{"id":46262,"date":"2025-03-21T09:53:02","date_gmt":"2025-03-21T13:53:02","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/?p=46262"},"modified":"2026-08-13T10:57:03","modified_gmt":"2026-08-13T15:57:03","slug":"%e7%ab%8b%e5%8d%b3%e6%8a%a5%e5%90%8d%e5%8f%82%e5%8a%a02025%e5%b9%b4ecd%e6%82%a3%e8%80%85%e5%8f%8a%e5%ae%b6%e5%b1%9e%e8%81%9a%e4%bc%9a%ef%bc%8c%e6%97%a9%e9%b8%9f%e4%bc%98%e6%83%a0%e4%bb%b7%e7%8e%b0","status":"publish","type":"post","link":"https:\/\/www.erdheim-chester.org\/zh\/register-now-for-the-2025-ecd-patient-family-gathering-early-bird-pricing-available\/","title":{"rendered":"\u7acb\u5373\u62a5\u540d\u53c2\u52a02025\u5e74ECD\u60a3\u8005\u53ca\u5bb6\u5c5e\u805a\u4f1a\u2014\u2014\u65e9\u9e1f\u4f18\u60e0\u4ef7\u73b0\u5df2\u63a8\u51fa\uff01"},"content":{"rendered":"<p><a href=\"https:\/\/web.archive.org\/web\/20251113142533\/https:\/\/secure.qgiv.com\/for\/bpfg\/event\/barcelonapatientfamilygathering\/\"><img loading=\"lazy\" decoding=\"async\" class=\"wp-image-174706 size-medium alignleft\" src=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/03\/Picture1-1-256x300.png\" alt=\"\" width=\"256\" height=\"300\" \/><\/a>\u8be5\u6d3b\u52a8\u7684\u62a5\u540d\u73b0\u5df2\u6b63\u5f0f\u5f00\u59cb\uff0c\u00a0<b>2025\u5e74ECD\u60a3\u8005\u53ca\u5bb6\u5c5e\u8054\u8c0a\u4f1a<\/b>, \uff0c\u8fd9\u662f\u4e00\u4e2a\u7edd\u4f73\u7684\u673a\u4f1a\uff0c\u9002\u5408\u00a0<b>\u57c3\u5c14\u5fb7\u6d77\u59c6-\u5207\u65af\u7279\u75c5\uff08ECD\uff09\u60a3\u8005\u3001\u62a4\u7406\u4eba\u5458\u53ca\u5bb6\u5c5e<\/b>. \u4eca\u5e745\u670826\u65e5\u5728\u5df4\u585e\u7f57\u90a3\u4e3e\u884c\u7684\u805a\u4f1a\uff0c\u4e3a\u8046\u542c\u6765\u81ea\u00a0<b>\u9886\u5148\u7684\u65e9\u671f\u513f\u7ae5\u53d1\u5c55\u7814\u7a76\u4eba\u5458\u548c\u533b\u7597\u4fdd\u5065\u4e13\u4e1a\u4eba\u5458<\/b>\u00a0\u4ed6\u4eec\u5904\u4e8e\u2026\u2026\u7684\u6700\u524d\u6cbf\u00a0<b>\u65e9\u671f\u513f\u7ae5\u53d1\u5c55\uff08ECD\uff09\u7684\u6cbb\u7597\u4e0e\u7814\u7a76<\/b>.<\/p>\n<h3><strong>\u60a8\u4e3a\u4f55\u5e94\u8be5\u53c2\u52a0\uff1a<\/strong><\/h3>\n<ul>\n<li><strong>\u72ec\u5bb6\u63a5\u89e6ECD\u4e13\u5bb6<\/strong>\u00a0\u2013 \u5411\u81f4\u529b\u4e8e\u6539\u5584ECD\u6cbb\u7597\u65b9\u6848\u548c\u60a3\u8005\u62a4\u7406\u7684\u9876\u5c16\u533b\u751f\u3001\u7814\u7a76\u4eba\u5458\u548c\u4e13\u5bb6\u5b66\u4e60\u3002.<\/li>\n<li><strong>\u4e0e\u533b\u7597\u4e13\u4e1a\u4eba\u58eb\u7684\u95ee\u7b54\u73af\u8282<\/strong>\u00a0\u2013 \u7531\u8be5\u9886\u57df\u7684\u4e13\u5bb6\u4e3a\u60a8\u89e3\u7b54\u6700\u8feb\u5207\u7684\u95ee\u9898\u00a0<strong>\u57c3\u5c14\u5fb7\u6d77\u59c6-\u5207\u65af\u7279\u75c5\u7684\u62a4\u7406<\/strong>.<\/li>\n<li><strong>\u52a0\u5165ECD\u793e\u533a<\/strong>\u00a0\u2013 \u4e0e\u5176\u4ed6\u6210\u5458\u4e92\u52a8\u00a0<strong>ECD\u60a3\u8005\u3001\u62a4\u7406\u4eba\u5458\u53ca\u5bb6\u5c5e<\/strong>\u00a0\u90a3\u4e9b\u771f\u6b63\u7406\u89e3\u4e0e\u8fd9\u79cd\u7f55\u89c1\u75c5\u5171\u5904\u5386\u7a0b\u7684\u4eba\u3002.<\/li>\n<li><strong>\u63a8\u8fdb\u652f\u6301\u6027\u62a4\u7406<\/strong>\u00a0\u2013 \u60a8\u7684\u63d0\u524d\u6ce8\u518c\u6709\u52a9\u4e8e\u6211\u4eec\u671d\u7740\u63d0\u4f9b\u2026\u2026\u7684\u76ee\u6807\u8fc8\u8fdb\u00a0<strong>\u9996\u9009\u8bed\u8a00\u7684\u53e3\u8bd1\u670d\u52a1<\/strong>, \uff0c\u4f7f\u672c\u6b21\u6d3b\u52a8\u66f4\u6613\u4e8e\u53c2\u4e0e\u3002.