{"id":19670,"date":"2021-06-24T14:45:50","date_gmt":"2021-06-24T14:45:50","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/ecd-staging\/?p=19670"},"modified":"2026-08-19T06:59:38","modified_gmt":"2026-08-19T11:59:38","slug":"%e4%b8%ba%e6%b2%bb%e6%84%88%e8%80%8c%e6%94%80%e7%99%bb","status":"publish","type":"post","link":"https:\/\/www.erdheim-chester.org\/zh\/climbing-for-the-cure\/","title":{"rendered":"\u201c\u6500\u767b\u4e3a\u6cbb\u6108\u201d"},"content":{"rendered":"<p>\u672c\u6708\u7531\u4f1a\u5458\u4e3b\u529e\u7684ECD\u865a\u62df\u8dd1\/\u8d70\u6d3b\u52a8\uff0c\u65e8\u5728\u4e3a\u8fd9\u79cd\u7f55\u89c1\u75be\u75c5\u7684\u7814\u7a76\u7b79\u96c6\u8d44\u91d1\u3001\u63d0\u9ad8\u516c\u4f17\u610f\u8bc6\uff0c\u5e76\u51dd\u805a\u652f\u6301\u8005\u529b\u91cf\uff0c\u5171\u540c\u652f\u6301\u6240\u6709\u4e0eECD\u6297\u4e89\u7684\u4eba\u4eec\u3002.<\/p>\n<p>\u5728\u6700\u8fd1\u7684\u7236\u4eb2\u8282\uff0c\u963f\u7279\u5c3c\u666e\u4e00\u5bb6\u9f50\u805a\u4e00\u5802\uff0c\u4e3a\u4e86\u652f\u6301\u4ed6\u4eec\u7684\u7236\u4eb2\u548c\u4e08\u592b\uff0c\u4e5f\u4e3a\u4e86\u6574\u4e2a\u793e\u533a\uff0c\u5171\u540c\u6500\u767b\u65b0\u7684\u9ad8\u5cf0\uff01<\/p>\n<h3>\u201c\u6500\u767b\u4e3a\u6cbb\u6108\u201d<\/h3>\n<p><em>\u4f5c\u8005\uff1a\u6885\u7433\u8fbe\u00b7\u963f\u7279\u5c3c\u666e<\/em><\/p>\n<p><img loading=\"lazy\" decoding=\"async\" class=\"alignright size-medium wp-image-19667\" src=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2021\/06\/IMG_0054-300x225.jpg\" alt=\"\" width=\"300\" height=\"225\" srcset=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2021\/06\/IMG_0054-300x225.jpg 300w, https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2021\/06\/IMG_0054-1024x768.jpg 1024w, https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2021\/06\/IMG_0054-768x576.jpg 768w, https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2021\/06\/IMG_0054-1536x1151.jpg 1536w\" sizes=\"(max-width: 300px) 100vw, 300px\" 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<strong>\u4ece2020\u5e744\u6708\u81f3\u4eca\uff0c\u5df4\u91cc\u5df2\u8fdb\u884c\u4e86\u4e8c\u5341\u591a\u6b21Zoom\u8fdc\u7a0b\u95ee\u8bca\u3001\u5341\u4e03\u6b21\u9762\u5bf9\u9762\u5c31\u8bca\uff0c\u5e76\u770b\u8fc7\u4e86\u4e8c\u5341\u4f4d\u4e0d\u540c\u7684\u533b\u751f\uff08\u5176\u4e2d\u5305\u62ec\u516d\u4f4d\u773c\u79d1\u4e13\u5bb6\uff09\u3002.<\/strong> \u6240\u6709\u533b\u751f\u5747\u6765\u81ea\u56db\u5bb6\u4e0d\u540c\u7684\u533b\u7597\u4e2d\u5fc3\uff08\u5723\u88d8\u5fb7\u3001\u52a0\u5dde\u5927\u5b66\u6b27\u6587\u5206\u6821\u3001\u65af\u5766\u798f\u5927\u5b66\u3001\u7ebd\u7ea6\u5e02\u7eaa\u5ff5\u65af\u9686-\u51ef\u7279\u7433\u764c\u75c7\u4e2d\u5fc3\uff09\u3002 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size-full alignright\" src=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2021\/06\/IMG_0041-300x225-1.jpg\" alt=\"\" width=\"300\" height=\"225\" srcset=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2021\/06\/IMG_0041-300x225-1.jpg 300w, https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2021\/06\/IMG_0041-300x225-1-16x12.jpg 16w\" sizes=\"(max-width: 300px) 100vw, 