{"id":19520,"date":"2021-01-08T20:50:18","date_gmt":"2021-01-08T20:50:18","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/ecd-staging\/?p=19520"},"modified":"2026-08-19T07:11:08","modified_gmt":"2026-08-19T12:11:08","slug":"%e6%96%b0%e5%b9%b4%e4%bc%8a%e5%a7%8b%ef%bc%8c%e8%8d%b7%e5%85%b0%e5%9f%83%e5%b0%94%e5%be%b7%e6%b5%b7%e5%a7%86%e5%88%87%e6%96%af%e7%89%b9%e6%82%a3%e8%80%85%e8%bf%8e%e6%9d%a5%e6%96%b0%e7%9a%84%e6%8a%a4","status":"publish","type":"post","link":"https:\/\/www.erdheim-chester.org\/zh\/a-new-year-a-new-care-center-for-erdheim-chester-patients-in-the-netherlands\/","title":{"rendered":"\u65b0\u5e74\u4f0a\u59cb\uff0c\u8377\u5170\u57c3\u5c14\u5fb7\u6d77\u59c6-\u5207\u65af\u7279\u75c5\u60a3\u8005\u8fce\u6765\u65b0\u7684\u62a4\u7406\u4e2d\u5fc3"},"content":{"rendered":"<h2>\u9e7f\u7279\u4e39\u4f0a\u62c9\u65af\u8c1f\u5927\u5b66\u533b\u5b66\u4e2d\u5fc3\u52a0\u5165\u4e86ECD\u8f6c\u8bca\u62a4\u7406\u4e2d\u5fc3\u7f51\u7edc\uff0c\u8be5\u7f51\u7edc\u7531\u64c5\u957f\u6cbb\u7597\u57c3\u5c14\u5fb7\u6d77\u59c6-\u5207\u65af\u7279\u75c5\u60a3\u8005\u7684\u533b\u9662\u7ec4\u6210\u3002.<\/h2>\n<p>\u57c3\u5c14\u5fb7\u6d77\u59c6-\u5207\u65af\u7279\u75c5\uff08ECD\uff09\u5168\u7403\u8054\u76df\u6b22\u8fce\u8377\u5170\u9e7f\u7279\u4e39\u4f0a\u62c9\u65af\u8c1f\u5927\u5b66\u533b\u5b66\u4e2d\u5fc3\u52a0\u5165\u5176\u8f6c\u8bca\u6cbb\u7597\u4e2d\u5fc3\u7f51\u7edc\uff0c\u4ee5\u5e2e\u52a9\u57c3\u5c14\u5fb7\u6d77\u59c6-\u5207\u65af\u7279\u75c5\u60a3\u8005\u3002.<\/p>\n<p>\u9886\u5bfc\u8fd9\u652f\u7cbe\u901aECD\u9886\u57df\u7684\u56e2\u961f\u7684\u662f\u626c\u00b7\u963f\u59c6\u00b7\u8303\u00b7\u62c9\u5c14\u535a\u58eb\uff0c\u4ed6\u662f\u5185\u79d1\u7cfb\u4e34\u5e8a\u514d\u75ab\u5b66\u526f\u6559\u6388\uff0c, <a href=\"https:\/\/www.erasmusmc.nl\/en\" target=\"_blank\" rel=\"noopener noreferrer\">\u4f0a\u62c9\u65af\u8c1fMC\u5927\u5b66\u533b\u5b66\u4e2d\u5fc3\uff0c,<\/a> \u5728\u8377\u5170\u9e7f\u7279\u4e39\u3002\u4ee3\u8868\u8be5\u4e2d\u5fc3\u7684\u8fd9\u652f\u753114\u540d\u4e13\u5bb6\u7ec4\u6210\u7684\u56e2\u961f\u8fc4\u4eca\u5df2\u63a5\u8bca\u4e866\u540d\u6b63\u5728\u4e0e\u8fd9\u79cd\u7f55\u89c1\u8840\u6db2\u764c\u75c7\u6297\u4e89\u7684\u60a3\u8005\u3002.<\/p>\n<div id=\"attachment_175291\" style=\"width: 235px\" class=\"wp-caption alignright\"><a href=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2021\/01\/Dr.-van-Laar.jpg\"><img loading=\"lazy\" decoding=\"async\" aria-describedby=\"caption-attachment-175291\" class=\"wp-image-175291 size-full\" src=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2021\/01\/Dr.-van-Laar.jpg\" alt=\"\" width=\"225\" height=\"225\" srcset=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2021\/01\/Dr.