5c0f\u578b\u4f01\u4e1a\u5747\u62e5\u6709\u4e30\u5bcc\u7ecf\u9a8c\u7684\u8d44\u6df1\u4f1a\u8ba1\u5e08\uff0c\u9edb\u5b89\u4e3a\u8fd9\u4e00\u9886\u5bfc\u804c\u4f4d\u5e26\u6765\u4e86\u5353\u8d8a\u7684\u6218\u7565\u548c\u7ec4\u7ec7\u80fd\u529b\u3002 \u4f46\u9664\u4e86\u4e13\u4e1a\u80fd\u529b\u4e4b\u5916\uff0c\u5979\u5bf9ECD\u7fa4\u4f53\u7684\u5949\u732e\u66f4\u6e90\u4e8e\u6df1\u5207\u7684\u4e2a\u4eba\u60c5\u611f\u2014\u2014\u5979\u7684\u4e08\u592b\u6b63\u9971\u53d7\u57c3\u5c14\u5fb7\u6d77\u59c6-\u5207\u65af\u7279\u75c5\uff08ECD\uff09\u7684\u6298\u78e8\u3002\u9edb\u5b89\u8d70\u8fc7\u4e86\u4e00\u6761\u5145\u6ee1\u4e0d\u786e\u5b9a\u6027\u3001\u5021\u5bfc\u4e0e\u5e0c\u671b\u7684\u9053\u8def\uff0c\u8fd9\u6b63\u662f\u6211\u4eec\u8bb8\u591a\u4eba\u518d\u719f\u6089\u4e0d\u8fc7\u7684\u7ecf\u5386\u3002\u5979\u5728ECDGA\u7684\u9886\u5bfc\u5de5\u4f5c\u65e2\u5145\u6ee1\u4e2a\u4eba\u60c5\u611f\uff0c\u53c8\u6781\u5177\u5f71\u54cd\u529b\u3002.<\/p>\n
\u5979\u81ea\u5df1\u7684\u8bdd\uff1a<\/strong><\/p>\n \u6211\u5f88\u8363\u5e78\u63a5\u53d7\u57c3\u5c14\u5fb7\u6d77\u59c6-\u5207\u65af\u7279\u75c5\u5168\u7403\u8054\u76df\uff08ECDGA\uff09\u4e3b\u5e2d\u4e00\u804c\uff0c\u5e76\u6000\u7740\u5f3a\u70c8\u7684\u8d23\u4efb\u611f\u3001\u5e0c\u671b\u4ee5\u53ca\u4e2a\u4eba\u4fe1\u5ff5\u627f\u62c5\u8fd9\u4e00\u804c\u8d23\u3002.<\/p>\n \u8fd9\u4e0d\u4ec5\u4ec5\u662f\u4e00\u4e2a\u9886\u5bfc\u5c97\u4f4d\u2014\u2014\u66f4\u662f\u4e00\u9879\u53d1\u81ea\u5185\u5fc3\u7684\u4f7f\u547d\u3002\u6211\u7684\u4e08\u592b\u662f\u4e00\u540dECD\u60a3\u8005\uff0c\u5728\u6211\u4eec\u5171\u540c\u8d70\u8fc7\u7684\u8fd9\u6bb5\u5386\u7a0b\u4e2d\uff0c\u6211\u4eb2\u773c\u76ee\u7779\u4e86\u8fd9\u79cd\u7f55\u89c1\u75be\u75c5\u60a3\u8005\u6240\u9762\u4e34\u7684\u6311\u6218\u3001\u4e0d\u786e\u5b9a\u6027\u4ee5\u53ca\u652f\u6491\u4ed6\u4eec\u751f\u6d3b\u7684\u575a\u97e7\u529b\u91cf\u3002\u6211\u4e5f\u89c1\u8bc1\u4e86\u793e\u533a\u529b\u91cf\u3001\u5021\u5bfc\u884c\u52a8\u548c\u79d1\u5b66\u7814\u7a76\u7684\u5de8\u5927\u529b\u91cf\uff0c\u5b83\u4eec\u6b63\u5f15\u9886\u6211\u4eec\u8d70\u5411\u66f4\u5149\u660e\u7684\u672a\u6765\u3002.<\/p>\n ECDGA \u4e00\u76f4\u662f\u8be5\u652f\u6301\u4f53\u7cfb\u4e2d\u4e0d\u53ef\u6216\u7f3a\u7684\u4e00\u90e8\u5206\uff0c\u5982\u4eca\u80fd\u4ee5\u66f4\u6df1\u5165\u7684\u65b9\u5f0f\u4e3a\u6b64\u8d21\u732e\u529b\u91cf\uff0c\u6211\u6df1\u611f\u8363\u5e78\u3002.