{"id":20309,"date":"2022-09-21T11:03:13","date_gmt":"2022-09-21T16:03:13","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/ecd-staging\/?p=20309"},"modified":"2025-08-23T17:14:04","modified_gmt":"2025-08-23T21:14:04","slug":"%e4%bf%84%e4%ba%a5%e4%bf%84%e5%b7%9e%e5%9c%b0%e5%8c%ba%e6%97%a9%e4%ba%a7%e5%84%bf%e6%82%a3%e8%80%85%e5%8f%8a%e5%ae%b6%e5%b1%9e%e8%81%9a%e4%bc%9a","status":"publish","type":"post","link":"https:\/\/www.erdheim-chester.org\/zh\/ecd-ohio-regional-patient-family-gathering\/","title":{"rendered":"ECD\u4fc4\u4ea5\u4fc4\u5dde\u5730\u533a\u60a3\u8005\u53ca\u5bb6\u5c5e\u805a\u4f1a"},"content":{"rendered":"<h2>\u6b22\u8fce\u4e8e2022\u5e7410\u67087\u65e5\u5728\u7ebf\u53c2\u52a0\u6211\u4eec\u7684\u6d3b\u52a8\uff01<\/h2>\n<p><a class=\"cont-btn\" href=\"https:\/\/us02web.zoom.us\/meeting\/register\/tZUud-GgpjMtGNL7nXQWTVhqdSzqwN4M0KIZ\" target=\"_blank\" rel=\"noopener noreferrer\">\u6ce8\u518c\u5728\u7ebf\u7b7e\u5230<\/a><\/p>\n<p>&nbsp;<\/p>\n<p>\u65f6\u95f4\u4ee5\u7f8e\u56fd\u4e1c\u90e8\u65f6\u95f4\u663e\u793a\u3002.<\/p>\n<p>&nbsp;<\/p>\n<p><strong>\u4e0a\u534810:00 \u2013 \u7f57\u4f2f\u7279\u00b7\u5bcc\u5170\u514b\u6797\u535a\u58eb<\/strong><\/p>\n<p><em>\u6b22\u8fce\u6765\u5230\u8f9b\u8f9b\u90a3\u63d0\u5927\u5b66\uff01<\/em><br \/>\n\u5c4a\u65f6\u5c06\u4ecb\u7ecdUC\u8bca\u6240\u7684\u76f8\u5173\u4fe1\u606f\uff0c\u5305\u62ec\u5176\u5de5\u4f5c\u4eba\u5458\u3001\u5408\u4f5c\u7684\u4e13\u5bb6\uff0c\u4ee5\u53ca\u8be5\u4e2d\u5fc3\u6709\u4f55\u72ec\u7279\u4e4b\u5904\u3002.<\/p>\n<p>&nbsp;<\/p>\n<p><strong>\u4e0a\u534810:15 \u2013 \u5c3c\u5c1a\u7279\u00b7\u53e4\u666e\u5854\u535a\u58eb\u00a0<\/strong><\/p>\n<p><em>\u5982\u4f55\u5c06ECD\u8bca\u6240\u7f51\u7edc\u6700\u4f73\u5730\u878d\u5165\u60a8\u7684\u533b\u7597\u670d\u52a1\u4e2d<\/em><br \/>\n\u7531\u4e8e\u8be5\u75be\u75c5\u7684\u590d\u6742\u6027\uff0cECD\u60a3\u8005\u901a\u5e38\u9700\u8981\u4f1a\u8bca\u591a\u4f4d\u4e13\u79d1\u533b\u751f\uff0c\u4ee5\u8fdb\u884c\u6cbb\u7597\u7ba1\u7406\u548c\u75c5\u60c5\u76d1\u6d4b\u3002\u5c3c\u5c1a\u7279\u00b7\u53e4\u666e\u5854\u533b\u751f\u5c06\u5e2e\u52a9\u6211\u4eec\u7b80\u5316\u8fd9\u4e00\u6d41\u7a0b\uff0c\u534f\u52a9\u60a3\u8005\u786e\u4fdd\u5404\u533b\u7597\u56e2\u961f\u4e4b\u95f4\u4ee5\u53ca\u4e0e\u60a3\u8005\u672c\u4eba\u7684\u6cbb\u7597\u65b9\u6848\u4fdd\u6301\u534f\u8c03\u4e00\u81f4\u3002.<\/p>\n<p>&nbsp;<\/p>\n<p><strong>\u4e0a\u534810:45 \u2013  \u9ad8\u62c9\u592b\u00b7\u6208\u4e9a\u5c14\u535a\u58eb<\/strong><\/p>\n<p><em>\u57c3\u5c14\u5fb7\u6d77\u59c6-\u5207\u65af\u7279\u75c5\uff1a\u6211\u4eec\u662f\u5426\u5df2\u7ecf\u5b8c\u5168\u5f04\u6e05\u695a\u4e86\uff1f<br \/>\n<\/em>\u5c06\u4ecb\u7ecdECD\u7684\u6982\u51b5\uff0c\u5305\u62ec\u5176\u53d1\u5c55\u5386\u7a0b\u53ca\u73b0\u72b6\u3002\u5176\u4ed6\u8bae\u9898\u8fd8\u5305\u62ec\u8be5\u75be\u75c5\u7684\u4e34\u5e8a\u8868\u73b0\u3001\u5f53\u524d\u91c7\u7528\u7684\u6cbb\u7597\u65b9\u6cd5\u4ee5\u53ca\u76d1\u6d4b\u63aa\u65bd\u3002.