{"id":19782,"date":"2021-09-27T13:14:10","date_gmt":"2021-09-27T18:14:10","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/ecd-staging\/?p=19782"},"modified":"2025-08-23T17:14:17","modified_gmt":"2025-08-23T21:14:17","slug":"%e5%85%a8%e7%90%83%e6%94%af%e6%8c%81%e5%ba%a6%e4%b8%8a%e5%8d%87","status":"publish","type":"post","link":"https:\/\/www.erdheim-chester.org\/zh\/global-support-rises\/","title":{"rendered":"\u5168\u7403\u652f\u6301\u7387\u4e0a\u5347"},"content":{"rendered":"<p><a href=\"https:\/\/youtu.be\/NfBRSEoMw9g\"><img loading=\"lazy\" decoding=\"async\" class=\"alignright wp-image-19787\" style=\"width: 251px; max-width: 640px;\" src=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2021\/09\/Jornadas-Internacionales-Histio-3-212x300.png\" alt=\"\" width=\"212\" height=\"355\"><\/a>\u4eca\u5e749\u6708\uff0c\u57282021\u5e74\u201c\u7ec4\u7ec7\u7ec6\u80de\u589e\u751f\u75c7\u5ba3\u4f20\u6708\u201d\u671f\u95f4\uff0c\u4e3e\u529e\u4e86\u4e00\u573a\u56fd\u9645\u7ec4\u7ec7\u7ec6\u80de\u589e\u751f\u75c7\u7ebf\u4e0a\u4f1a\u8bae\u3002\u6b64\u6b21\u7f51\u7edc\u7814\u8ba8\u4f1a\u7531\u897f\u73ed\u7259OR\u534f\u4f1a\u7ec4\u7ec7\u5e76\u4e3b\u529e\uff0c\u53c2\u4f1a\u8005\u4e3b\u8981\u4e3a\u533b\u751f\uff0c\u60a3\u8005\u4eba\u6570\u8f83\u5c11\u3002.&nbsp;<\/p>\n<p>One session during the conference included the ECD Global Alliance (ECDGA) and Histiocytosis Association (HA) on September 24, 2021. Dr. Gaurav Goyal, University of Alabama Birmingham, led the educational meeting by presenting the topic Impact in adult patients with LCH and Erdheim-Chester, ongoing treatments, and studies.&nbsp; The talk included descriptions of the adult histiocytic disorders and common clinical features and treatments that have been found effective. Diagnostic tips were shared to help physicians confirm an accurate diagnosis of these similar diseases.&nbsp;<\/p>\n<p>\u8be5 <strong>\u4e0e\u5168\u7403\u7ec4\u7ec7\u7ec6\u80de\u589e\u751f\u75c7\u5021\u5bfc\u56e2\u4f53\u7684\u5408\u4f5c\u5e26\u6765\u4e86\u8bf8\u591a\u76ca\u5904\u3002.<\/strong> \u8fd9\u6b21\u6d3b\u52a8\u5bf9\u6211\u4eec\u7684\u897f\u73ed\u7259\u8bed\u793e\u533a\u5c24\u5176\u6709\u76ca\u3002\u6765\u81ea\u963f\u6839\u5ef7\u3001\u897f\u73ed\u7259\u53ca\u5176\u4ed6\u5730\u533a\u7684\u533b\u751f\u5f97\u4ee5\u83b7\u53d6\u5e76\u5206\u4eab\u5728\u7f8e\u56fd\u53d1\u73b0\u7684\u76f8\u5173\u4fe1\u606f\u3002\u4e0e\u4f1a\u8005\u5bf9\u8fd9\u6b21\u5b66\u4e60\u673a\u4f1a\u8868\u793a\u9ad8\u5ea6\u8d5e\u8d4f\uff0c\u5e76\u5e0c\u671b\u501f\u6b64\u4e3a\u60a3\u8005\u63d0\u4f9b\u66f4\u597d\u7684\u533b\u7597\u670d\u52a1\u3002.&nbsp;<\/p>\n<p>HA\u548cECDGA\u7684\u8463\u4e8b\u4eec\u5206\u4eab\u4e86\u4ed6\u4eec\u5728\u652f\u6301\u7ec4\u7ec7\u7ec6\u80de\u589e\u751f\u75c7\u60a3\u8005\u53ca\u533b\u7597\u754c\u65b9\u9762\u6240\u53d1\u6325\u7684\u4f5c\u7528\u3002  \u8be5 <strong>\u533b\u751f\u7f51\u7edc\u76f8\u4e92\u4ea4\u7ec7\uff0c\u4e14\u5728\u4e0d\u65ad\u6269\u5c55<\/strong> \u5728\u5404\u7ec4\u7ec7\u4e2d\u3002\u968f\u7740\u8fd9\u4e9b\u7ec4\u7ec7\u5f00\u5c55\u66f4\u591a\u5ba3\u4f20\u548c\u6559\u80b2\u6d3b\u52a8\uff0c\u7ec4\u7ec7\u7ec6\u80de\u7624\u7684\u62a4\u7406\u5de5\u4f5c\u6bcf\u5929\u90fd\u5728\u53d6\u5f97\u8fdb\u5c55\u3002.