{"id":79461,"date":"2025-06-12T09:41:27","date_gmt":"2025-06-12T13:41:27","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/?p=79461"},"modified":"2025-06-19T09:48:30","modified_gmt":"2025-06-19T13:48:30","slug":"%e7%a4%be%e5%8c%ba%e7%9a%84%e5%8a%9b%e9%87%8f%ef%bc%9aecdga%e8%b6%a3%e5%91%b3%e8%b7%91%e5%a6%82%e4%bd%95%e6%8f%90%e5%8d%87%e5%85%a8%e7%90%83%e8%ae%a4%e7%9f%a5%e5%ba%a6","status":"publish","type":"post","link":"https:\/\/www.erdheim-chester.org\/zh\/the-power-of-community-how-the-ecdga-fun-run-builds-global-awareness\/","title":{"rendered":"\u793e\u533a\u7684\u529b\u91cf\uff1aECDGA\u8da3\u5473\u8dd1\u5982\u4f55\u63d0\u5347\u5168\u7403\u5173\u6ce8\u5ea6"},"content":{"rendered":"<p>\u6bcf\u5e74\uff0c\u57c3\u5c14\u5fb7\u6d77\u59c6-\u5207\u65af\u7279\u75c5\u5168\u7403\u8054\u76df\uff08ECDGA\uff09\u90fd\u4f1a\u9080\u8bf7\u5168\u4e16\u754c\u7684\u4eba\u4eec\u9f50\u5fc3\u534f\u529b\uff0c\u4e3a\u4e00\u4e2a\u91cd\u8981\u76ee\u6807\u800c\u52aa\u529b\uff1a\u63d0\u9ad8\u4eba\u4eec\u5bf9\u57c3\u5c14\u5fb7\u6d77\u59c6-\u5207\u65af\u7279\u75c5\uff08ECD\uff09\u7684\u8ba4\u8bc6\u2014\u2014\u8fd9\u662f\u4e00\u79cd\u7f55\u89c1\u4e14\u5e38\u88ab\u8bef\u89e3\u7684\u8840\u6db2\u764c\u75c7\u3002\u8be5 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class=\"register-here\"><a href=\"https:\/\/secure.qgiv.com\/event\/2025virtualfunrunwalkorroll\/register\/form\/registration\" target=\"_blank\" rel=\"noopener\"><strong>\u7acb\u5373\u6ce8\u518c<\/strong><\/a><\/span><\/p>\n<p><span class=\"register-here\"><a href=\"https:\/\/www.erdheim-chester.org\/zh\/%e6%b4%bb%e5%8a%a8\/%e5%87%86%e5%a4%87%e5%a5%bd%e5%8f%82%e5%8a%a0%e4%b8%ba%e5%b8%8c%e6%9c%9b%e8%80%8c%e8%b7%91%e3%80%81%e8%b5%b0%e3%80%81%e6%bb%9a%e6%b4%bb%e5%8a%a8%e5%90%a7%ef%bc%812025%e5%b9%b4\/\" target=\"_blank\" rel=\"noopener\"><strong>\u9605\u8bfb\u66f4\u591a<\/strong><\/a><\/span><\/p>\n<p><em>\u57c3\u5c14\u5fb7\u6d77\u59c6-\u5207\u65af\u7279\u75c5\u5168\u7403\u8054\u76df\uff08ECDGA\uff09\u4e0d\u63d0\u4f9b\u533b\u7597\u5efa\u8bae\u3001\u8bca\u65ad\u6216\u6cbb\u7597\u3002\u6240\u6709\u5185\u5bb9\u4ec5\u4f9b\u53c2\u8003\u3002\u5982\u6709\u533b\u7597\u95ee\u9898\uff0c\u8bf7\u54a8\u8be2\u533b\u7597\u4fdd\u5065\u4e13\u4e1a\u4eba\u5458\u3002.<\/em><\/p>","protected":false},"excerpt":{"rendered":"<p>Each year, the Erdheim-Chester Disease Global Alliance (ECDGA) invites the world to come together for one powerful reason: to raise awareness for Erdheim-Chester Disease (ECD), a rare and often misunderstood [&hellip;]<\/p>\n","protected":false},"author":14,"featured_media":79557,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","cybocfi_hide_featured_image":"","wds_primary_category":0,"footnotes":"","_links_to":"","_links_to_target":""},"categories":[3452,51],"tags":[3477,3472,2400,374,3479,3284,3478,3292,3473,3469,3476,3475,3480,3474,3471,3470,3290,3293,3283,3285],"class_list":["post-79461","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-featured","category-news","tag-bloodcancerawareness","tag-ecdglobalalliance","tag-ecdresearch","tag-erdheimchesterdisease","tag-fundraiserforecd","tag-globalawareness","tag-joinusforhope","tag-patientadvocacy","tag-rarebloodcancer","tag-rarecancerawareness","tag-rarecommunity","tag-rollforhope","tag-runforresearch","tag-runningforacause","tag-runwalkrollforhope","tag-supportecd","tag-supportrare","tag-teamhope","tag-virtualfunrun","tag-walkforhope"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/posts\/79461","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/users\/14"}],"replies":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/comments?post=79461"}],"version-history":[{"count":0,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/posts\/79461\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/media\/79557"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/media?parent=79461"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/categories?post=79461"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/tags?post=79461"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}