{"id":176050,"date":"2026-08-29T12:56:17","date_gmt":"2026-08-29T17:56:17","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/?p=176050"},"modified":"2026-09-24T10:10:53","modified_gmt":"2026-09-24T15:10:53","slug":"%e8%81%94%e7%b3%bb%e7%9a%84%e5%8a%9b%e9%87%8f","status":"publish","type":"post","link":"https:\/\/www.erdheim-chester.org\/zh\/the-power-of-connection\/","title":{"rendered":"\u8054\u7cfb\u7684\u529b\u91cf"},"content":{"rendered":"<p>\u4e0e\u4e00\u4e2a\u771f\u6b63\u61c2\u4f60\u7684\u4eba\u4ea4\u8c08\uff0c\u603b\u6709\u4e00\u79cd\u96be\u4ee5\u8a00\u55bb\u7684\u529b\u91cf\u3002.<\/p>\n<p>ECDGA\u7684\u5728\u7ebf\u4ea4\u6d41\u548c\u7f51\u7edc\u7814\u8ba8\u4f1a\u4e3a\u60a3\u8005\u548c\u7167\u62a4\u8005\u63d0\u4f9b\u4e86\u4e00\u4e2a\u5206\u4eab\u7ecf\u9a8c\u3001\u63d0\u51fa\u95ee\u9898\u3001\u4ea4\u6d41\u60f3\u6cd5\uff0c\u5e76\u4e0e\u7406\u89e3\u8fd9\u4e00\u5386\u7a0b\u7684\u4eba\u4eec\u5efa\u7acb\u8054\u7cfb\u7684\u5e73\u53f0\u3002.<\/p>\n<p><strong>\u8054\u7cfb\u9020\u5c31\u793e\u533a\u3002.<\/strong><\/p>\n<p><strong>\u91c7\u53d6\u884c\u52a8\uff1a<\/strong> \u52a0\u5165 ECDGA \u7684\u804a\u5929\u7fa4\u7ec4\uff0c\u53c2\u4e0e\u8ba8\u8bba\uff0c\u6216\u8005\u5411\u793e\u533a\u91cc\u7684\u65b0\u670b\u53cb\u6253\u4e2a\u62db\u547c\u3002.<\/p>","protected":false},"excerpt":{"rendered":"<p>There is something powerful about talking with someone who simply gets it. ECDGA chats and webinars give patients and caregivers a place to share experiences, ask questions, exchange ideas, and [&hellip;]<\/p>\n","protected":false},"author":27,"featured_media":176051,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","cybocfi_hide_featured_image":"","footnotes":"","_links_to":"","_links_to_target":""},"categories":[51],"tags":[378,387,6178,376,6181],"class_list":["post-176050","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-news","tag-ecdcommunity","tag-ecdga","tag-erdheimchesterknowecd","tag-raredisease","tag-supportgroups"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/posts\/176050","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/users\/27"}],"replies":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/comments?post=176050"}],"version-history":[{"count":1,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/posts\/176050\/revisions"}],"predecessor-version":[{"id":176081,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/posts\/176050\/revisions\/176081"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/media\/176051"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/media?parent=176050"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/categories?post=176050"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/tags?post=176050"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}