{"id":20097,"date":"2022-02-24T09:56:23","date_gmt":"2022-02-24T15:56:23","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/ecd-staging\/?p=20097"},"modified":"2025-08-23T18:10:08","modified_gmt":"2025-08-23T22:10:08","slug":"2022%e5%b9%b4%e7%bd%95%e8%a7%81%e7%97%85%e6%97%a5","status":"publish","type":"post","link":"https:\/\/www.erdheim-chester.org\/zh\/rare-disease-day-2022\/","title":{"rendered":"2022\u5e74\u7f55\u89c1\u75c5\u65e5"},"content":{"rendered":"

\"\"<\/p>\n

2022\u5e742\u670828\u65e5\u662f\u201c\u7f55\u89c1\u75c5\u65e5\u201d\uff01\u5728\u7f8e\u56fd\uff0c\u5982\u679c\u67d0\u79cd\u75be\u75c5\u5f71\u54cd\u7684\u7f8e\u56fd\u4eba\u5c11\u4e8e20\u4e07\uff0c\u5219\u88ab\u89c6\u4e3a\u7f55\u89c1\u75c5\uff1b\u5171\u67097,000\u79cd\u75be\u75c5\u5c5e\u4e8e\u8fd9\u4e00\u7c7b\u522b\uff0c\u6bcf10\u540d\u7f8e\u56fd\u4eba\u4e2d\u5c31\u67091\u4eba\u53d7\u5230\u5f71\u54cd\u3002.<\/p>\n

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\u201c\u63a5\u53d7\u81ea\u5df1\u7684\u75be\u75c5\u81f3\u5173\u91cd\u8981\uff0c\u540c\u65f6\u8981\u5927\u58f0\u800c\u660e\u786e\u5730\u5ba3\u544a\u81ea\u5df1\u80fd\u591f\u6cbb\u6108\u5b83\uff0c\u7edd\u4e0d\u653e\u5f03\u3002\u6211\u5df2\u7ecf\u6210\u4e3a\u4e86\u8fd9\u79cd\u7f55\u89c1\u75be\u75c5\u7684\u4e13\u5bb6\u2014\u2014\u8fd9\u79cd\u75be\u75c5\u9c9c\u4e3a\u4eba\u77e5\uff0c\u5c31\u8fde\u6700\u8457\u540d\u7684\u533b\u751f\u4e5f\u4e0d\u4e86\u89e3\u3002\u201d. <\/em>\u201d\u57c3\u5c14\u5fb7\u6d77\u59c6-\u5207\u65af\u7279\u7efc\u5408\u5f81\u6210\u4e86\u5982\u5f71\u968f\u5f62\u7684\u4e24\u9053\u9634\u5f71\uff0c\u6211\u5e0c\u671b\u501f\u6b64\u4e3a\u5b83\u4eec\u63ed\u5f00\u9762\u7eb1\u3002\u6211\u5e0c\u671b\u8fd9\u4efd\u4eb2\u8eab\u7ecf\u5386\u80fd\u6709\u52a9\u4e8e\u63a8\u52a8\u79d1\u5b66\u8fdb\u6b65\uff0c\u5e76\u4e3a\u57c3\u5c14\u5fb7\u6d77\u59c6-\u5207\u65af\u7279\u7efc\u5408\u5f81\u60a3\u8005\u63d0\u4f9b\u66f4\u597d\u7684\u62a4\u7406\u3002\u201d\u2014\u2014\u5e0c\u5df4<\/em><\/p>\n

 <\/p>\n

\u9605\u8bfb\u5e0c\u5df4\u7684\u6545\u4e8b<\/a><\/p>\n

\u6cd5\u8bed\u7248<\/a><\/p>","protected":false},"excerpt":{"rendered":"

Rare Disease Day is on February 28, 2022!  In the United States, a disease is considered rare if it affects fewer than 200,000 Americans, 7,000 illnesses fall into this category, with 1 […]<\/p>\n","protected":false},"author":14,"featured_media":20103,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","cybocfi_hide_featured_image":"","wds_primary_category":0,"footnotes":"","_links_to":"","_links_to_target":""},"categories":[67,51,70],"tags":[101,83,54,59,58,56,57,122,123,98,82,52,174],"class_list":["post-20097","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-community-support","category-news","category-research-awareness","tag-awareness","tag-blood-cancer","tag-blood-disorder","tag-bone-pain","tag-diabetes-insipidus","tag-erdheim-chester","tag-hairy-kidney","tag-histio","tag-histio-warrior","tag-isolation","tag-rare-cancer","tag-rare-disease","tag-treatment-access"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/posts\/20097","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/users\/14"}],"replies":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/comments?post=20097"}],"version-history":[{"count":0,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/posts\/20097\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/media\/20103"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/media?parent=20097"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/categories?post=20097"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/tags?post=20097"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}