{"id":24267,"date":"2024-11-25T08:44:16","date_gmt":"2024-11-25T14:44:16","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/?p=24267"},"modified":"2026-08-13T11:24:11","modified_gmt":"2026-08-13T16:24:11","slug":"ecd%e5%85%a8%e7%90%83%e8%81%94%e7%9b%9f%e7%9a%84%e5%ae%97%e6%97%a8%e6%98%af%e5%b8%ae%e5%8a%a9%e5%85%a8%e7%90%83%e6%89%80%e6%9c%89ecd%e6%82%a3%e8%80%85","status":"publish","type":"post","link":"https:\/\/www.erdheim-chester.org\/zh\/the-ecd-global-alliance-exists-to-help-all-ecd-patients-worldwide\/","title":{"rendered":"ECD\u5168\u7403\u8054\u76df\u7684\u5b97\u65e8\u662f\u5e2e\u52a9\u5168\u7403\u6240\u6709ECD\u60a3\u8005"},"content":{"rendered":"<div style=\"width: 1080px;\" class=\"wp-video\"><video class=\"wp-video-shortcode\" id=\"video-24267-1\" width=\"1080\" height=\"1920\" preload=\"metadata\" controls=\"controls\"><source type=\"video\/mp4\" src=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2024\/11\/the-ecd-global-alliance-exists-to-help-all-ecd-patients-worldwide.mp4?_=1\" \/><a href=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2024\/11\/the-ecd-global-alliance-exists-to-help-all-ecd-patients-worldwide.mp4\">https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2024\/11\/the-ecd-global-alliance-exists-to-help-all-ecd-patients-worldwide.mp4<\/a><\/video><\/div>\n<p>\u5728\u6700\u8fd1\u53d1\u5e03\u7684\u4e00\u6bb5\u77ed\u89c6\u9891\u4e2d\uff0c\u9a6c\u514b\u00b7\u5b89\u5fb7\u68ee\u53d1\u8868\u4e86\u4e00\u6bb5\u9f13\u821e\u4eba\u5fc3\u7684\u8bb2\u8bdd\uff0c\u547c\u5401\u89c2\u4f17\u652f\u6301\u57c3\u5c14\u5fb7\u6d77\u59c6-\u5207\u65af\u7279\u75c5\u5168\u7403\u8054\u76df\uff08ECDGA\uff09\u3002\u4ed6\u7684\u8bb2\u8bdd\u5f3a\u8c03\u4e86ECDGA\u4f7f\u547d\u7684\u91cd\u8981\u6027\uff0c\u5373\u5e2e\u52a9\u60a3\u8005\u3001\u63a8\u8fdb\u5173\u952e\u7814\u7a76\uff0c\u5e76\u63d0\u9ad8\u516c\u4f17\u5bf9\u57c3\u5c14\u5fb7\u6d77\u59c6-\u5207\u65af\u7279\u75c5\u2014\u2014\u4e00\u79cd\u7f55\u89c1\u4e14\u4e25\u91cd\u7684\u75be\u75c5\u2014\u2014\u7684\u8ba4\u8bc6\u3002.<\/p>\n<p>\u4eca\u5e74\uff0c\u60a8\u7684\u6177\u6168\u6350\u8d60\u5c06\u53d1\u6325\u53cc\u500d\u4f5c\u7528\u3002\u5f97\u76ca\u4e8e\u533f\u540d\u6350\u8d60\u8005\u7684\u914d\u5bf9\u6350\u8d60\uff0c2024\u5e74\u671f\u95f4\u901a\u8fc7\u672c\u6e20\u9053\u8fdb\u884c\u7684\u6bcf\u4e00\u7b14\u6350\u6b3e\u90fd\u5c06\u83b7\u5f97\u7b49\u989d\u5339\u914d\u3002\u65e0\u8bba\u60a8\u6350\u8d60\u591a\u5c11\uff0c\u60a8\u7684\u652f\u6301\u90fd\u5c06\u5bf9\u5e2e\u52a9ECDGA\u7ee7\u7eed\u5f00\u5c55\u5de5\u4f5c\u4ea7\u751f\u66f4\u5927\u7684\u5f71\u54cd\u3002\u8bf7\u8bbf\u95ee <a href=\"https:\/\/secure.qgiv.com\/for\/erdheim-chesterdiseaseglobalalliance\" target=\"_blank\" rel=\"noopener\"><strong>fundecd.org<\/strong> <\/a> \u8bf7\u6350\u6b3e\u3001\u89c2\u770b\u89c6\u9891\u5e76\u5206\u4eab\u8fd9\u6761\u4fe1\u606f\u3002\u8ba9\u6211\u4eec\u643a\u624b\u52aa\u529b\uff0c\u4e3a\u53d7\u57c3\u5c14\u5fb7\u6d77\u59c6-\u5207\u65af\u7279\u75c5\u5f71\u54cd\u7684\u4eba\u4eec\u5e26\u6765\u5207\u5b9e\u7684\u6539\u53d8\u3002.<\/p>","protected":false},"excerpt":{"rendered":"<p>In a recent short video, Mark Anderson shared an inspiring message encouraging viewers to support the Erdheim Chester Disease Global Alliance (ECDGA). His message underscores the importance of the ECDGA&#8217;s [&hellip;]<\/p>\n","protected":false},"author":14,"featured_media":174698,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","cybocfi_hide_featured_image":"","wds_primary_category":0,"footnotes":"","_links_to":"","_links_to_target":""},"categories":[51],"tags":[],"class_list":["post-24267","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-news"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/posts\/24267","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/users\/14"}],"replies":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/comments?post=24267"}],"version-history":[{"count":2,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/posts\/24267\/revisions"}],"predecessor-version":[{"id":174713,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/posts\/24267\/revisions\/174713"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/media\/174698"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/media?parent=24267"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/categories?post=24267"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/tags?post=24267"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}