<\/p>\n<p>\u8be5 <strong>ECDGA \u7279\u522b\u4e3a\u8bb2\u897f\u73ed\u7259\u8bed\u7684\u5bb6\u5ead\u589e\u8bbe\u4e86\u5b63\u5ea6\u5728\u7ebf\u4ea4\u6d41\u6d3b\u52a8\uff0c\u4ee5\u6b64\u63d0\u4f9b\u652f\u6301<\/strong>, \uff0c\u4e3a\u8fd9\u4e9b\u5bb6\u5ead\u63d0\u4f9b\u4e86\u5728\u7ebf\u4ea4\u6d41\u7684\u673a\u4f1a\u3002\u00a0 \u8fd9\u79cd\u60c5\u611f\u652f\u6301\u4e0d\u4ec5\u80fd\u5e2e\u52a9\u60a3\u8005\u548c\u5bb6\u5c5e\u51cf\u8f7b\u5b64\u72ec\u611f\uff0c\u8fd8\u80fd\u4f7f\u4ed6\u4eec\u66f4\u6709\u80fd\u529b\u5411\u533b\u7597\u56e2\u961f\u8868\u8fbe\u81ea\u8eab\u9700\u6c42\u3002\u6b64\u5916\uff0c\u6211\u4eec\u6bcf\u5b63\u5ea6\u8fd8\u4f1a\u5b89\u6392\u4e00\u4f4d\u7cbe\u901a\u7ec4\u7ec7\u7ec6\u80de\u75c5\u53ca\u5176\u6cbb\u7597\u7684\u897f\u73ed\u7259\u8bed\u533b\u751f\u4e0e\u8fd9\u4e9b\u60a3\u8005\u8fdb\u884c\u4ea4\u6d41\u3002\u6b22\u8fce\u4efb\u4f55\u60a3\u8005\u6216\u5bb6\u5c5e\u52a0\u5165\u672c\u6b21\u5728\u7ebf\u4ea4\u6d41\uff01&nbsp; &nbsp;&nbsp;<\/p>\n<p><a href=\"https:\/\/youtu.be\/NfBRSEoMw9g\" target=\"_blank\" rel=\"noopener\">\u5728 YouTube \u4e0a\u89c2\u770b\u672c\u6b21\u7f51\u7edc\u7814\u8ba8\u4f1a\u7684\u5f55\u50cf\u3002.<\/a><\/p>\n<p><a href=\"https:\/\/www.erdheim-chester.org\/zh\/chat-sessions\/\">\u67e5\u770b\u6211\u4eec\u7684\u804a\u5929\u65f6\u6bb5\u5b89\u6392\u3002.<\/a><\/p>\n<p>&nbsp;<\/p>\n<p>&nbsp;<\/p>","protected":false},"excerpt":{"rendered":"<p>An international histiocytosis virtual meeting was held this September during Histiocytosis Awareness Month of 2021. The webinar was organized and hosted by the OR Association of Spain, with the audience [&hellip;]<\/p>\n","protected":false},"author":14,"featured_media":19783,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","cybocfi_hide_featured_image":"","wds_primary_category":0,"footnotes":"","_links_to":"","_links_to_target":""},"categories":[51],"tags":[55,54,59,53,58,56,128,126,57,122,52,127],"class_list":["post-19782","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-news","tag-advocacy","tag-blood-disorder","tag-bone-pain","tag-cancer","tag-diabetes-insipidus","tag-erdheim-chester","tag-espanol","tag-global-histio","tag-hairy-kidney","tag-histio","tag-rare-disease","tag-spanish"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/posts\/19782","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/users\/14"}],"replies":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/comments?post=19782"}],"version-history":[{"count":0,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/posts\/19782\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/media\/19783"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/media?parent=19782"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/categories?post=19782"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/tags?post=19782"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}