{"id":83709,"date":"2025-07-24T14:31:38","date_gmt":"2025-07-24T18:31:38","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/?p=83709"},"modified":"2025-07-24T14:35:08","modified_gmt":"2025-07-24T18:35:08","slug":"ecdga%e6%ac%a2%e8%bf%8e%e8%8b%b1%e5%9b%bd%e4%bc%a6%e6%95%a6%e6%9c%80%e6%96%b0%e5%bc%80%e8%ae%be%e7%9a%84%e6%8a%a4%e7%90%86%e4%b8%ad%e5%bf%83","status":"publish","type":"post","link":"https:\/\/www.erdheim-chester.org\/zh\/ecdga-welcomes-newest-care-center-in-london-uk\/","title":{"rendered":"ECDGA \u6b22\u8fce\u82f1\u56fd\u4f26\u6566\u6700\u65b0\u5f00\u8bbe\u7684\u62a4\u7406\u4e2d\u5fc3"},"content":{"rendered":"<p>\u57c3\u5c14\u5fb7\u6d77\u59c6-\u5207\u65af\u7279\u75c5\u5168\u7403\u8054\u76df\uff08ECDGA\uff09\u81ea\u8c6a\u5730\u5ba3\u5e03\u65b0\u589e\u4e00\u540d <strong>\u4f26\u6566\u5927\u5b66\u5b66\u9662\u533b\u9662\uff08UCLH\uff09\u7684ECD\u62a4\u7406\u4e2d\u5fc3<\/strong>, \uff0c\u4f4d\u4e8e <strong>\u82f1\u56fd\u4f26\u6566\uff08NW1 2PG\uff09<\/strong>.<\/p>\n<p>\u8fd9\u662f\u5168\u7403\u7b2c42\u5bb6ECD\u62a4\u7406\u4e2d\u5fc3\uff0c\u4e5f\u662f\u82f1\u683c\u5170\u7b2c\u4e09\u5bb6\u83b7\u5f97\u8ba4\u8bc1\u7684\u62a4\u7406\u4e2d\u5fc3\uff0c\u8fd9\u4f53\u73b0\u4e86\u5404\u65b9\u4e3a\u6539\u5584\u5168\u7403\u8303\u56f4\u5185\u57c3\u5c14\u5fb7\u6d77\u59c6-\u5207\u65af\u7279\u75c5\uff08ECD\uff09\u4e13\u4e1a\u62a4\u7406\u7684\u53ef\u53ca\u6027\u6240\u505a\u7684\u6301\u7eed\u52aa\u529b\u3002.<\/p>\n<p>&nbsp;<\/p>\n<p><strong>\u5173\u4e8e\u65b0\u62a4\u7406\u4e2d\u5fc3<\/strong><\/p>\n<ul>\n<li><strong>\u673a\u6784\uff1a<\/strong> \u4f26\u6566\u5927\u5b66\u5b66\u9662\u533b\u9662\uff08UCLH\uff09<\/li>\n<li><strong>\u5730\u70b9\uff1a<\/strong> \u4f26\u6566\uff0cNW1 2PG<\/li>\n<li><strong>\u4e3b\u6cbb\u533b\u5e08\uff1a<\/strong> \u8428\u8482\u6069\u00b7\u6208\u5e0c\u5c14\uff08Satyen Gohil\uff09\u533b\u5b66\u535a\u58eb\uff0c\u8840\u6db2\u79d1<\/li>\n<li><strong>\u540d\u79f0\uff1a<\/strong> \u5168\u9762\u8f6c\u8bca\u62a4\u7406\u4e2d\u5fc3<\/li>\n<\/ul>\n<p>\u6208\u5e0c\u5c14\u535a\u58eb\u53ca\u5176\u56e2\u961f\u5728\u65e9\u53d1\u6027\u6162\u6027\u80be\u75c5\uff08ECD\uff09\u7684\u8bca\u65ad\u548c\u6cbb\u7597\u65b9\u9762\u62e5\u6709\u5b9d\u8d35\u7684\u7ecf\u9a8c\u3002\u8be5\u4e2d\u5fc3\u59cb\u7ec8\u81f4\u529b\u4e8e\u4e3aECD\u60a3\u8005\u7fa4\u4f53\u63d0\u4f9b\u652f\u6301\uff0c\u73b0\u5df2\u6b63\u5f0f\u5f00\u653e\uff0c\u4e3a\u82f1\u56fd\u53ca\u6d77\u5916\u5bfb\u6c42\u4e13\u5bb6\u4f1a\u8bca\u548c\u6cbb\u7597\u7684\u60a3\u8005\u63d0\u4f9b\u670d\u52a1\u3002.