{"id":176041,"date":"2026-08-29T12:51:07","date_gmt":"2026-08-29T17:51:07","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/?p=176041"},"modified":"2026-09-20T14:06:51","modified_gmt":"2026-09-20T19:06:51","slug":"%e7%a0%94%e7%a9%b6%e6%98%af%e4%b8%80%e9%a1%b9%e5%9b%a2%e9%98%9f%e5%90%88%e4%bd%9c","status":"publish","type":"post","link":"https:\/\/www.erdheim-chester.org\/zh\/research-is-a-team-effort\/","title":{"rendered":"\u7814\u7a76\u662f\u4e00\u9879\u56e2\u961f\u5408\u4f5c"},"content":{"rendered":"<p>\u8fdb\u6b65\u6e90\u4e8e\u4eba\u4eec\u7684\u901a\u529b\u5408\u4f5c\u3002.<\/p>\n<p>\u60a3\u8005\u3001\u62a4\u7406\u4eba\u5458\u3001\u533b\u751f\u3001\u7814\u7a76\u4eba\u5458\u3001\u5fd7\u613f\u8005\u3001\u5021\u5bfc\u7ec4\u7ec7\u3001\u652f\u6301\u8005\u4ee5\u53caECDGA\uff0c\u90fd\u5728\u63a8\u52a8ECD\u7814\u7a76\u65b9\u9762\u53d1\u6325\u7740\u91cd\u8981\u4f5c\u7528\u3002.<\/p>\n<p>\u4e86\u89e3\u8fd9\u4e00\u5408\u4f5c\u9879\u76ee\u7684\u5b9e\u9645\u8fd0\u4f5c\u60c5\u51b5\uff0c\u5e76\u6d4f\u89c8\u6765\u81ea\u8be5\u9879\u76ee\u7684\u6f14\u8bb2\u3001\u7814\u7a76\u8fdb\u5c55\u548c\u4eae\u70b9\uff0c <a href=\"https:\/\/www.erdheim-chester.org\/zh\/%e6%b4%bb%e5%8a%a8\/2026%e5%b9%b4%e4%bc%af%e6%98%8e%e7%bf%b0%e7%ac%ac11%e5%b1%8a%e5%b9%b4%e5%ba%a6ecd%e6%82%a3%e8%80%85%e5%8f%8a%e5%ae%b6%e5%b1%9e%e8%81%9a%e4%bc%9a\/\">2026\u5e74ECD\u60a3\u8005\u53ca\u5bb6\u5c5e\u8054\u8c0a\u4f1a<\/a>.<\/p>\n<p>\u6211\u4eec\u643a\u624b\u4e3a\u6240\u6709\u53d7\u65e9\u671f\u513f\u7ae5\u53d1\u5c55\uff08ECD\uff09\u5f71\u54cd\u7684\u4eba\u521b\u9020\u66f4\u7f8e\u597d\u7684\u672a\u6765\u3002.<\/p>\n<p>&nbsp;<\/p>","protected":false},"excerpt":{"rendered":"<p>Progress happens because people work together. Patients, caregivers, physicians, researchers, volunteers, advocacy organizations, supporters, and ECDGA all play an important role in moving ECD research forward. See this collaboration in [&hellip;]<\/p>\n","protected":false},"author":27,"featured_media":176042,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","cybocfi_hide_featured_image":"","footnotes":"","_links_to":"","_links_to_target":""},"categories":[51],"tags":[387,6178,6173,376,6179],"class_list":["post-176041","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-news","tag-ecdga","tag-erdheimchesterknowecd","tag-hopethroughresearch","tag-raredisease","tag-researchcommunity"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/posts\/176041","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/users\/27"}],"replies":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/comments?post=176041"}],"version-history":[{"count":1,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/posts\/176041\/revisions"}],"predecessor-version":[{"id":176077,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/posts\/176041\/revisions\/176077"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/media\/176042"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/media?parent=176041"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/categories?post=176041"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/tags?post=176041"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}