300px\" \/><\/a>\u5df4\u91cc\u4e8e2021\u5e741\u670819\u65e5\u88ab\u786e\u8bca\u4e3a\u57c3\u5c14\u5fb7\u6d77\u59c6-\u5207\u65af\u7279\u75c5\u3002\u5df4\u91cc\u6700\u7ec8\u4e8e2021\u5e744\u67081\u65e5\u5f00\u59cb\u63a5\u53d7\u6cbb\u7597\u3002\u4ed6\u76ee\u524d\u6b63\u5728\u670d\u7528BRAF\u548cMEK\u6291\u5236\u5242\u3002. <strong>\u597d\u6d88\u606f\u662f\uff0c\u5df4\u91cc\u7ec8\u4e8e\u611f\u89c9\u597d\u4e9b\u4e86\uff01\uff01\uff01<\/strong> \u5df4\u91cc\u6b63\u5728\u5de5\u4f5c\u3001\u953b\u70bc\u3001\u6ed1\u96ea\u3001\u9a91\u5c71\u5730\u8f66\uff0c\u5e76\u5bf9\u904f\u5236\u75c5\u60c5\u8fdb\u5c55\u62b1\u6709\u5e0c\u671b\u3002\u6211\u4eec\u6709\u610f\u8bc6\u5730\u8fc7\u597d\u6bcf\u4e00\u5929\uff0c\u5e76\u56e0\u751f\u6d3b\u4e2d\u6709\u5bb6\u4eba\u548c\u670b\u53cb\u76f8\u4f34\u800c\u500d\u611f\u5e78\u8fd0\u3002\u6b63\u5982\u4f60\u4eec\u6240\u77e5\uff0c\u5982\u679c\u6ca1\u67092016\u5e74\u524d\u5f00\u5c55\u7684\u7814\u7a76\u548c\u4e34\u5e8a\u8bd5\u9a8c\uff0cECD\u7684\u6cbb\u7597\u65b9\u6848\u5c06\u5be5\u5be5\u65e0\u51e0\u3002. <strong>\u6211\u4eec\u611f\u8c22\u90a3\u4e9b\u5728\u6211\u4eec\u4e4b\u524d\u7684\u60a3\u8005\uff0c\u6b63\u662f\u4ed6\u4eec\u4ed8\u51fa\u4e86\u8270\u8f9b\u7684\u52aa\u529b\uff0c\u624d\u4f7f\u5df4\u91cc\u80fd\u591f\u83b7\u5f97\u6cbb\u7597\u8fd9\u79cd\u7f55\u89c1\u75c5\u7684\u6709\u6548\u836f\u7269\u3002.<\/strong><\/p>\n<p><a href=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2021\/06\/IMG_0020-2-225x300-1.jpg\"><img loading=\"lazy\" decoding=\"async\" class=\"wp-image-175286 size-full alignleft\" src=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2021\/06\/IMG_0020-2-225x300-1.jpg\" alt=\"\" width=\"225\" height=\"300\" srcset=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2021\/06\/IMG_0020-2-225x300-1.jpg 225w, https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2021\/06\/IMG_0020-2-225x300-1-9x12.jpg 9w\" sizes=\"(max-width: 225px) 100vw, 225px\" \/><\/a>\u6240\u4ee5\u2026\u2026\u5e94\u5df4\u91cc\u6559\u7ec3\u7684\u8981\u6c42\uff0c\u5728ECD 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member-hosted ECD Virtual Run\/Walk this month has served to raise funds for research on this rare disease, increase awareness, and pull together supporters for all those fighting ECD. The [&hellip;]<\/p>\n","protected":false},"author":14,"featured_media":19676,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","cybocfi_hide_featured_image":"","footnotes":"","_links_to":"","_links_to_target":""},"categories":[67,51,70],"tags":[83,54,59,117,77,58,56,57,98,99,119,82,52,118,120,121],"class_list":["post-19670","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-community-support","category-news","category-research-awareness","tag-blood-cancer","tag-blood-disorder","tag-bone-pain","tag-caregiving","tag-covid-19","tag-diabetes-insipidus","tag-erdheim-chester","tag-hairy-kidney","tag-isolation","tag-lifestyle","tag-msk","tag-rare-cancer","tag-rare-disease","tag-st-jude","tag-stanford","tag-uci"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/posts\/19670","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/users\/14"}],"replies":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/comments?post=19670"}],"version-history":[{"count":2,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/posts\/19670\/revisions"}],"predecessor-version":[{"id":175287,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/posts\/19670\/revisions\/175287"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/media\/19676"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/media?parent=19670"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/categories?post=19670"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/tags?post=19670"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}