<\/p>\n \u6b63\u662f\u60a3\u8005\u3001\u62a4\u7406\u4eba\u5458\u548c\u7814\u7a76\u4eba\u5458\u90a3\u575a\u5b9a\u4e0d\u79fb\u7684\u97e7\u6027\uff0c\u6fc0\u52b1\u7740\u6211\u62c5\u4efb\u8fd9\u4e00\u804c\u52a1\u3002\u53ea\u8981\u6211\u4eec\u9f50\u5fc3\u534f\u529b\uff0c\u5c31\u80fd\u7ee7\u7eed\u5171\u540c\u5efa\u8bbe\u4e00\u4e2a\u8ba9\u4efb\u4f55\u4eba\u90fd\u4e0d\u4f1a\u72ec\u81ea\u9762\u5bf9\u57c3\u5c14\u5fb7\u6d77\u59c6-\u5207\u65af\u7279\u75c5\u7684\u672a\u6765\u3002.<\/p>\n \u611f\u8c22\u5927\u5bb6\u5c06\u8fd9\u9879\u91cd\u4efb\u6258\u4ed8\u7ed9\u6211\u3002\u6211\u671f\u5f85\u4e0e\u5404\u4f4d\u5e76\u80a9\u540c\u884c\uff0c\u4ee5\u52c7\u6c14\u3001\u540c\u7406\u5fc3\u548c\u575a\u5b9a\u4fe1\u5ff5\u5171\u540c\u524d\u884c\u3002.<\/p><\/blockquote>\n \u6000\u7740\u7531\u8877\u7684\u611f\u52a8\u4e0e\u6fc0\u52a8\uff0c\u6211\u2014\u2014\u51ef\u897f\u2014\u2014\u5728\u6b64\u5378\u4efb\u4e3b\u5e2d\u4e00\u804c\u3002\u81eaECDGA\u6210\u7acb\u4ee5\u6765\uff0c\u6211\u6df1\u611f\u8363\u5e78\u80fd\u4e3a\u8fd9\u4e2a\u793e\u533a\u670d\u52a1\u2014\u2014\u5728\u8270\u96be\u65f6\u523b\u3001\u63a2\u7d22\u5386\u7a0b\u4ee5\u53ca\u53d6\u5f97\u975e\u51e1\u8fdb\u6b65\u7684\u65f6\u523b\uff0c\u90fd\u4e0e\u5927\u5bb6\u5e76\u80a9\u540c\u884c\u3002.<\/p>\n \u8fd9\u4e00\u51b3\u5b9a\u662f\u5728\u6df1\u601d\u719f\u8651\u4e4b\u540e\u505a\u51fa\u7684\uff0c\u540c\u65f6\u6211\u6000\u7740\u65e0\u6bd4\u7684\u611f\u6fc0\u4e4b\u60c5\u2014\u2014\u611f\u6fc0\u80fd\u6709\u5e78\u89c1\u8bc1\u6211\u4eec\u5171\u540c\u53d6\u5f97\u7684\u8fd9\u4e00\u5207\u6210\u5c31\u3002\u4ece2008\u5e74\u6700\u521d\u90a3\u6bb5 humble \u7684\u8d77\u6b65\u9636\u6bb5\u2014\u2014\u5f53\u65f6\u6211\u4eec\u4e2d\u7684\u4e00\u5c0f\u90e8\u5206\u4eba\u5728\u7ebf\u4e0a\u805a\u5728\u4e00\u8d77\u5bfb\u6c42\u7b54\u6848\u2014\u2014\u5230\u5982\u4eca\u8fd9\u4e2a\u652f\u6301\u774076\u4e2a\u56fd\u5bb6\u3001\u8d85\u8fc71,000\u4e2a\u5bb6\u5ead\u7684\u5168\u7403\u793e\u533a\u2014\u2014\u6211\u4eec\u5171\u540c\u521b\u9020\u4e86\u975e\u51e1\u7684\u6210\u5c31\u3002.