{"id":5044,"date":"2020-01-30T19:43:21","date_gmt":"2020-01-30T19:43:21","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/?p=5044"},"modified":"2020-09-22T07:19:09","modified_gmt":"2020-09-22T07:19:09","slug":"%e7%96%bc%e7%97%9b-%e7%96%b2%e5%8a%b3","status":"publish","type":"post","link":"https:\/\/www.erdheim-chester.org\/zh\/pain-fatigue\/","title":{"rendered":"\u75bc\u75db\u4e0e\u75b2\u52b3"},"content":{"rendered":"<p><strong>\u5bf9\u8bb8\u591a\u60a3\u8005\u800c\u8a00\uff0c\u75bc\u75db\u548c\u75b2\u52b3\u65f6\u523b\u63d0\u9192\u7740\u4ed6\u4eec\u60a3\u6709\u57c3\u5c14\u5fb7\u6d77\u59c6-\u5207\u65af\u7279\u75c5\u3002.<\/strong> Pain and fatigue can occur in ECD patients regardless of the presence or absence of BRAF mutations. These symptoms may be seen in newly diagnosed patients as well as those that are considered to be in remission* from the disease.<\/p>\n<p>\u5f97\u76ca\u4e8e\u77e5\u8bc6\u6e0a\u535a\u7684\u533b\u7597\u4e13\u4e1a\u4eba\u5458\u7684\u8f9b\u52e4\u4ed8\u51fa\uff0c\u60a3\u8005\u53ef\u4ee5\u901a\u8fc7\u4e00\u4e9b\u65b9\u6cd5\u6765\u7f13\u89e3\u75bc\u75db\u548c\u75b2\u52b3\u3002.<\/p>\n<p>\u6211\u4eecECD\u62a4\u7406\u4e2d\u5fc3\u7f51\u7edc\u7684\u6700\u65b0\u6210\u5458\u2014\u2014\u9ad8\u62c9\u592b\u00b7\u6208\u4e9a\u5c14\u533b\u751f\uff0c\u4e3a\u5927\u5bb6\u8bb2\u89e3\u4e86\u4e00\u4e9b\u6709\u5e2e\u52a9\u7684\u5efa\u8bae\uff1a<\/p>\n<p>\u201cCancer related fatigue is a major challenge that we don&#8217;t have easy answers to. Exercise is indeed the single most important intervention that can help them. However, the best way to derive benefit is through structured programs targeting at least 150 minutes of exercise a week. Most of the popular gyms and medical facilities offer such programs specific to cancer patients. It can be difficult at times to do strenuous exercise if there are interfering symptoms. In that case, may discuss with your physician regarding alternative options (yoga, water exercises, etc.)\u201d<\/p>\n<p>\u6208\u4e9a\u5c14\u533b\u751f\u8fd8\u63d0\u5230\u4e86\u60a3\u8005\u53ef\u4ee5\u4e0e\u533b\u751f\u5546\u8ba8\u7684\u5176\u4ed6\u4e00\u4e9b\u9009\u62e9\uff1a<\/p>\n<ul>\n<li>\u540c\u65f6\u4f7f\u7528\u5176\u4ed6\u53ef\u80fd\u5f15\u8d77\u6216\u52a0\u91cd\u75b2\u52b3\u7684\u5fc3\u7406\u6d3b\u6027\u836f\u7269\u2014\u2014\u5982\u963f\u7247\u7c7b\u836f\u7269\u3001\u5b89\u7720\u836f\u7b49\u3002.<\/li>\n<li>Lack of good sleep- may discuss treatments for sleep and anxiety<\/li>\n<li>\u836f\u7269\u6cbb\u7597\u65b9\u6848\u2014\u2014\u53ef\u8003\u8651\u4f7f\u7528\u83ab\u8fbe\u975e\u5c3c\u548c\u54cc\u918b\u7532\u916f\u7b49\u5174\u594b\u5242<\/li>\n<li>\u8ba4\u77e5\u884c\u4e3a\u7597\u6cd5\u4e0e\u5fc3\u7406\u6cbb\u7597<\/li>\n<li>\u8eab\u5fc3\u5e72\u9884\u63aa\u65bd\u2014\u2014\u6b63\u5ff5\u51a5\u60f3\u3001\u745c\u4f3d\u7b49\u3002\u5927\u591a\u6570\u57ce\u5e02\u90fd\u6709\u8bb8\u591a\u5730\u65b9\u63d0\u4f9b\u8fd9\u4e9b\u65b9\u6cd5\u7684\u514d\u8d39\u670d\u52a1\u3002.<\/li>\n<\/ul>\n<p>*\u76ee\u524d\u5c1a\u65e0\u6cbb\u6108\u65e9\u671f\u513f\u7ae5\u53d1\u80b2\u969c\u788d\uff08ECD\uff09\u7684\u65b9\u6cd5\u3002\u5f53\u75be\u75c5\u5904\u4e8e\u4f11\u7720\u6216\u4e0d\u6d3b\u8dc3\u72b6\u6001\u65f6\uff0c\u79f0\u4e3a\u201c\u7f13\u89e3\u201d\u3002.