<\/p>\n<p>&nbsp;<\/p>\n<p><strong>\u4e0a\u534811:15 \u2013 \u7f57\u4f2f\u7279\u00b7\u5bcc\u5170\u514b\u6797\u535a\u58eb<\/strong><\/p>\n<p><em>MEK\u9776\u5411\u6cbb\u7597\u7684\u7ba1\u7406<br \/>\n<\/em>\u4e86\u89e3\u7528\u4e8e\u6cbb\u7597ECD\u7684MEK\u6291\u5236\u5242\u3002\u5185\u5bb9\u5c06\u5305\u62ec\u6700\u5e38\u89c1\u7684\u526f\u4f5c\u7528\u53ca\u5176\u5e94\u5bf9\u65b9\u6cd5\u3001\u76d1\u6d4b\u4e0e\u5242\u91cf\u5efa\u8bae\uff0c\u4ee5\u53ca\u76f8\u5173\u7684\u7ecf\u6d4e\u8d1f\u62c5\u3002.<\/p>\n<p>&nbsp;<\/p>\n<p><strong>\u4e0a\u534811:45 \u2013 \u963f\u5e0c\u4ec0\u00b7\u5e93\u9a6c\u5c14\u535a\u58eb<\/strong><\/p>\n<p><em>\u6291\u5236\u5242\u662f\u5982\u4f55\u8d77\u4f5c\u7528\u7684\uff1f\uff01<br \/>\n<\/em>\u5e93\u9a6c\u5c14\u535a\u58eb\u5c06\u8be6\u7ec6\u89e3\u6790\u57c3\u5c14\u5fb7\u6d77\u59c6-\u5207\u65af\u7279\u75c5\u4e2d\u4f7f\u7528\u7684\u6291\u5236\u5242\uff0c\u8bf4\u660e\u5b83\u4eec\u5982\u4f55\u5ef6\u7f13\u75be\u75c5\u8fdb\u5c55\uff0c\u4ee5\u53ca\u533b\u751f\u5982\u4f55\u4e3a\u6bcf\u4f4d\u60a3\u8005\u5f00\u5177\u6700\u5408\u9002\u7684\u836f\u7269\u3002.<\/p>\n<p>&nbsp;<\/p>\n<p><strong>\u4e0b\u534812:15 \u2013 \u95ed\u5e55\u5f0f\u53ca\u603b\u7ed3\u8bc4\u4f30\u00a0<\/strong><\/p>\n<p><em>\u611f\u8c22\u60a8\u7684\u53c2\u4e0e\uff01\u8bf7\u5728\u8bfe\u7a0b\u7ed3\u675f\u65f6\u586b\u5199\u95ee\u5377\uff0c\u4ee5\u5e2e\u52a9\u6211\u4eec\u6539\u8fdb\uff01\u00a0<\/em><\/p>","protected":false},"excerpt":{"rendered":"<p>Join us virtually on October 7, 2022! Register for Online Attendance &nbsp; Times are shown in Eastern U.S. Time. &nbsp; 10:00 am &#8211; Dr. Robert Franklin Welcome to the University [&hellip;]<\/p>\n","protected":false},"author":14,"featured_media":20315,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","cybocfi_hide_featured_image":"","wds_primary_category":0,"footnotes":"","_links_to":"","_links_to_target":""},"categories":[67,51],"tags":[55,54,59,53,58,133,134,56,181,57,122,52,130],"class_list":["post-20309","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-community-support","category-news","tag-advocacy","tag-blood-disorder","tag-bone-pain","tag-cancer","tag-diabetes-insipidus","tag-disease-education","tag-ecd-awareness","tag-erdheim-chester","tag-gathering","tag-hairy-kidney","tag-histio","tag-rare-disease","tag-research"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/posts\/20309","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/users\/14"}],"replies":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/comments?post=20309"}],"version-history":[{"count":0,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/posts\/20309\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/media\/20315"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/media?parent=20309"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/categories?post=20309"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/tags?post=20309"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}