{"id":19865,"date":"2021-11-01T13:41:18","date_gmt":"2021-11-01T18:41:18","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/ecd-staging\/?p=19865"},"modified":"2026-08-19T06:49:13","modified_gmt":"2026-08-19T11:49:13","slug":"2022%e5%b9%b4%e5%ba%a6ecd%e4%bc%9a%e8%ae%ae%e5%85%ac%e5%91%8a","status":"publish","type":"post","link":"https:\/\/www.erdheim-chester.org\/zh\/announcing-the-2022-annual-ecd-meeting\/","title":{"rendered":"2022\u5e74ECD\u5e74\u5ea6\u4f1a\u8bae\u516c\u544a"},"content":{"rendered":"<h3><em>\u4e00\u4e2a\u72ec\u7279\u7684\u793e\u533a\u5c06\u9f50\u805a\u4e00\u5802\uff0c\u76f8\u4e92\u4ea4\u6d41\u3001\u5171\u540c\u5b66\u4e60\u3002.<\/em><\/h3>\n<p>\u7ec8\u4e8e\uff0c\u57c3\u5c14\u5fb7\u6d77\u59c6-\u5207\u65af\u7279\u75c5\uff08ECD\uff09\u60a3\u8005\u3001\u5bb6\u5c5e\u548c\u533b\u52a1\u4eba\u5458\u5c06\u518d\u6b21\u9f50\u805a\u4e00\u5802\uff01\u5728\u75ab\u60c5\u5e26\u6765\u7684\u79cd\u79cd\u6311\u6218\u4e2d\uff0c\u670d\u52a1\u6211\u4eec\u7684\u4f1a\u5458\u59cb\u7ec8\u662f\u6211\u4eec\u7684\u9996\u8981\u4efb\u52a1\u3002\u00a0 \u901a\u8fc7\u5b9a\u671f\u4e3e\u529e\u7684\u5728\u7ebf\u4ea4\u6d41\u4f1a\u3001\u6559\u80b2\u7f51\u7edc\u7814\u8ba8\u4f1a\u4ee5\u53ca\u5bf9\u63d0\u4f9b\u652f\u6301\u7684\u575a\u5b9a\u627f\u8bfa\uff0cECDGA \u5f97\u4ee5\u5728\u75ab\u60c5\u8003\u9a8c\u671f\u95f4\u7ef4\u7cfb\u6210\u5458\u95f4\u7684\u8054\u7cfb\u3002.<\/p>\n<p><strong>\u8be5<\/strong> <strong>2022\u5e744\u67086\u65e5\u81f38\u65e5\uff0c\u5e74\u5ea6\u56fd\u9645\u57c3\u5c14\u5fb7\u6d77\u59c6-\u5207\u65af\u7279\u75c5\u7814\u8ba8\u4f1a\u5c06\u5728\u660e\u5c3c\u82cf\u8fbe\u5dde\u7f57\u5207\u65af\u7279\u5e02\u4e3e\u884c<\/strong>. \u5728\u4e3a\u671f\u4e09\u5929\u7684\u4f1a\u8bae\u671f\u95f4\uff0c\u5c06\u4e3e\u529e\u9488\u5bf9\u793e\u533a\u6bcf\u4f4d\u6210\u5458\u91cf\u8eab\u5b9a\u5236\u7684\u4f1a\u8bae\u3002.<\/p>\n<div id=\"attachment_175278\" style=\"width: 310px\" class=\"wp-caption alignright\"><a href=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2021\/11\/go-and-goyal-300x200-1.png\"><img loading=\"lazy\" decoding=\"async\" aria-describedby=\"caption-attachment-175278\" class=\"wp-image-175278 size-full\" src=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2021\/11\/go-and-goyal-300x200-1.png\" alt=\"\" width=\"300\" height=\"200\" srcset=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2021\/11\/go-and-goyal-300x200-1.png 300w, https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2021\/11\/go-and-goyal-300x200-1-18x12.png 18w\" sizes=\"(max-width: 300px) 100vw, 300px\" \/><\/a><p id=\"caption-attachment-175278\" class=\"wp-caption-text\">Go\u535a\u58eb\u548cGoyal\u535a\u58eb\u51fa\u5e2d2017\u5e74\u7ebd\u7ea6\u7814\u8ba8\u4f1a<\/p><\/div>\n<p>ECDGA \u5f88\u8363\u5e78\u80fd\u6709\u4eca\u5e74\u7684\u8054\u5408\u4e3b\u529e\u65b9\u534f\u52a9\u6d3b\u52a8\u7b56\u5212\u4e0e\u6267\u884c\u3002. <a href=\"https:\/\/www.mayo.edu\/research\/faculty\/go-ronald-s-m-d\/bio-20013527?eType=EmailBlastContent&amp;eId=44444444-4444-4444-4444-444444444444\" target=\"_blank\" rel=\"noopener\"><strong>\u7f57\u7eb3\u5fb7\u00b7\u9ad8\u535a\u58eb<\/strong><\/a> \u662f\u4f4d\u4e8e\u7f57\u5207\u65af\u7279\u6885\u5965\u8bca\u6240\uff08\u7d27\u90bb\u4f1a\u8bae\u5730\u70b9\uff09\u7684\u4e00\u540d\u8840\u6db2\u80bf\u7624\u79d1\u533b\u751f\u3002Go\u533b\u751f\u662f\u8be5\u8bca\u6240ECD\u62a4\u7406\u4e2d\u5fc3\u7684\u9996\u5e2d\u533b\u5e08\u3002\u4ed6\u81f4\u529b\u4e8e\u4e3a\u6240\u6709\u60a3\u8005\u521b\u9020\u66f4\u4f18\u8d28\u7684\u5c31\u533b\u4f53\u9a8c\u3002 \u00a0Go\u533b\u751f\u8fd8\u901a\u8fc7\u5728\u7ec4\u7ec7\u7ec6\u80de\u589e\u751f\u75c7\u9886\u57df\u4e3a\u65b0\u664b\u533b\u751f\u63d0\u4f9b\u9f13\u821e\u4eba\u5fc3\u4e14\u884c\u4e4b\u6709\u6548\u7684\u6307\u5bfc\uff0c\u5c55\u73b0\u4e86\u5bf9\u793e\u533a\u7684\u6df1\u5207\u5173\u6000\u3002\u6b64\u5916\uff0c\u672c\u6b21\u4f1a\u8bae\u7684\u53e6\u4e00\u4f4d\u4e3b\u6301\u4eba\u662f <a href=\"https:\/\/providerdirectory.uabmedicine.org\/provider\/Gaurav+Goyal\/895892?unified=gaurav%20goyal&amp;sort=networks%2Crelevance%2Cavailability_density_best\" target=\"_blank\" rel=\"noopener\"><strong>\u9ad8\u62c9\u592b\u00b7\u6208\u4e9a\u5c14\u535a\u58eb<\/strong><\/a><strong>,<\/strong> \u963f\u62c9\u5df4\u9a6c\u5927\u5b66\u4f2f\u660e\u7ff0\u5206\u6821\u7684\u52a9\u7406\u6559\u6388\u3002\u6208\u4e9a\u5c14\u535a\u58eb\u4e0d\u4ec5\u5728\u4e13\u4e1a\u9886\u57df\uff0c\u800c\u4e14\u4f5c\u4e3aECDGA\u7684\u5fd7\u613f\u8005\uff0c\u4e00\u76f4\u662f\u65e9\u671f\u513f\u7ae5\u53d1\u80b2\uff08ECD\uff09\u9886\u57df\u7684\u79ef\u6781\u6210\u5458\u3002\u4ed6\u7684\u8d21\u732e\u4e0d\u4ec5\u4e3a\u7ec4\u7ec7\u7ec6\u80de\u589e\u751f\u75c7\u60a3\u8005\u7684\u7814\u7a76\u548c\u8bca\u7597\u6807\u51c6\u5e26\u6765\u4e86\u79ef\u6781\u5f71\u54cd\uff0c\u8fd8\u4e3a\u60a3\u8005\u63d0\u4f9b\u4e86\u5353\u8d8a\u7684\u533b\u7597\u62a4\u7406\u3002 \u5728\u5e08\u4ece\u9ad8\u535a\u58eb\u671f\u95f4\u63a5\u53d7\u6307\u5bfc\u540e\uff0c\u6208\u4e9a\u5c14\u535a\u58eb\u76ee\u524d\u6b63\u5728\u4f2f\u660e\u7ff0\u9886\u5bfc\u4e00\u5bb6 ECD \u8bca\u7597\u4e2d\u5fc3\u3002\u9ad8\u535a\u58eb\u548c\u6208\u4e9a\u5c14\u535a\u58eb\u4e24\u4f4d\u90fd\u4e3a ECDGA \u7684\u6210\u957f\u4e0e\u6210\u529f\u53d1\u6325\u4e86\u5173\u952e\u4f5c\u7528\u3002.