<\/p>\n \u8fd9\u5e76\u975e\u544a\u522b\u3002 \u6211\u5c06\u7ee7\u7eed\u5168\u529b\u4ee5\u8d74\u5730\u6295\u8eab\u4e8eECDGA\u7684\u4f7f\u547d\uff0c\u5e76\u5c06\u59cb\u7ec8\u4e0e\u8fd9\u4e2a\u6211\u6df1\u7231\u7684\u793e\u533a\u5e76\u80a9\u540c\u884c\u3002\u6211\u5411\u5373\u5c06\u63a5\u4efb\u8fd9\u4e00\u804c\u52a1\u7684\u9edb\u5b89\u8868\u793a\u5168\u529b\u652f\u6301\u3002\u5979\u7684\u540c\u7406\u5fc3\u3001\u8fdc\u89c1\u548c\u9886\u5bfc\u529b\u5c06\u6210\u4e3a\u6211\u4eec\u524d\u8fdb\u9053\u8def\u4e0a\u7684\u6307\u8def\u660e\u706f\uff0c\u6211\u5bf9\u6211\u4eec\u5728\u5979\u7684\u9886\u5bfc\u4e0b\u5c06\u53d6\u5f97\u7684\u6210\u5c31\u5145\u6ee1\u671f\u5f85\u3002.<\/p>\n \u611f\u8c22\u5927\u5bb6\u7ed9\u4e88\u6211\u62c5\u4efb\u4e3b\u5e2d\u7684\u6b8a\u8363\u3002\u6211\u6c38\u8fdc\u4e3a\u8fd9\u4e2a\u793e\u533a\u901a\u8fc7\u9f50\u5fc3\u534f\u529b\u6240\u53d6\u5f97\u7684\u6210\u5c31\u611f\u5230\u81ea\u8c6a\u3002.<\/p>\n \u8c28\u6b64\u81f4\u4ee5\u6df1\u5207\u7684\u611f\u6fc0\u4e0e\u7231\u610f\uff0c,<\/p>\n \u51ef\u897f\u00b7\u5e03\u9c81\u5c14<\/p>","protected":false},"excerpt":{"rendered":" Please join me in welcoming Diane Schriner as the new ECD Global Alliance President. Diane has been an integral part of the ECDGA Board of Directors since 2018 and has […]<\/p>\n","protected":false},"author":14,"featured_media":83882,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","cybocfi_hide_featured_image":"","wds_primary_category":0,"footnotes":"","_links_to":"","_links_to_target":""},"categories":[51],"tags":[4157,378,387,4160,2252,374,4159,2495,3620,3292,379,3844],"class_list":["post-83845","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-news","tag-communitypower","tag-ecdcommunity","tag-ecdga","tag-endrare","tag-erdheimchester","tag-erdheimchesterdisease","tag-globalimpact","tag-histiocytosisawareness","tag-hopeinmotion","tag-patientadvocacy","tag-rarebutstrong","tag-rarediseaseawareness"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/posts\/83845","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/users\/14"}],"replies":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/comments?post=83845"}],"version-history":[{"count":0,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/posts\/83845\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/media\/83882"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/media?parent=83845"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/categories?post=83845"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/tags?post=83845"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}