{"id":174483,"date":"2026-09-13T08:00:21","date_gmt":"2026-09-13T13:00:21","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/?p=174483"},"modified":"2026-09-13T08:21:42","modified_gmt":"2026-09-13T13:21:42","slug":"%e6%88%91%e4%bb%ac%e7%9a%84%e5%85%a8%e7%90%83ecd%e7%a4%be%e5%8c%ba","status":"publish","type":"post","link":"https:\/\/www.erdheim-chester.org\/zh\/our-global-ecd-community\/","title":{"rendered":"\u6211\u4eec\u7684\u5168\u7403ECD\u793e\u533a"},"content":{"rendered":"<p>ECD \u867d\u7136\u7f55\u89c1\uff0c\u4f46\u6ca1\u6709\u4eba\u9700\u8981\u72ec\u81ea\u9762\u5bf9\u5b83\u3002.<\/p>\n<p>\u4e16\u754c\u5404\u5730\u7684\u60a3\u8005\u3001\u62a4\u7406\u4eba\u5458\u3001\u533b\u751f\u3001\u7814\u7a76\u4eba\u5458\u3001\u5fd7\u613f\u8005\u548c\u5021\u5bfc\u8005\u6b63\u901a\u529b\u5408\u4f5c\uff0c\u4e3a\u6240\u6709\u53d7\u65e9\u671f\u513f\u7ae5\u53d1\u80b2\u969c\u788d\uff08ECD\uff09\u5f71\u54cd\u7684\u4eba\u521b\u9020\u4e00\u4e2a\u66f4\u7f8e\u597d\u7684\u672a\u6765\u3002.<\/p>\n<p>\u867d\u7136\u8ddd\u79bb\u5c06\u6211\u4eec\u5206\u9694\u5f00\u6765\uff0c\u4f46\u6211\u4eec\u7684\u793e\u533a\u5c06\u6211\u4eec\u7d27\u5bc6\u76f8\u8fde\u3002.<\/p>\n<p>\u67e5\u770b\u5730\u56fe <a href=\"https:\/\/www.erdheim-chester.org\/zh\/%e4%bc%9a%e5%91%98%e6%89%80%e5%9c%a8%e5%9c%b0\/\">\u60a3\u8005\u6240\u5728\u5730<\/a>.<\/p>\n<p><strong>\u8ba9\u6211\u4eec\u643a\u624b\uff0c\u8ba9\u7a00\u6709\u4e4b\u7269\u5f97\u4ee5\u5c55\u73b0\u3002.<\/strong><\/p>\n<p>&nbsp;<\/p>","protected":false},"excerpt":{"rendered":"<p>ECD may be rare, but no one has to face it alone. Across the world, patients, caregivers, physicians, researchers, volunteers, and advocates are working together to build a stronger future [&hellip;]<\/p>\n","protected":false},"author":27,"featured_media":174484,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","cybocfi_hide_featured_image":"","wds_primary_category":0,"footnotes":"","_links_to":"","_links_to_target":""},"categories":[51],"tags":[387,2252,6171,6169,6170,376,6161],"class_list":["post-174483","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-news","tag-ecdga","tag-erdheimchester","tag-globalcommunity","tag-k","tag-nowecd","tag-raredisease","tag-togetherwemakerarevisible"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/posts\/174483","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/users\/27"}],"replies":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/comments?post=174483"}],"version-history":[{"count":1,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/posts\/174483\/revisions"}],"predecessor-version":[{"id":174498,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/posts\/174483\/revisions\/174498"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/media\/174484"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/media?parent=174483"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/categories?post=174483"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/tags?post=174483"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}