<\/p>\n<p>\u8be5 <strong>9<sup>th<\/sup> ECD<\/strong> <strong>\u533b\u5b66\u7814\u8ba8\u4f1a <\/strong>\u8be5\u6d3b\u52a8\u5b9a\u4e8e4\u67086\u65e5\u4e3e\u884c\uff0c\u65e8\u5728\u4e3a\u533b\u7597\u4e13\u4e1a\u4eba\u58eb\u63d0\u4f9b\u4e00\u4e2a\u4ea4\u6d41\u4e0e\u5408\u4f5c\u7684\u673a\u4f1a\uff0c\u5171\u540c\u63a2\u8ba8ECD\u7684\u6700\u65b0\u7814\u7a76\u6210\u679c\uff0c\u5e76\u5206\u4eab\u6709\u5173ECD\u60a3\u8005\u6cbb\u7597\u548c\u62a4\u7406\u65b9\u9762\u7684\u77e5\u8bc6\u3002\u6211\u4eec\u5f3a\u70c8\u5efa\u8bae\u6240\u6709\u5bf9ECD\u548c\u6210\u4eba\u7ec4\u7ec7\u7ec6\u80de\u589e\u751f\u75c7\u611f\u5174\u8da3\u7684\u533b\u7597\u4e13\u4e1a\u4eba\u58eb\uff0c\u7279\u522b\u662f\u521a\u5f00\u59cb\u6cbb\u7597ECD\u60a3\u8005\u7684\u4e34\u5e8a\u533b\u751f\uff0c\u8e0a\u8dc3\u53c2\u52a0\u3002.<\/p>\n<p>\u8be5 <strong>8<sup>th<\/sup><\/strong> <strong>ECD<\/strong> <strong>\u60a3\u8005\u53ca\u5bb6\u5c5e\u805a\u4f1a<\/strong> 4\u67088\u65e5\u5c06\u4e3e\u529e\u4e00\u573a\u9762\u5411\u6240\u6709ECD\u60a3\u8005\u3001\u62a4\u7406\u4eba\u5458\u4ee5\u53ca\u4efb\u4f55\u5e0c\u671b\u8fdb\u4e00\u6b65\u4e86\u89e3ECD\u60a3\u8005\u62a4\u7406\u4e0e\u652f\u6301\u7684\u4eba\u58eb\u7684\u6d3b\u52a8\u3002\u6b64\u6b21\u60a3\u8005\u4f1a\u8bae\u65e8\u5728\u51dd\u805a\u60a3\u8005\u4e0e\u5bb6\u5c5e\u7684\u529b\u91cf\uff0c\u5e76\u589e\u8fdb\u4ed6\u4eec\u5bf9ECD\u7684\u8ba4\u8bc6\u548c\u7406\u89e3\u3002 \u4f1a\u8bae\u671f\u95f4\uff0c\u7cbe\u901aECD\u62a4\u7406\u7684\u533b\u751f\u5c06\u5206\u4eab\u4e13\u4e1a\u77e5\u8bc6\uff0c\u5e76\u89e3\u7b54\u5bb6\u5c5e\u7684\u7591\u95ee\u3002\u8bb8\u591a\u60a3\u8005\u53cd\u9988\uff0c\u53c2\u52a0\u8fd9\u4e9b\u4f1a\u8bae\u540e\uff0c\u4ed6\u4eec\u7684\u6cbb\u7597\u65b9\u6848\u5f97\u5230\u4e86\u6210\u529f\u7684\u8c03\u6574\u3002\u6211\u4eec\u5f3a\u70c8\u5efa\u8bae\u6240\u6709ECD\u60a3\u8005\u53ca\u5176\u4eb2\u5c5e\u2014\u2014\u5c24\u5176\u662f\u521a\u786e\u8bca\u6216\u4ece\u672a\u53c2\u52a0\u8fc7ECD\u76f8\u5173\u6d3b\u52a8\u7684\u60a3\u8005\u53ca\u5bb6\u5c5e\u2014\u2014\u79ef\u6781\u8003\u8651\u53c2\u52a0\u6b64\u6b21\u6d3b\u52a8\u3002.<\/p>\n<p>\u6b64\u5916\uff0c\u57284\u67087\u65e5\u4e3e\u884c\u7684\u793e\u4ea4\u62db\u5f85\u4f1a\u4e0a\uff0c\u4e13\u4e1a\u4eba\u58eb\u548c\u60a3\u8005\u8fd8\u5c06\u6709\u673a\u4f1a\u76f8\u4e92\u4ea4\u6d41\u3002\u8fd9\u662f\u4e00\u4e2a\u8f83\u4e3a\u8f7b\u677e\u7684\u573a\u5408\uff0c\u5927\u5bb6\u53ef\u4ee5\u5728\u6b64\u4e92\u76f8\u4ecb\u7ecd\u3001\u7ed3\u8bc6\u65b0\u6210\u5458\uff0c\u5e76\u4e0e\u90a3\u4e9b\u7406\u89e3\u60a3\u6709\u65e9\u671f\u513f\u7ae5\u53d1\u80b2\u969c\u788d\uff08ECD\uff09\u6240\u9762\u4e34\u56f0\u5883\u7684\u4eba\u4eec\u5171\u5ea6\u7f8e\u597d\u65f6\u5149\u3002.<\/p>\n<p><strong>\u00a0<\/strong><strong>*\u5173\u4e8e\u65b0\u51a0\u75ab\u60c5\u7684\u58f0\u660e\uff1a<\/strong> \u6211\u4eec\u6b63\u5728\u5bc6\u5207\u5173\u6ce8\u8be5\u5730\u70b9\u7684\u536b\u751f\u6761\u4f8b\uff0c\u5e0c\u671b\u75ab\u60c5\u80fd\u53ca\u65f6\u5e73\u606f\uff0c\u4ee5\u4fbf\u6309\u8ba1\u5212\u4e3e\u884c\u4f1a\u8bae\u3002\u6211\u4eec\u5c06\u7ee7\u7eed\u5173\u6ce8\u4e8b\u6001\u53d1\u5c55\uff0c\u5982\u6709\u4efb\u4f55\u53d8\u5316\u5c06\u53ca\u65f6\u53d1\u5e03\u66f4\u65b0\u3002\u4e0e\u6b64\u540c\u65f6\uff0c\u6211\u4eec\u5c06\u7ee7\u7eed\u63092022\u5e744\u67086\u65e5\u81f34\u67088\u65e5\u7684\u65e5\u671f\u8fdb\u884c\u7b79\u5907\u5de5\u4f5c\u3002.