{"id":171555,"date":"2026-06-25T12:07:19","date_gmt":"2026-06-25T17:07:19","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/?p=171555"},"modified":"2026-07-03T12:07:39","modified_gmt":"2026-07-03T17:07:39","slug":"%e5%ba%94%e5%af%b9%e6%97%a9%e4%ba%a7%e5%84%bf%e7%96%bc%e7%97%9b%e5%92%8c%e7%96%b2%e5%8a%b3","status":"publish","type":"post","link":"https:\/\/www.erdheim-chester.org\/zh\/managing-ecd-pain-fatigue\/","title":{"rendered":"\u65e9\u6559\u5de5\u4f5c\u4e2d\u7684\u75bc\u75db\u4e0e\u75b2\u52b3\u7ba1\u7406"},"content":{"rendered":"<p><iframe loading=\"lazy\" title=\"2026\u5e74\u2014\u2014\u7f51\u7edc\u7814\u8ba8\u4f1a\u2014\u2014ECD\u75bc\u75db\u4e0e\u75b2\u52b3\u7684\u7ba1\u7406\u2014\u2014\u51ef\u6587\u00b7\u5965\u5e03\u83b1\u6069\" width=\"1080\" height=\"608\" src=\"https:\/\/www.youtube.com\/embed\/0Fn66coP69k?feature=oembed\"  allow=\"accelerometer; autoplay; clipboard-write; encrypted-media; gyroscope; picture-in-picture; web-share\" referrerpolicy=\"strict-origin-when-cross-origin\" allowfullscreen><\/iframe><\/p>\n<p>\u5728\u8fd9\u573a\u6559\u80b2\u7f51\u7edc\u7814\u8ba8\u4f1a\u4e0a\uff0c, <strong>\u7f8e\u56fd\u56fd\u5bb6\u536b\u751f\u7814\u7a76\u9662\uff08NIH\uff09\u7684\u6267\u4e1a\u62a4\u58eb\u51ef\u6587\u00b7\u5965\u5e03\u83b1\u6069\uff0c,<\/strong> \u672c\u8bfe\u7a0b\u6df1\u5165\u6982\u8ff0\u4e86\u57c3\u5c14\u5fb7\u6d77\u59c6-\u5207\u65af\u7279\u75c5\uff08ECD\uff09\u60a3\u8005\u75bc\u75db\u548c\u75b2\u52b3\u7684\u7ba1\u7406\u65b9\u6cd5\u3002\u672c\u6b21\u5185\u5bb9\u4e30\u5bcc\u7684\u8bb2\u5ea7\u4e3a\u5e94\u5bf9ECD\u76f8\u5173\u75bc\u75db\u548c\u75b2\u52b3\u7684\u60a3\u8005\u63d0\u4f9b\u4e86\u5b9e\u7528\u6307\u5bfc\u548c\u4e34\u5e8a\u89c1\u89e3\u3002.<\/p>\n<p><strong>\u5728\u672c\u573a\u7f51\u7edc\u7814\u8ba8\u4f1a\u4e2d\uff0c\u60a8\u5c06\u4e86\u89e3\uff1a<\/strong><\/p>\n<ul>\n<li>\u4e86\u89e3\u65e9\u671f\u513f\u7ae5\u53d1\u5c55\uff08ECD\uff09\u4e2d\u75bc\u75db\u7684\u6210\u56e0<\/li>\n<li>\u75bc\u75db\u7ba1\u7406\u4e0e\u6539\u5584\u8212\u9002\u5ea6\u7684\u7b56\u7565<\/li>\n<li>ECD\u60a3\u8005\u4e2d\u75b2\u52b3\u7684\u53d1\u751f\u7387\u6709\u591a\u9ad8<\/li>\n<li>\u5e94\u5bf9\u75b2\u52b3\u548c\u8282\u7ea6\u4f53\u529b\u7684\u5b9e\u7528\u65b9\u6cd5<\/li>\n<\/ul>","protected":false},"excerpt":{"rendered":"<p>In this educational webinar, Kevin O&#8217;Brien, Nurse Practitioner at the National Institutes of Health (NIH), provides an in-depth overview of managing pain and fatigue in people living with Erdheim-Chester Disease (ECD).<\/p>","protected":false},"author":20,"featured_media":171556,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","cybocfi_hide_featured_image":"yes","footnotes":"","_links_to":"","_links_to_target":""},"categories":[351],"tags":[],"class_list":["post-171555","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-webinar-recordings"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/posts\/171555","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/users\/20"}],"replies":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/comments?post=171555"}],"version-history":[{"count":1,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/posts\/171555\/revisions"}],"predecessor-version":[{"id":171557,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/posts\/171555\/revisions\/171557"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/media\/171556"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/media?parent=171555"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/categories?post=171555"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/tags?post=171555"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}