-van-Laar.jpg 225w, 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class=\"wp-caption-text\">\u626c\u00b7\u963f\u59c6\u00b7\u8303\u00b7\u62c9\u5c14\u535a\u58eb<\/p><\/div>\n<p>\u8be5\u4e2d\u5fc3\u5c06\u6210\u4e3a\u8be5\u5730\u533a\u8fd1\u671f\u63a8\u52a8\u6539\u5584\u7f55\u89c1\u764c\u75c7\u8bca\u7597\u5de5\u4f5c\u7684\u4e00\u90e8\u5206\u3002\u8377\u5170\u764c\u75c7\u534f\u4f1a\uff08KWF\uff09\u81ea2021\u5e74\u8d77\u5df2\u5411\u7f55\u89c1\u764c\u75c7\u7814\u7a76\u6295\u5165\u4e86500\u4e07\u6b27\u5143\u3002.<\/p>\n<p><em>\u201c\u6211\u4eec\u770b\u5230\uff0c\u591a\u5e74\u6765\u8bb8\u591a\u5e38\u89c1\u764c\u75c7\u7684\u751f\u5b58\u7387\u5df2\u663e\u8457\u63d0\u9ad8\uff0c\u4f46\u60a3\u6709\u7f55\u89c1\u764c\u75c7\u7684\u60a3\u8005\u4ece\u65b0\u7597\u6cd5\u4e2d\u83b7\u76ca\u751a\u5fae\uff0c\u201d\u5fb7\u56fd\u764c\u75c7\u534f\u4f1a\uff08KWF\uff09\u4e3b\u4efb\u7ea6\u7ff0\u00b7\u8303\u00b7\u5fb7\u00b7\u683c\u7f57\u767b\u8868\u793a\u3002\u201c\u5173\u4e8e\u7f55\u89c1\u764c\u75c7\u7684\u77e5\u8bc6\u4ecd\u7136\u5206\u6563\u5728\u4e0d\u540c\u7684\u533b\u9662\u4e2d\u3002\u201d<\/em><\/p>\n<p><em>\u56e0\u6b64\uff0c\u6765\u81ea\u683c\u7f57\u5b81\u6839\u5927\u5b66\u533b\u5b66\u4e2d\u5fc3\u3001\u4e4c\u5f97\u52d2\u652f\u5927\u5b66\u533b\u5b66\u4e2d\u5fc3\u3001\u4f0a\u62c9\u65af\u8c1f\u533b\u5b66\u4e2d\u5fc3\u3001\u963f\u59c6\u65af\u7279\u4e39\u5927\u5b66\u533b\u5b66\u4e2d\u5fc3\u4ee5\u53ca\u9a6c\u514b\u897f\u739b\u533b\u7597\u4e2d\u5fc3\u7684\u79d1\u7814\u4eba\u5458\u548c\u4e34\u5e8a\u533b\u751f\u5c06\u5206\u4eab\u66f4\u591a\u5173\u4e8e\u7f55\u89c1\u8840\u6db2\u764c\u75c7\u7b49\u75be\u75c5\u7684\u5185\u90e8\u4fe1\u606f\u3002\u901a\u8fc7\u6536\u96c6\u8fd9\u4e9b\u6570\u636e\u5e76\u5f00\u53d1\u8d85\u9ad8\u7075\u654f\u5ea6\u7684\u8840\u6db2\u68c0\u6d4b\u65b9\u6cd5\uff0c\u5c06\u80fd\u591f\u66f4\u51c6\u786e\u5730\u786e\u5b9a\u7f55\u89c1\u80bf\u7624\u5728\u8840\u6db2\u548c\u5668\u5b98\u4e2d\u7559\u4e0b\u7684\u75d5\u8ff9\u3002.<\/em><\/p>\n<p><em>KWF\u5e0c\u671b\u501f\u6b64\u5728\u672a\u6765\u51e0\u5e74\u5185\u6539\u5584\u5927\u6279\u60a3\u8005\u7684\u6cbb\u7597\u524d\u666f\u3002. <\/em><\/p>\n<p><em>(<\/em><a href=\"https:\/\/nos.nl\/artikel\/2362326-kwf-steekt-5-miljoen-in-onderzoek-naar-zeldzame-vormen-van-kanker.html\" target=\"_blank\" rel=\"noopener noreferrer\"><em>\u5f15\u81ea\u4e00\u7bc7\u6700\u8fd1\u7528\u8377\u5170\u8bed\u64b0\u5199\u7684\u6587\u7ae0<\/em><\/a><em>)<\/em><\/p>\n<p>\u5c31\u5728\u672c\u6708\uff0c\u8303\u00b7\u62c9\u5c14\u535a\u58eb\u53ca\u5176\u7814\u7a76\u56e2\u961f\u53d1\u8868\u4e86 <em>\u6587\u7ae0 <\/em><a href=\"https:\/\/pubmed.ncbi.nlm.nih.gov\/32852896\/\" target=\"_blank\" rel=\"noopener noreferrer\"><em>\u643a\u5e26\u76f8\u540c\u81f4\u764c\u7a81\u53d8\u4e14\u4e0e\u591a\u79cd\u8840\u6db2\u7cfb\u7edf\u6076\u6027\u80bf\u7624\u76f8\u5173\u7684\u7ec4\u7ec7\u7ec6\u80de\u6027\u80bf\u7624\u8c31<\/em><\/a><em>. <\/em>\u50cf\u8fd9\u6837\u7684\u65b0\u5174\u4e2d\u5fc3\u6709\u52a9\u4e8e\u4e3a\u5168\u7403\u7684ECD\u60a3\u8005\u63d0\u4f9b\u66f4\u591a\u7684\u77e5\u8bc6\u548c\u533b\u7597\u670d\u52a1\u3002.