{"id":20137,"date":"2022-04-22T13:50:01","date_gmt":"2022-04-22T18:50:01","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/ecd-staging\/?p=20137"},"modified":"2026-08-19T06:06:56","modified_gmt":"2026-08-19T11:06:56","slug":"%e5%bf%97%e6%84%bf%e8%80%85%e6%94%af%e6%8c%81%e7%9a%84%e9%87%8d%e8%a6%81%e6%80%a7","status":"publish","type":"post","link":"https:\/\/www.erdheim-chester.org\/zh\/the-importance-of-volunteer-support\/","title":{"rendered":"\u5fd7\u613f\u8005\u652f\u6301\u7684\u91cd\u8981\u6027"},"content":{"rendered":"<p>&nbsp;<\/p>\n<p><a href=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2022\/04\/volunteer-post-1-300x150-1.jpg\"><img loading=\"lazy\" decoding=\"async\" class=\"alignnone wp-image-175257\" src=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2022\/04\/volunteer-post-1-300x150-1.jpg\" alt=\"\" width=\"450\" height=\"225\" srcset=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2022\/04\/volunteer-post-1-300x150-1.jpg 300w, https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2022\/04\/volunteer-post-1-300x150-1-18x9.jpg 18w\" sizes=\"(max-width: 450px) 100vw, 450px\" \/><\/a><\/p>\n<p>&nbsp;<\/p>\n<p>ECD\u5168\u7403\u8054\u76df\uff08ECDGA\uff09\u662f\u4e00\u5bb6\u81f4\u529b\u4e8e\u5e2e\u52a9\u53d7\u4e00\u79cd\u540d\u4e3a\u57c3\u5c14\u5fb7\u6d77\u59c6-\u5207\u65af\u7279\u75c5\uff08ECD\uff09\u7684\u8d85\u7f55\u89c1\u8840\u6db2\u764c\u75c7\u5f71\u54cd\u7684\u60a3\u8005\u7684\u975e\u8425\u5229\u7ec4\u7ec7\uff0c\u8be5\u7ec4\u7ec7\u5728\u201c\u5168\u56fd\u5fd7\u613f\u8005\u5468\u201d\u671f\u95f4\u8868\u5f70\u4e86\u8868\u73b0\u7a81\u51fa\u7684\u5fd7\u613f\u8005\u3002. <strong>ECDGA\u7684\u5fd7\u613f\u8005\u662f\u8be5\u7ec4\u7ec7\u7684\u751f\u547d\u529b<\/strong>, \uff0c\u4e0d\u4ec5\u4e3a\u8be5\u673a\u6784\u89c4\u6a21\u4e0d\u5927\u7684\u5458\u5de5\u56e2\u961f\u63d0\u4f9b\u4e86\u652f\u6301\uff0c\u8fd8\u4e3a\u4f17\u591a\u9879\u76ee\u53ca\u8f85\u52a9\u5de5\u4f5c\u8d21\u732e\u4e86\u8d85\u8fc72,000\u5c0f\u65f6\u7684\u670d\u52a1\u65f6\u95f4\u3002.<\/p>\n<p>\u201c\u5168\u56fd\u5fd7\u613f\u8005\u5468\u201d\u4e3a\u6574\u4e2a\u793e\u533a\u63d0\u4f9b\u4e86\u4e00\u4e2a\u673a\u4f1a\uff0c\u5411\u90a3\u4e9b\u4e3a\u53d7\u65e9\u4ea7\u513f\u75be\u75c5\uff08ECD\uff09\u5f71\u54cd\u7684\u60a3\u8005\u53ca\u5176\u5bb6\u5c5e\u63d0\u4f9b\u670d\u52a1\u7684\u5fd7\u613f\u8005\u8868\u8fbe\u611f\u8c22\u3002\u5b83\u8ba9\u793e\u533a\u6210\u5458\u6709\u673a\u4f1a\u4e86\u89e3\u90a3\u4e9b\u5728\u5e55\u540e\u9ed8\u9ed8\u5de5\u4f5c\u7684\u4eba\uff0c\u6b63\u662f\u4ed6\u4eec\u5e2e\u52a9\u60a3\u8005\u53ca\u5176\u5bb6\u5c5e\u83b7\u5f97\u4e86\u5e94\u5f97\u7684\u652f\u6301\u548c\u4fe1\u606f\u3002. <strong>\u00a0\u5e0c\u671bECDGA\u7684\u6210\u5458\u4eec\u80fd\u4ece\u8fd9\u4e00\u4e8b\u5b9e\u4e2d\u83b7\u5f97\u9f13\u821e\u548c\u6fc0\u52b1\u2014\u2014\u6709\u4e00\u652f\u4f18\u79c0\u7684\u5fd7\u613f\u8005\u56e2\u961f\u6bcf\u5929\u90fd\u5728\u4e3a\u4ed6\u4eec\u594b\u6597\u3002.