<\/li>\n<li><strong>\u60a3\u8005\u6743\u76ca\u5021\u5bfc\u4e0e\u7814\u7a76\u52a8\u6001<\/strong>\u00a0\u2013 \u968f\u65f6\u4e86\u89e3\u8be5\u9886\u57df\u7684\u6700\u65b0\u8fdb\u5c55\u00a0<strong>ECD treatments, research, and advocacy efforts<\/strong>.<\/li>\n<\/ul>\n<h3><strong>\u7acb\u5373\u6ce8\u518c\uff0c\u4eab\u53d7\u4f18\u60e0\uff01<\/strong><\/h3>\n<p>\u5145\u5206\u5229\u7528\u00a0<strong>\u65e9\u9e1f\u4ef7<\/strong>\u00a0\u5e76\u62a2\u5360\u6b64\u6b21\u6781\u5177\u5f71\u54cd\u529b\u7684\u6d3b\u52a8\u7684\u5e2d\u4f4d\u3002\u5343\u4e07\u4e0d\u8981\u9519\u8fc7\u8fd9\u6b21\u83b7\u5f97\u00a0<strong>knowledge, support, and resources<\/strong>\u00a0\u8fd9\u5c06\u5bf9\u60a8\u7684\u65e9\u671f\u513f\u7ae5\u53d1\u5c55\u4e4b\u65c5\u4ea7\u751f\u79ef\u6781\u5f71\u54cd\u3002.<\/p>\n<p><img decoding=\"async\" class=\"emoji\" role=\"img\" draggable=\"false\" src=\"https:\/\/s.w.org\/images\/core\/emoji\/15.0.3\/svg\/1f517.svg\" alt=\"\ud83d\udd17\" \/>\u00a0<strong>\u7acb\u5373\u6ce8\u518c<\/strong>:\u00a0<a href=\"https:\/\/secure.qgiv.com\/for\/bpfg\/event\/barcelonapatientfamilygathering\/\" target=\"_blank\" rel=\"noopener\" aria-label=\"ECD\u60a3\u8005\u53ca\u5bb6\u5c5e\u805a\u4f1a\u62a5\u540d\u2014\u2014\u5728\u65b0\u6807\u7b7e\u9875\u4e2d\u6253\u5f00\">ECD\u60a3\u8005\u53ca\u5bb6\u5c5e\u805a\u4f1a\u62a5\u540d<\/a><\/p>\n<p>Join us in\u00a0<strong>\u52a0\u5f3a\u65e9\u671f\u513f\u7ae5\u53d1\u5c55\uff08ECD\uff09\u793e\u533a\u5efa\u8bbe<\/strong>\u00a0\u5e76\u81f4\u529b\u4e8e\u4e3a\u6240\u6709\u53d7\u6b64\u5f71\u54cd\u7684\u4eba\u63d0\u4f9b\u66f4\u597d\u7684\u62a4\u7406\u3001\u63d0\u9ad8\u516c\u4f17\u610f\u8bc6\u5e76\u7ed9\u4e88\u652f\u6301\uff0c\u00a0<strong>\u57c3\u5c14\u5fb7\u6d77\u59c6-\u5207\u65af\u7279\u75c5<\/strong>.<\/p>","protected":false},"excerpt":{"rendered":"<p>Registration is officially open for the\u00a0ECD Patient &amp; Family Gathering 2025, a fantastic opportunity for\u00a0Erdheim-Chester Disease (ECD) patients, caregivers, and families. This year\u2019s gathering, in Barcelona on May 26, provides [&hellip;]<\/p>\n","protected":false},"author":20,"featured_media":174706,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","cybocfi_hide_featured_image":"yes","wds_primary_category":0,"footnotes":"","_links_to":"","_links_to_target":""},"categories":[51],"tags":[],"class_list":["post-46262","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-news"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/posts\/46262","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/users\/20"}],"replies":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/comments?post=46262"}],"version-history":[{"count":3,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/posts\/46262\/revisions"}],"predecessor-version":[{"id":174709,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/posts\/46262\/revisions\/174709"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/media\/174706"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/media?parent=46262"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/categories?post=46262"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/tags?post=46262"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}