<\/p>\n<p>ECD\u5168\u7403\u8054\u76df\u4e8e2015\u5e74\u5efa\u7acb\u4e86ECD\u8f6c\u8bca\u62a4\u7406\u4e2d\u5fc3\u7f51\u7edc\uff0c\u65e8\u5728\u4e3a\u8fd9\u4e00\u60a3\u8005\u7fa4\u4f53\u63d0\u4f9b\u8986\u76d6\u8303\u56f4\u66f4\u5e7f\u7684\u670d\u52a1\uff0c\u63a8\u52a8\u63d0\u4f9b\u4e13\u4e1a\u4e14\u66f4\u9ad8\u6807\u51c6\u7684\u62a4\u7406\uff0c\u5e76\u901a\u8fc7\u5b9a\u671f\u4f1a\u8bca\u4e3a\u5f53\u5730\u533b\u751f\u63d0\u4f9b\u652f\u6301\u3002\u5305\u62ec\u8377\u5170\u7684\u8fd9\u5bb6\u533b\u9662\u5728\u5185\uff0c\u76ee\u524d\u5168\u7403\u5171\u670934\u5bb6\u4e2d\u5fc3\u4e3aECD\u60a3\u8005\u7fa4\u4f53\u63d0\u4f9b\u670d\u52a1\u3002.<\/p>\n<p>\u5982\u9700\u8fdb\u4e00\u6b65\u4e86\u89e3ECD\u8f6c\u8bca\u62a4\u7406\u4e2d\u5fc3\u7f51\u7edc\uff0c\u8bf7\u8bbf\u95ee <a href=\"https:\/\/www.erdheim-chester.org\/zh\/%e6%8a%a4%e7%90%86%e4%b8%ad%e5%bf%83\/\">www.erdheim-chester.org\/care-centers<\/a>.<\/p>","protected":false},"excerpt":{"rendered":"<p>Erasmus University Medical Center in Rotterdam joins the ECD Referral Care Center network of hospitals skilled in treating Erdheim-Chester disease patients. The Erdheim-Chester Disease (ECD) Global Alliance welcomes Erasmus University [&hellip;]<\/p>\n","protected":false},"author":14,"featured_media":19525,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","cybocfi_hide_featured_image":"","wds_primary_category":0,"footnotes":"","_links_to":"","_links_to_target":""},"categories":[51],"tags":[55,54,59,53,104,58,107,109,108,56,57,112,110,111,52,105,73,106,72],"class_list":["post-19520","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-news","tag-advocacy","tag-blood-disorder","tag-bone-pain","tag-cancer","tag-care-center","tag-diabetes-insipidus","tag-dr-jan-am-van-laar","tag-dutch-cancer-society","tag-erasmus-university-medical-center","tag-erdheim-chester","tag-hairy-kidney","tag-histiocytic-neoplasm","tag-kwf","tag-patient-care","tag-rare-disease","tag-rotterdam","tag-studies","tag-the-netherlands","tag-trials"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/posts\/19520","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/users\/14"}],"replies":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/comments?post=19520"}],"version-history":[{"count":1,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/posts\/19520\/revisions"}],"predecessor-version":[{"id":175292,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/posts\/19520\/revisions\/175292"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/media\/19525"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/media?parent=19520"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/categories?post=19520"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/tags?post=19520"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}