{"id":46350,"date":"2025-03-21T10:15:49","date_gmt":"2025-03-21T14:15:49","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/?p=46350"},"modified":"2025-08-23T17:13:36","modified_gmt":"2025-08-23T21:13:36","slug":"ecd%e4%bc%9a%e8%ae%ae%e6%97%a9%e9%b8%9f%e6%b3%a8%e5%86%8c%e5%92%8c%e6%8f%90%e5%90%8d%e5%8d%b3%e5%b0%86%e6%88%aa%e6%ad%a2%ef%bc%8c%e8%af%b7%e5%8b%bf%e9%94%99%e8%bf%87","status":"publish","type":"post","link":"https:\/\/www.erdheim-chester.org\/zh\/ecd-meeting-early-bird-registration-and-nominations-close-soon-dont-wait\/","title":{"rendered":"ECD\u4f1a\u8bae\u2014\u2014\u65e9\u9e1f\u6ce8\u518c\u548c\u63d0\u540d\u5373\u5c06\u622a\u6b62\uff01\u8bf7\u52ff\u9519\u8fc7\u3002."},"content":{"rendered":"

\u6b22\u8fce\u53c2\u52a0\uff01ECD\u60a3\u8005\u53ca\u5bb6\u5c5e\u805a\u4f1a\uff08PFG\uff09\u65e8\u5728\u51dd\u805a\u60a3\u8005\u4e0e\u5bb6\u5c5e\u7684\u529b\u91cf\uff0c\u540c\u65f6\u589e\u8fdb\u5927\u5bb6\u5bf9\u57c3\u5c14\u5fb7\u6d77\u59c6-\u5207\u65af\u7279\u75c5\u7684\u4e86\u89e3\u548c\u8ba4\u8bc6\u3002.<\/p>\n

PFG \u4e3a\u4e0e\u4f1a\u8005\u63d0\u4f9b\u4e86\u4e00\u4e2a\u4ea4\u6d41\u5e73\u53f0\uff0c\u5e76\u4e3a\u4ed6\u4eec\u521b\u9020\u4e86\u5411\u4e00\u652f\u7531\u5177\u6709 ECD \u60a3\u8005\u62a4\u7406\u7ecf\u9a8c\u4e14\u6b63\u5728\u8be5\u9886\u57df\u5f00\u5c55\u7814\u7a76\u7684\u56fd\u9645\u533b\u7597\u4e13\u4e1a\u4eba\u5458\u56e2\u961f\u63d0\u51fa\u95ee\u9898\u548c\u8868\u8fbe\u5173\u5207\u7684\u673a\u4f1a\u3002\u901a\u8fc7\u5206\u4eab\u7684\u4fe1\u606f\uff0c\u60a3\u8005\u80fd\u591f\u5feb\u901f\u4e86\u89e3\u6709\u5173 ECD \u7684\u66f4\u591a\u4fe1\u606f\u53ca\u53ef\u80fd\u7684\u6cbb\u7597\u65b9\u6848\uff0c\u5e76\u83b7\u6089\u6700\u65b0\u7684\u7814\u7a76\u6210\u679c\u3002.<\/p>\n

\u7acb\u5373\u6ce8\u518c\uff0c\u4eab\u53d7\u65e9\u9e1f\u4f18\u60e0\u4ef7\uff1a\u00a0https:\/\/secure.qgiv.com\/for\/bpfg\/event\/barcelonapatientfamilygathering\/<\/a><\/p>\n

ECD\u60a3\u8005\u53ca\u5bb6\u5c5e\u8054\u8c0a\u4f1a<\/strong>
\n\u4f1a\u8bae\u65e5\u671f\uff1a<\/strong>\u00a02025\u5e745\u670826\u65e5
\n\u4f1a\u8bae\u5730\u70b9\uff1a<\/strong>\u00a0\u897f\u73ed\u7259\u5df4\u585e\u7f57\u90a3<\/p>\n

\u8bf7\u7acb\u5373\u6ce8\u518c\uff0c\u4ee5\u4fbf\u6211\u4eec\u505a\u597d\u89c4\u5212\uff0c\u63d0\u4f9b\u6700\u5145\u5206\u7684\u540c\u58f0\u4f20\u8bd1\u652f\u6301\u3002\u82f1\u6587\u6f14\u8bb2\u5c06\u7531\u4eba\u5de5\u8bd1\u5458\u8fdb\u884c\u5b9e\u65f6\u7ffb\u8bd1\uff0c\u4ee5\u4fbf\u8bb2\u897f\u73ed\u7259\u8bed\u3001\u6cd5\u8bed\u3001\u5fb7\u8bed\u548c\u610f\u5927\u5229\u8bed\u7684\u4e0e\u4f1a\u8005\u80fd\u591f\u53c2\u4e0e\u5176\u4e2d\u3002\u5982\u679c\u622a\u81f33\u67081\u65e5\uff0c\u5c1a\u672a\u6709\u8bb2\u4e0a\u8ff0\u4efb\u4e00\u8bed\u8a00\u7684\u4e0e\u4f1a\u8005\u6ce8\u518c\uff0c\u6211\u4eec\u5c06\u65e0\u6cd5\u63d0\u4f9b\u8be5\u8bed\u8a00\u7684\u7ffb\u8bd1\u670d\u52a1\u3002.<\/p>\n

\u5982\u679c\u60a8\u80fd\u57282\u670828\u65e5\u4e4b\u524d\u5b8c\u6210\u6ce8\u518c\uff0c\u5c06\u6709\u52a9\u4e8e\u6211\u4eec\u4e3a\u9700\u6c42\u6700\u5927\u7684\u8bed\u8a00\u5b89\u6392\u53e3\u8bd1\u670d\u52a1\u3002.<\/p>\n

\u4e86\u89e3\u66f4\u591a\uff1a<\/strong>\u00a0https:\/\/www.erdheim-chester.org\/ecd-patient-family-gathering\/<\/a><\/p>\n

\u975e\u82f1\u8bed\u4f7f\u7528\u8005\u987b\u77e5\uff1a<\/strong>\u00a0https:\/\/www.erdheim-chester.org\/translation-instructions-to-register-for-the-ecd-conference-in-barcelona-on-26-may-2025\/<\/a><\/p>\n

\u63d0\u540d\u60a8\u7684ECD\u51a0\u519b\uff1a<\/strong>\u00a0https:\/\/ecdga.questionpro.com\/2025-ECDGA-Award-Nomination<\/a><\/p>\n

\u5982\u6709\u7591\u95ee\uff0c\u8bf7\u8054\u7cfb\u6211\u4eec\uff1a\u00a0support@erdheim-chester.org<\/a><\/p>","protected":false},"excerpt":{"rendered":"

Please join us! The ECD Patient and Family Gathering (PFG) unites patients and family members while increasing knowledge and understanding of Erdheim-Chester disease. The PFG provides attendees with a place […]<\/p>\n","protected":false},"author":20,"featured_media":46351,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","cybocfi_hide_featured_image":"yes","footnotes":"","_links_to":"","_links_to_target":""},"categories":[51],"tags":[],"class_list":["post-46350","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-news"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/posts\/46350","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/users\/20"}],"replies":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/comments?post=46350"}],"version-history":[{"count":0,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/posts\/46350\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/media\/46351"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/media?parent=46350"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/categories?post=46350"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/tags?post=46350"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}