{"id":174440,"date":"2026-09-05T09:00:42","date_gmt":"2026-09-05T14:00:42","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/?p=174440"},"modified":"2026-09-08T04:15:09","modified_gmt":"2026-09-08T09:15:09","slug":"%e8%af%8a%e6%96%ad%e5%8e%86%e7%a8%8b","status":"publish","type":"post","link":"https:\/\/www.erdheim-chester.org\/zh\/the-diagnostic-journey\/","title":{"rendered":"\u8bca\u65ad\u5386\u7a0b"},"content":{"rendered":"<p><strong>\u9f50\u5409\u77e5\u9053\u2026\u2026<\/strong><\/p>\n<p>\u60a3\u6709\u65e9\u671f\u513f\u7ae5\u53d1\u80b2\u969c\u788d\uff08ECD\uff09\u7684\u4eba\u5f80\u5f80\u8981\u82b1\u4e0a\u6570\u5e74\u65f6\u95f4\u5bfb\u627e\u7b54\u6848\u3002\u7814\u7a76\u8868\u660e\uff0c\u4ece\u75c7\u72b6\u9996\u6b21\u51fa\u73b0\u5230\u6700\u7ec8\u786e\u8bcaECD\uff0c\u5e73\u5747\u9700\u89814.2\u5e74\u65f6\u95f4\u3002.<\/p>\n<p>\u4e86\u89e3\u65e9\u671f\u513f\u7ae5\u53d1\u80b2\uff08ECD\uff09\u6709\u52a9\u4e8e\u7f29\u77ed\u672a\u6765\u60a3\u8005\u5eb7\u590d\u7684\u5386\u7a0b\u3002.<\/p>\n<p><strong>\u5c3d\u65e9\u53d1\u73b0\u786e\u5b9e\u80fd\u8d77\u5230\u5173\u952e\u4f5c\u7528\u3002.<\/strong><\/p>\n<p>&nbsp;<\/p>","protected":false},"excerpt":{"rendered":"<p>Ziggy Knows&#8230; People with ECD spend years searching for answers. Research has shown that after symptoms first appear, it takes an average of 4.2 years to get an ECD diagnosis. [&hellip;]<\/p>\n","protected":false},"author":27,"featured_media":174441,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","cybocfi_hide_featured_image":"","wds_primary_category":0,"footnotes":"","_links_to":"","_links_to_target":""},"categories":[51],"tags":[387,2252,6154,376,3844],"class_list":["post-174440","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-news","tag-ecdga","tag-erdheimchester","tag-knowecd","tag-raredisease","tag-rarediseaseawareness"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/posts\/174440","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/users\/27"}],"replies":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/comments?post=174440"}],"version-history":[{"count":1,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/posts\/174440\/revisions"}],"predecessor-version":[{"id":174449,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/posts\/174440\/revisions\/174449"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/media\/174441"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/media?parent=174440"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/categories?post=174440"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/tags?post=174440"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}