{"id":19752,"date":"2021-09-13T14:39:45","date_gmt":"2021-09-13T19:39:45","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/ecd-staging\/?p=19752"},"modified":"2026-08-19T06:52:38","modified_gmt":"2026-08-19T11:52:38","slug":"2021%e5%b9%b4%e6%97%a9%e6%9c%9f%e5%84%bf%e7%ab%a5%e5%8f%91%e5%b1%95%ef%bc%88ecd%ef%bc%89%e5%ae%a3%e4%bc%a0%e5%91%a8","status":"publish","type":"post","link":"https:\/\/www.erdheim-chester.org\/zh\/2021-ecd-awareness-week\/","title":{"rendered":"2021\u5e74ECD\u5ba3\u4f20\u5468"},"content":{"rendered":"

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2021\u5e749\u670813\u65e5\u81f318\u65e5<\/em><\/p>\n

#\u5206\u4eab\u662f\u5173\u952e #\u63d0\u9ad8\u5bf9\u6027\u4f20\u64ad\u75be\u75c5\u7684\u8ba4\u8bc6 #\u63d0\u9ad8\u8ba4\u8bc6\u5468<\/p>\n

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ECD\u5168\u7403\u8054\u76df\u6b63\u5728\u4e3e\u529e\u7b2c\u4e03\u5c4a\u5e74\u5ea6\u57c3\u5c14\u5fb7\u6d77\u59c6-\u5207\u65af\u7279\u75c5\u5ba3\u4f20\u5468\uff01\u5373\u65e5\u8d77\u81f32021\u5e749\u670818\u65e5\uff0c\u6b22\u8fce\u52a0\u5165\u6211\u4eec\u7684\u793e\u533a\uff0c\u5171\u540c\u63d0\u9ad8\u516c\u4f17\u5bf9\u8fd9\u79cd\u8d85\u7f55\u89c1\u75be\u75c5\u2014\u2014ECD\u7684\u8ba4\u8bc6\u3002.<\/p>\n

\u8bf7\u8003\u8651\u5e2e\u52a9\u6211\u4eec\u7684\u56e2\u961f\u5411\u4ed6\u4eba\u4f20\u64ad\u6709\u5173\u57c3\u5c14\u5fb7\u6d77\u59c6-\u5207\u65af\u7279\u75c5\u7684\u8d44\u8baf\u3002. \u652f\u6301\u8005\u7684\u5fc3\u58f0\u5bf9\u4e8e\u7f29\u77ed\u8be5\u7f55\u89c1\u75be\u75c5\u7684\u786e\u8bca\u65f6\u95f4\u81f3\u5173\u91cd\u8981\u3002.<\/strong><\/p>\n

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\u5206\u4eab\u662f\u5173\u952e\uff01<\/h3>\n

\u5206\u4eab\u00a0<\/strong>\u8bf7\u5728\u60a8\u7684\u793e\u4ea4\u5a92\u4f53\u9875\u9762\u4e0a\u5206\u4eab\u6211\u4eec\u7684\u5a92\u4f53\u5e16\u5b50\u4ee5\u53ca\u60a8\u81ea\u5df1\u7684\u5ba3\u4f20\u6d3b\u52a8\uff0c\u5e76\u6dfb\u52a0\u8bdd\u9898\u6807\u7b7e\u4ee5\u83b7\u5f97\u66f4\u591a\u66dd\u5149\uff01
\n#\u57c3\u5c14\u5fb7\u6d77\u59c6\u5207\u65af\u7279 #\u5206\u4eab\u662f\u5173\u952e #\u610f\u8bc6\u5468 #ECD\u610f\u8bc6 #\u7ec4\u7ec7\u7ec6\u80de\u7624 #endECD<\/p>\n

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Facebook\uff1a@ErdheimChesterDisease<\/p>\n

Instagram\uff1a@erdheim_chester<\/p>\n

Twitter\uff1a@ECDGA<\/p>\n

\u78e8\u635f\u00a0<\/strong>\u8bf7\u4f69\u6234\u60a8\u7684ECD\u88c5\u5907\u6216\u4e1d\u5e26\uff0c\u5e76\u5411\u6211\u4eec\u53d1\u9001\u4e00\u5f20\u7167\u7247\u3002\u4e0d\u59a8\u9644\u4e0a\u4e00\u6bb5\u8bdd\uff0c\u8bf4\u660e\u63d0\u9ad8\u610f\u8bc6\u5bf9\u60a8\u548c\u60a8\u7684\u5bb6\u4eba\u4e3a\u4f55\u91cd\u8981\u3002\u8fd9\u4e9b\u56fe\u7247\u548c\u6587\u5b57\u5c06\u88ab\u53d1\u5e03\u5728\u4e0a\u8ff0\u5a92\u4f53\u9875\u9762\u4e0a\uff0c\u4ee5\u83b7\u5f97\u66f4\u5e7f\u6cdb\u7684\u66dd\u5149\u3002.<\/p>\n

\"\"<\/a><\/p>\n

\u518d\u52a0\u628a\u52b2\uff01<\/h3>\n

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\u5efa\u8bae\u8d35\u533b\u7597\u4e2d\u5fc3\u4f7f\u7528\u6211\u4eec\u7684\u5ba3\u4f20\u518c\u3002.\u00a0\u00a0\u7d22\u53d6\u5ba3\u4f20\u518c<\/a><\/p>\n

\u8bf7\u9080\u8bf7\u60a8\u7684\u533b\u7597\u56e2\u961f\u52a0\u5165 ECD \u5168\u7403\u8054\u76df\uff0c\u4ee5\u4fbf\u4ed6\u4eec\u53ca\u65f6\u4e86\u89e3\u6700\u65b0\u52a8\u6001\u3002.\u00a0\u00a0\u62a5\u540d\u8868<\/a><\/p>\n

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\u65b0\u60a3\u8005\u6545\u4e8b\uff01<\/h3>\n

\u65f6\u95f4\u5c31\u662f\u5173\u952e<\/a><\/h3>\n

 <\/p>\n

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\u8c28\u81f4\u8c22\u5ff1\uff0c,<\/p>\n

ECD\u5168\u7403\u8054\u76df\u6267\u884c\u4e3b\u4efb
\n\u6770\u897f\u5361\u00b7\u79d1\u514b\u4f26<\/em><\/p>","protected":false},"excerpt":{"rendered":"

  Erdheim-Chester Disease Awareness Week September 13 – 18, 2021 #SharingIsKey #ECDawareness #AwarenessWeek   The ECD Global Alliance is hosting its 7th Annual Erdheim-Chester Disease Awareness Week! Join our community […]<\/p>\n","protected":false},"author":14,"featured_media":19753,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","cybocfi_hide_featured_image":"","wds_primary_category":0,"footnotes":"","_links_to":"","_links_to_target":""},"categories":[51,70],"tags":[101,83,54,59,58,56,57,122,123,98,99,124,82,52],"class_list":["post-19752","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-news","category-research-awareness","tag-awareness","tag-blood-cancer","tag-blood-disorder","tag-bone-pain","tag-diabetes-insipidus","tag-erdheim-chester","tag-hairy-kidney","tag-histio","tag-histio-warrior","tag-isolation","tag-lifestyle","tag-podcast","tag-rare-cancer","tag-rare-disease"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/posts\/19752","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/users\/14"}],"replies":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/comments?post=19752"}],"version-history":[{"count":1,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/posts\/19752\/revisions"}],"predecessor-version":[{"id":175283,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/posts\/19752\/revisions\/175283"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/media\/19753"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/media?parent=19752"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/categories?post=19752"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/tags?post=19752"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}