<\/p>\n<p>\u4ee5\u4e0b\u94fe\u63a5\u63d0\u4f9b\u4e86\u6709\u5173\u6b64\u4e3b\u9898\u7684\u66f4\u591a\u4fe1\u606f\uff1a<\/p>\n<p><a href=\"https:\/\/www.mayoclinic.org\/diseases-conditions\/cancer\/in-depth\/cancer-fatigue\/art-20047709\" target=\"_blank\" rel=\"noopener noreferrer\">https:\/\/www.mayoclinic.org\/diseases-conditions\/cancer\/in-depth\/cancer-fatigue\/art-20047709<\/a><\/p>\n<p><a href=\"https:\/\/www.cancer.org\/treatment\/treatments-and-side-effects\/physical-side-effects\/fatigue\/what-is-cancer-related-fatigue.html\" target=\"_blank\" rel=\"noopener noreferrer\">https:\/\/www.cancer.org\/treatment\/treatments-and-side-effects\/physical-side-effects\/fatigue\/what-is-cancer-related-fatigue.html<\/a><\/p>\n<p><a href=\"https:\/\/youtu.be\/_A2KIbcb4tk\" target=\"_blank\" rel=\"noopener noreferrer\">https:\/\/youtu.be\/_A2KIbcb4tk<\/a> \uff1a\u7f57\u4f0a\u00b7\u9a6c\u4f50\u5c14\u535a\u58eb\u8c08\u8bbaECD\u60a3\u8005\u7684\u65e5\u5e38\u62a4\u7406\u3002.<\/p>\n<p><a href=\"https:\/\/youtu.be\/QcEVBl9bTpY\" target=\"_blank\" rel=\"noopener noreferrer\">https:\/\/youtu.be\/QcEVBl9bTpY<\/a>&nbsp;: \u60a3\u8005\u53ca\u5bb6\u5c5e\u53ef\u57282019\u5e74\u60a3\u8005\u53ca\u5bb6\u5c5e\u805a\u4f1a\u4e0a\u5411\u4e13\u5bb6\u54a8\u8be2\u3002.<\/p>\n<p>Other amazing and informative videos can be found on our YouTube channel. <a href=\"https:\/\/www.youtube.com\/channel\/UCYR3skRhqAFWC5PTOGv34JQ\/featured\" target=\"_blank\" rel=\"noopener noreferrer\">https:\/\/www.youtube.com\/channel\/UCYR3skRhqAFWC5PTOGv34JQ\/featured<\/a><\/p>\n<p>&nbsp;<\/p>\n<p>\u4f5c\u4e3a\u60a3\u8005\u6216\u62a4\u7406\u4eba\u5458\uff0c\u60a8\u53d1\u73b0\u4ec0\u4e48\u65b9\u6cd5\u5bf9\u60a8\u6709\u5e2e\u52a9\uff1f\u8bf7\u8bbf\u95ee\u6211\u4eec\u7684 <a href=\"https:\/\/www.facebook.com\/groups\/784637751599933\/\" target=\"_blank\" rel=\"noopener noreferrer\">ECD Facebook \u7fa4\u7ec4<\/a> \u4e0e\u5176\u4ed6ECD\u60a3\u8005\u548c\u7167\u62a4\u8005\u8fdb\u4e00\u6b65\u8ba8\u8bba\u6b64\u4e8b\uff01<\/p>\n<p>\u60a8\u4e5f\u53ef\u4ee5\u5c06\u7b54\u590d\u901a\u8fc7\u7535\u5b50\u90ae\u4ef6\u53d1\u9001\u81f3 <span class=\"reverse\">chesnee.green@erdheim-chester.org<\/span>.<\/p>","protected":false},"excerpt":{"rendered":"<p>For many patients, pain and fatigue are a constant reminder of having Erdheim-Chester Disease. Pain and fatigue can occur in ECD patients regardless of the presence or absence of BRAF [&hellip;]<\/p>\n","protected":false},"author":14,"featured_media":5046,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","cybocfi_hide_featured_image":"","wds_primary_category":0,"footnotes":"","_links_to":"","_links_to_target":""},"categories":[67],"tags":[55,54,59,53,58,56,69,57,68,52],"class_list":["post-5044","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-community-support","tag-advocacy","tag-blood-disorder","tag-bone-pain","tag-cancer","tag-diabetes-insipidus","tag-erdheim-chester","tag-fatigue","tag-hairy-kidney","tag-pain","tag-rare-disease"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/posts\/5044","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/users\/14"}],"replies":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/comments?post=5044"}],"version-history":[{"count":0,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/posts\/5044\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/media\/5046"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/media?parent=5044"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/categories?post=5044"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/tags?post=5044"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}