<\/p>\n<p><strong>\u4e86\u89e3\u66f4\u591a\uff1a<\/strong><\/p>\n<ul>\n<li>\u533b\u7597\u4e13\u4e1a\u4eba\u5458\uff1a <a href=\"https:\/\/erdheim-chester.salsalabs.org\/scientificmeeting2022\">\u4e86\u89e3\u66f4\u591a\u4fe1\u606f\u5e76\u6ce8\u518c\u3002.<\/a><\/li>\n<li>\u60a3\u8005\u53ca\u5bb6\u5c5e\uff1a <a href=\"https:\/\/erdheim-chester.salsalabs.org\/ecdmeeting2022\">\u8bf7\u70b9\u51fb\u6b64\u5904\u67e5\u770b\u6d3b\u52a8\u8be6\u60c5\u548c\u62a5\u540d\u4fe1\u606f\u3002.<\/a><\/li>\n<li><a href=\"https:\/\/www.erdheim-chester.org\/zh\/%e5%85%b3%e4%ba%8eecd\/\">\u4ec0\u4e48\u662fECD\uff1f<\/a><\/li>\n<li><a title=\"\u5173\u4e8e\u6211\u4eec\" href=\"https:\/\/www.erdheim-chester.org\/zh\/about-us-2\/\">\u4e86\u89e3\u6709\u5173ECD\u5168\u7403\u8054\u76df\u7684\u66f4\u591a\u4fe1\u606f<\/a><\/li>\n<\/ul>","protected":false},"excerpt":{"rendered":"<p>A rare community will join together to connect &amp; learn. Finally, the Erdheim-Chester Disease (ECD) community of patients, loved ones, and physicians will gather together again!\u00a0 During the challenges of [&hellip;]<\/p>\n","protected":false},"author":14,"featured_media":19868,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","cybocfi_hide_featured_image":"","wds_primary_category":0,"footnotes":"","_links_to":"","_links_to_target":""},"categories":[51],"tags":[55,54,59,53,58,133,134,56,57,122,135,52,130],"class_list":["post-19865","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-news","tag-advocacy","tag-blood-disorder","tag-bone-pain","tag-cancer","tag-diabetes-insipidus","tag-disease-education","tag-ecd-awareness","tag-erdheim-chester","tag-hairy-kidney","tag-histio","tag-medical-symposium","tag-rare-disease","tag-research"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/posts\/19865","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/users\/14"}],"replies":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/comments?post=19865"}],"version-history":[{"count":1,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/posts\/19865\/revisions"}],"predecessor-version":[{"id":175279,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/posts\/19865\/revisions\/175279"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/media\/19868"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/media?parent=19865"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/categories?post=19865"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/tags?post=19865"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}