<\/strong><\/p>\n<p>\u81ea2008\u5e74\u6210\u7acb\u4ee5\u6765\uff0cECDGA\u4e00\u76f4\u4f9d\u9760\u5fd7\u613f\u8005\u6765\u5c06\u884c\u653f\u5f00\u652f\u964d\u81f3\u6700\u4f4e\uff0c\u4ece\u800c\u6700\u5927\u9650\u5ea6\u5730\u63d0\u9ad8\u6350\u6b3e\u7684\u4f7f\u7528\u6548\u7387\u3002ECD\u60a3\u8005\u3001\u62a4\u7406\u4eba\u5458\u3001\u4ed6\u4eec\u7684\u5bb6\u4eba\u548c\u670b\u53cb\u4ee5\u53ca\u533b\u7597\u4e13\u4e1a\u4eba\u5458\u5171\u540c\u7ec4\u6210\u4e86\u8be5\u8054\u76df\u8fd9\u652f\u6177\u6168\u7684\u5fd7\u613f\u8005\u961f\u4f0d\u3002\u6709\u4e9b\u5fd7\u613f\u8005\u53c2\u4e0e\u5355\u4e2a\u9879\u76ee\u6216\u6bcf\u5e74\u534f\u52a9\u4e00\u6b21\uff0c\u800c\u53e6\u4e00\u4e9b\u5219\u63d0\u4f9b\u66f4\u6301\u7eed\u7684\u5e2e\u52a9\u3002 \u5fd7\u613f\u8005\u7684\u5de5\u4f5c\u5185\u5bb9\u6db5\u76d6\u63d0\u9ad8\u516c\u4f17\u8ba4\u77e5\u3001\u8d22\u52a1\u8ffd\u8e2a\u4e0e\u5f52\u6863\u3001\u7b79\u6b3e\u3001\u63d0\u4f9b\u4e13\u4e1a\u6280\u80fd\u670d\u52a1\u4ee5\u53ca\u652f\u6301\u5176\u4ed6\u6210\u5458\u7b49\u3002\u8fd9\u4e9b\u656c\u4e1a\u7684\u5fd7\u613f\u8005\u6240\u505a\u7684\u5de5\u4f5c\uff0c\u4e3aECDGA\u7684\u6210\u5458\u4ee5\u53ca\u5168\u7403\u5404\u5730\u7684ECD\u60a3\u8005\u63d0\u4f9b\u4e86\u6709\u529b\u652f\u6301\u3002.<\/p>\n<p>\u533b\u7597\u4e13\u4e1a\u4eba\u58eb\u4e5f\u901a\u8fc7\u63d0\u4f9b\u4e13\u4e1a\u77e5\u8bc6\u548c\u7ecf\u9a8c\u3001\u63d0\u9ad8\u516c\u4f17\u610f\u8bc6\uff0c\u4ee5\u53ca\u53c2\u4e0e\u8be5\u7ec4\u7ec7\u534f\u8c03\u548c\u5b9e\u65bd\u7684\u60a3\u8005\u62a4\u7406\u9879\u76ee\uff0c\u5bf9ECDGA\u7ed9\u4e88\u4e86\u652f\u6301\u3002. <strong>\u8be5\u975e\u8425\u5229\u7ec4\u7ec7\u80fd\u591f\u4e3a\u6765\u81ea\u4e16\u754c\u5404\u5730\u7684\u6570\u767e\u4eba\u63d0\u4f9b\u5e2e\u52a9\uff0c\u8fd9\u8981\u5f52\u529f\u4e8e\u4f17\u591a\u533b\u7597\u4e13\u4e1a\u4eba\u5458\u548c\u4f1a\u5458\u5fd7\u613f\u8005\u7684\u8d21\u732e\u3002.\u00a0 <\/strong><\/p>\n<p>\u5fd7\u613f\u670d\u52a1\u4e0d\u4ec5\u5bf9ECDGA\u6709\u76ca\uff0c\u4e5f\u5bf9\u5fd7\u613f\u8005\u4ea7\u751f\u4e86\u79ef\u6781\u5f71\u54cd\uff0c\u4f7f\u4ed6\u4eec\u83b7\u5f97\u8bf8\u591a\u76ca\u5904\uff0c\u8fd9\u4e9b\u76ca\u5904\u5bf9\u4ed6\u4eec\u7684\u5de5\u4f5c\u548c\u751f\u6d3b\u90fd\u5927\u6709\u88e8\u76ca\u3002.<\/p>\n<table>\n<tbody>\n<tr>\n<td width=\"230\">\u00b7 \u589e\u5f3a\u81ea\u4fe1<\/td>\n<td width=\"298\">\u00b7 \u5e26\u6765\u6539\u53d8<\/td>\n<\/tr>\n<tr>\n<td width=\"230\">\u00b7 \u7ed3\u8bc6\u65b0\u670b\u53cb<\/td>\n<td width=\"298\">\u00b7 \u52a0\u5165\u4e00\u4e2a\u793e\u533a<\/td>\n<\/tr>\n<tr>\n<td width=\"230\">\u00b7 \u5b66\u4e60\u65b0\u6280\u80fd<\/td>\n<td width=\"298\">\u00b7 \u8fce\u63a5\u6311\u6218<\/td>\n<\/tr>\n<tr>\n<td width=\"230\">\u00b7 \u73a9\u5f97\u5f00\u5fc3<\/td>\n<td width=\"298\">\u00b7 \u4e3a\u4f60\u7684\u4e8b\u4e1a\u91c7\u53d6\u884c\u52a8<\/td>\n<\/tr>\n<\/tbody>\n<\/table>\n<p>&nbsp;<\/p>\n<p><strong>\u6709\u5174\u8da3\u6210\u4e3a\u5fd7\u613f\u8005\u5417\uff1f<\/strong>\u00a0 \u52a0\u5165\u6211\u4eec\uff0c\u5171\u540c\u5bf9\u6297ECD\uff01<\/p>\n<p>\u6b22\u8fce\u8bbf\u95ee\u6211\u4eec\u7684 <a href=\"https:\/\/www.erdheim-chester.org\/zh\/%e5%bf%97%e6%84%bf%e8%80%85\/\">\u5fd7\u613f\u8005\u7f51\u9875<\/a> \u6216\u67e5\u770b\u6211\u4eec\u5f53\u524d\u7684 <a href=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2021\/12\/2022-Volunteer-Roles.pdf\" target=\"_blank\" rel=\"noopener\">2022\u5e74\u53ef\u7533\u8bf7\u7684\u5fd7\u613f\u8005\u5c97\u4f4d<\/a>!<\/p>\n<p>\u6350\u6b3e\u8fd8\u53ef\u4ee5\u652f\u6301\u8be5\u7ec4\u7ec7\u7684\u4f7f\u547d\u548c\u9879\u76ee\u9700\u6c42\u3002\u8bf7\u8bbf\u95ee <a href=\"http:\/\/www.fundECD.org\">www.fundECD.org<\/a> \u6216\u8005\uff0c\u60a8\u4e5f\u53ef\u4ee5\u901a\u8fc7\u90ae\u5bc4\u652f\u7968\u7684\u65b9\u5f0f\u8fdb\u884c\u6350\u6b3e\uff0c\u6536\u4ef6\u5730\u5740\u4e3a\uff1aECD Global Alliance\uff0cP.O. Box 775\uff0cDeRidder\uff0cLA\uff0c70634\u3002.<\/p>\n<p><strong>\u00a0<\/strong><\/p>\n<p><strong>\u611f\u8c22\u6bcf\u4e00\u4f4d\u4e3aECD\u5168\u7403\u8054\u76df\u5de5\u4f5c\u505a\u51fa\u8d21\u732e\u7684\u5fd7\u613f\u8005\uff0c\u6b63\u662f\u4f60\u4eec\u8ba9\u8fd9\u4e2a\u7ec4\u7ec7\u65e5\u76ca\u58ee\u5927\uff0c\u8ba9\u6211\u4eec\u7684\u793e\u533a\u65e5\u76ca\u5f3a\u5927\uff01<\/strong><\/p>\n<p>&nbsp;<\/p>","protected":false},"excerpt":{"rendered":"<p>&nbsp; &nbsp; The ECD Global Alliance (ECDGA), a non-profit dedicated to supporting people affected by an ultra-rare blood cancer known as Erdheim-Chester Disease (ECD), honors deserving volunteers during National Volunteer [&hellip;]<\/p>\n","protected":false},"author":14,"featured_media":20139,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","cybocfi_hide_featured_image":"","footnotes":"","_links_to":"","_links_to_target":""},"categories":[51],"tags":[55,83,54,59,53,58,56,57,99,52,175],"class_list":["post-20137","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-news","tag-advocacy","tag-blood-cancer","tag-blood-disorder","tag-bone-pain","tag-cancer","tag-diabetes-insipidus","tag-erdheim-chester","tag-hairy-kidney","tag-lifestyle","tag-rare-disease","tag-volunteer"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/posts\/20137","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/users\/14"}],"replies":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/comments?post=20137"}],"version-history":[{"count":1,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/posts\/20137\/revisions"}],"predecessor-version":[{"id":175258,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/posts\/20137\/revisions\/175258"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/media\/20139"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/media?parent=20137"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/categories?post=20137"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/tags?post=20137"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}