<\/p>\n<blockquote><p>&#8220;When dealing with a condition as rare as ECD, being able to find specialist doctors and nurses who know and care about the condition is essential. Being part of the ECD global alliance is a great resource for patients and shows that they are not alone; they can connect with others, and it is a source of strength when they finally have their diagnosis.&#8221;<br \/>\n<strong>\u8428\u8482\u6069\u00b7\u6208\u5e0c\u5c14\uff08Satyen Gohil\uff09\u533b\u5b66\u535a\u58eb\uff0c\u8840\u6db2\u79d1<\/strong><\/p><\/blockquote>\n<p>\u6b64\u6b21\u65b0\u589e\u4e3e\u63aa\u4f53\u73b0\u4e86ECDGA\u7684\u4f7f\u547d\uff0c\u5373\u6269\u5927\u533b\u7597\u670d\u52a1\u7684\u53ef\u53ca\u6027\uff0c\u5e76\u786e\u4fdd\u60a3\u8005\u80fd\u5728\u6240\u5728\u5730\u533a\u83b7\u5f97\u4e13\u4e1a\u77e5\u8bc6\u4e30\u5bcc\u7684\u533b\u7597\u670d\u52a1\u63d0\u4f9b\u8005\u3002\u4e00\u5982\u65e2\u5f80\uff0c\u6bcf\u4f4d\u60a3\u8005\u7684\u9700\u6c42\u5404\u4e0d\u76f8\u540c\uff0c\u6211\u4eec\u9f13\u52b1\u6240\u6709\u786e\u8bca\u60a3\u8005\u5c31\u8f6c\u8bca\u6216\u54a8\u8be2\u4efb\u4f55\u62a4\u7406\u4e2d\u5fc3\u7684\u4e8b\u5b9c\uff0c\u4e0e\u81ea\u5df1\u7684\u533b\u7597\u670d\u52a1\u63d0\u4f9b\u8005\u8fdb\u884c\u5546\u8ba8\u3002.<\/p>\n<p><strong>Explore ECD Care Centers Near You<\/strong><\/p>\n<p>To learn more about recognized Care Centers and how to access expert care, visit the ECDGA Care Center Directory.<\/p>\n<p><em>\u57c3\u5c14\u5fb7\u6d77\u59c6-\u5207\u65af\u7279\u75c5\u5168\u7403\u8054\u76df\uff08ECDGA\uff09\u4e0d\u63d0\u4f9b\u533b\u7597\u5efa\u8bae\u3001\u8bca\u65ad\u6216\u6cbb\u7597\u3002\u6240\u6709\u5185\u5bb9\u4ec5\u4f9b\u53c2\u8003\u3002\u5982\u6709\u533b\u7597\u95ee\u9898\uff0c\u8bf7\u54a8\u8be2\u533b\u7597\u4fdd\u5065\u4e13\u4e1a\u4eba\u5458\u3002.<\/em><\/p>","protected":false},"excerpt":{"rendered":"<p>The Erdheim-Chester Disease Global Alliance (ECDGA) is proud to announce the addition of a new ECD Care Center at University College London Hospitals (UCLH), located in London, England (NW1 2PG). 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