{"id":114292,"date":"2026-02-19T09:00:24","date_gmt":"2026-02-19T15:00:24","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/?p=114292"},"modified":"2026-08-14T07:02:56","modified_gmt":"2026-08-14T12:02:56","slug":"%e5%88%86%e4%ba%ab%e5%8a%9b%e9%87%8f%ef%bc%9a%e4%b8%bd%e8%b4%9d%e5%8d%a1%e4%b8%8eecd%e7%9a%84%e6%95%85%e4%ba%8b","status":"publish","type":"post","link":"https:\/\/www.erdheim-chester.org\/zh\/sharing-strength-rebeccas-story-with-ecd\/","title":{"rendered":"\u5206\u4eab\u529b\u91cf\uff1a\u4e3d\u8d1d\u5361\u4e0eECD\u7684\u6545\u4e8b"},"content":{"rendered":"<div style=\"width: 1080px;\" class=\"wp-video\"><video class=\"wp-video-shortcode\" id=\"video-114292-1\" width=\"1080\" height=\"810\" preload=\"metadata\" controls=\"controls\"><source type=\"video\/mp4\" src=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2026\/02\/Rebecca-Boone-s-Story.mp4?_=1\" \/><a href=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2026\/02\/Rebecca-Boone-s-Story.mp4\">https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2026\/02\/Rebecca-Boone-s-Story.mp4<\/a><\/video><\/div>\n<p>\u9f50\u5409\u6700\u8fd1\u6709\u5e78\u91c7\u8bbf\u4e86\u4e3d\u8d1d\u5361\u00b7\u5e03\u6069\uff0c\u804a\u4e86\u804a\u5979\u4e0e\u65e9\u671f\u513f\u7ae5\u53d1\u80b2\u969c\u788d\uff08ECD\uff09\u6297\u4e89\u7684\u5386\u7a0b\u3002\u4e3d\u8d1d\u5361\u5206\u4eab\u4e86\u5979\u7684\u4eb2\u8eab\u7ecf\u5386\u3001\u6240\u9762\u4e34\u7684\u6311\u6218\uff0c\u4ee5\u53ca\u65e9\u671f\u513f\u7ae5\u53d1\u80b2\u969c\u788d\u5bf9\u5979\u751f\u6d3b\u4ea7\u751f\u7684\u5f71\u54cd\u3002\u5979\u7684\u6545\u4e8b\u6709\u529b\u5730\u63d0\u9192\u4e86\u6211\u4eec\uff0c\u4e3a\u4ec0\u4e48\u63d0\u9ad8\u516c\u4f17\u610f\u8bc6\u3001\u5021\u5bfc\u884c\u52a8\u548c\u793e\u533a\u652f\u6301\u5982\u6b64\u91cd\u8981\u3002.<\/p>\n<p>\u656c\u8bf7\u5173\u6ce8\uff0c\u8046\u542c\u4e3d\u8d1d\u5361\u53d1\u4eba\u6df1\u7701\u7684\u89c1\u89e3\uff0c\u5e76\u5e2e\u52a9\u6211\u4eec\u7ee7\u7eed\u4f20\u64ad\u5173\u4e8e\u57c3\u5c14\u5fb7\u6d77\u59c6-\u5207\u65af\u7279\u75c5\u7684\u5e0c\u671b\u4e0e\u7406\u89e3\u3002.<\/p>","protected":false},"excerpt":{"rendered":"<p>Ziggy recently had the pleasure of interviewing Rebecca Boone about her journey with ECD. Rebecca shared her personal experiences, challenges, and the impact ECD has had on her life. Her [&hellip;]<\/p>\n","protected":false},"author":20,"featured_media":114294,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","cybocfi_hide_featured_image":"yes","wds_primary_category":0,"footnotes":"","_links_to":"","_links_to_target":""},"categories":[51],"tags":[3190,387,2252,102,376,5872],"class_list":["post-114292","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-news","tag-ecd","tag-ecdga","tag-erdheimchester","tag-histiocytosis","tag-raredisease","tag-rareisnotalone"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/posts\/114292","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/users\/20"}],"replies":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/comments?post=114292"}],"version-history":[{"count":1,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/posts\/114292\/revisions"}],"predecessor-version":[{"id":174741,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/posts\/114292\/revisions\/174741"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/media\/114294"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/media?parent=114292"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/categories?post=114292"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/tags?post=114292"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}