{"id":19752,"date":"2021-09-13T14:39:45","date_gmt":"2021-09-13T19:39:45","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/ecd-staging\/?p=19752"},"modified":"2025-08-23T18:10:17","modified_gmt":"2025-08-23T22:10:17","slug":"2021-ecd-awareness-week","status":"publish","type":"post","link":"https:\/\/www.erdheim-chester.org\/zh\/2021-ecd-awareness-week\/","title":{"rendered":"2021\u5e74ECD\u5ba3\u4f20\u5468"},"content":{"rendered":"<p>&nbsp;<\/p>\n<h2>Erdheim-Chester Disease Awareness Week<\/h2>\n<p><em>September 13 &#8211; 18, 2021<\/em><\/p>\n<p>#SharingIsKey #ECDawareness #AwarenessWeek<\/p>\n<p>&nbsp;<\/p>\n<p>The ECD Global Alliance is hosting its 7th Annual Erdheim-Chester Disease Awareness Week! Join our community in raising awareness of the ultra-rare ECD now through September 18, 2021.&nbsp;&nbsp;<\/p>\n<p>Please consider helping our team share information about Erdheim-Chester Disease with others. <strong>The voice of our supporters is essential to reducing the time it takes&nbsp;to find a diagnosis for this rare disorder.<\/strong><\/p>\n<p>&nbsp;<\/p>\n<h3>Sharing&nbsp;is Key!<\/h3>\n<p><strong>Share&nbsp;<\/strong>our media posts and your own awareness efforts on your media pages with hashtags for more exposure!<br \/>\n#ErdheimChester&nbsp; #SharingIsKey&nbsp; #AwarenessWeek&nbsp;&nbsp;#ECDawareness&nbsp; #Histio&nbsp; #endECD<\/p>\n<p><strong>Tag us so we see your posts!<\/strong><\/p>\n<p style=\"padding-left: 40px;\">Facebook: @ErdheimChesterDisease<\/p>\n<p style=\"padding-left: 40px;\">Instagram: @erdheim_chester<\/p>\n<p style=\"padding-left: 40px;\">Twitter:&nbsp;@ECDGA<\/p>\n<p><strong>Wear&nbsp;<\/strong>your ECD gear or ribbon and send us a photo. Consider adding a quote on why awareness is important to you and your family.&nbsp; These images and quotes will be placed on the above media pages for more exposure.<\/p>\n<p><a href=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2021\/08\/2021-AW-General-Flyer.png\"><img loading=\"lazy\" decoding=\"async\" class=\"wp-image-19742 alignright\" src=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2021\/08\/2021-AW-General-Flyer-232x300.png\" alt=\"2021 ECD AW Flyer\" width=\"285\" height=\"369\"><\/a><\/p>\n<h3>Go the extra mile!<\/h3>\n<p>Post or print this ECD Awareness Flyer and provide it to your family, friends, and medical teams.&nbsp;&nbsp;<a href=\"https:\/\/bit.ly\/3jvT2Tq?eType=EmailBlastContent&amp;eId=44444444-4444-4444-4444-444444444444\" target=\"_top\" rel=\"noopener\">Awareness Flyer<\/a><\/p>\n<p>Share this educational webinar recording with colleagues working with histiocytic disorders.&nbsp;&nbsp;<a href=\"https:\/\/youtu.be\/RASwg4x6a94?eType=EmailBlastContent&amp;eId=44444444-4444-4444-4444-444444444444\" target=\"_top\" rel=\"noopener\">Webinar Recording<\/a><\/p>\n<p>Suggest the use of our informational brochures at your medical center.&nbsp;&nbsp;<a href=\"https:\/\/erdheim-chester.salsalabs.org\/brochurerequest?eType=EmailBlastContent&amp;eId=44444444-4444-4444-4444-444444444444\" target=\"_top\" rel=\"noopener\">Brochure Request<\/a><\/p>\n<p>Invite your medical team to sign up with the ECD Global Alliance so they can stay informed.&nbsp;&nbsp;<a href=\"https:\/\/erdheim-chester.salsalabs.org\/joinecdga?eType=EmailBlastContent&amp;eId=44444444-4444-4444-4444-444444444444\" target=\"_top\" rel=\"noopener\">Join Form<\/a><\/p>\n<p>&nbsp;<\/p>\n<h3>New Patient Story!<\/h3>\n<h3><a title=\"\u65f6\u95f4\u5c31\u662f\u5173\u952e\" href=\"https:\/\/www.erdheim-chester.org\/zh\/%e6%96%b0%e9%97%bb\/time-is-of-the-essence\/\">\u65f6\u95f4\u5c31\u662f\u5173\u952e<\/a><\/h3>\n<p>&nbsp;<\/p>\n<h3>Learn from the experts in this podcast!<\/h3>\n<p>Our President and Co-Founder, Kathy Brewer, joined Dr. Gaurav Goyal, the Histiocytosis Association, and the Histiocytosis Association of Canada in a podcast on creating awareness! The panel shares their powerful experiences with rare diseases, proving the importance of awareness.&nbsp; <a href=\"https:\/\/anchor.fm\/histio\/episodes\/Episode-007---Why-Raising-Awareness-is-Critical-and-the-Impact-it-Can-Have-e16d0i0?eType=EmailBlastContent&amp;eId=44444444-4444-4444-4444-444444444444\" target=\"_blank\" rel=\"noopener\">Listen Now<\/a><\/p>\n<p>As always, thank you for helping us to raise awareness of Erdheim-Chester Disease. Our community appreciates your efforts greatly!<\/p>\n<p>With gratitude,<\/p>\n<p>ECD Global Alliance Executive Director<br \/>\n<em>Jessica Corkran<\/em><\/p>","protected":false},"excerpt":{"rendered":"<p>&nbsp; Erdheim-Chester Disease Awareness Week September 13 &#8211; 18, 2021 #SharingIsKey #ECDawareness #AwarenessWeek &nbsp; The ECD Global Alliance is hosting its 7th Annual Erdheim-Chester Disease Awareness Week! Join our community [&hellip;]<\/p>\n","protected":false},"author":14,"featured_media":19753,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","cybocfi_hide_featured_image":"","wds_primary_category":0,"footnotes":"","_links_to":"","_links_to_target":""},"categories":[51,70],"tags":[101,83,54,59,58,56,57,122,123,98,99,124,82,52],"class_list":["post-19752","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-news","category-research-awareness","tag-awareness","tag-blood-cancer","tag-blood-disorder","tag-bone-pain","tag-diabetes-insipidus","tag-erdheim-chester","tag-hairy-kidney","tag-histio","tag-histio-warrior","tag-isolation","tag-lifestyle","tag-podcast","tag-rare-cancer","tag-rare-disease"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/posts\/19752","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/users\/14"}],"replies":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/comments?post=19752"}],"version-history":[{"count":0,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/posts\/19752\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/media\/19753"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/media?parent=19752"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/categories?post=19752"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/tags?post=19752"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}