{"id":174397,"date":"2026-09-03T09:00:35","date_gmt":"2026-09-03T14:00:35","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/?p=174397"},"modified":"2026-09-08T04:14:09","modified_gmt":"2026-09-08T09:14:09","slug":"ecd%e6%9c%89%e5%a4%9a%e7%bd%95%e8%a7%81%ef%bc%9f","status":"publish","type":"post","link":"https:\/\/www.erdheim-chester.org\/zh\/how-rare-is-ecd\/","title":{"rendered":"\u65e9\u4ea7\u513f\uff08ECD\uff09\u6709\u591a\u7f55\u89c1\uff1f"},"content":{"rendered":"<p><strong>\u9f50\u5409\u77e5\u9053\u2026\u2026<\/strong><\/p>\n<p>ECD \u88ab\u8ba4\u4e3a\u662f\u4e00\u79cd\u6781\u5176\u7f55\u89c1\u7684\u75be\u75c5\u3002\u7814\u7a76\u4eba\u5458\u53d1\u73b0\uff0c2021 \u5e74\u81f3 2022 \u5e74\u95f4\uff0c\u7f8e\u56fd\u6bcf 1000 \u4e07\u4eba\u53e3\u4e2d\u7ea6\u6709 1 \u81f3 2 \u4eba\u65b0\u786e\u8bca\u60a3\u6709 ECD\u3002.<\/p>\n<p>\u8bb8\u591a\u533b\u7597\u4e13\u4e1a\u4eba\u5458\u5728\u804c\u4e1a\u751f\u6daf\u4e2d\u53ef\u80fd\u4ece\u672a\u9047\u5230\u8fc7\u60a3\u6709ECD\u7684\u60a3\u8005\uff0c\u56e0\u6b64\u63d0\u9ad8\u5bf9\u6b64\u75c5\u7684\u8ba4\u8bc6\u5c24\u4e3a\u91cd\u8981\u3002.<\/p>\n<p><strong>\u7f55\u89c1\u75c5\u4e5f\u503c\u5f97\u5f97\u5230\u5173\u6ce8\u3002.<\/strong><\/p>","protected":false},"excerpt":{"rendered":"<p>Ziggy Knows&#8230; ECD is considered\u00a0ultra-rare.\u00a0Researchers found that about 1 to 2 out of every 10 million people were newly diagnosed with ECD in the US during 2021 and 2022. Many [&hellip;]<\/p>\n","protected":false},"author":27,"featured_media":174398,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","cybocfi_hide_featured_image":"","footnotes":"","_links_to":"","_links_to_target":""},"categories":[51],"tags":[387,2252,6154,376],"class_list":["post-174397","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-news","tag-ecdga","tag-erdheimchester","tag-knowecd","tag-raredisease"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/posts\/174397","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/users\/27"}],"replies":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/comments?post=174397"}],"version-history":[{"count":1,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/posts\/174397\/revisions"}],"predecessor-version":[{"id":174444,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/posts\/174397\/revisions\/174444"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/media\/174398"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/media?parent=174397"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/categories?post=174397"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/tags?post=174397"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}