\u5728\u4e3a\u201c\u7f55\u89c1\u75c5\u65e5\u201d\u505a\u51c6\u5907\u4e4b\u9645\uff0c\u73b0\u5728\u6b63\u662f\u63d0\u51fa\u4e00\u4e2a\u7b80\u5355\u95ee\u9898\u7684\u597d\u65f6\u673a\uff1a <\/p>\n
\u201c\u7a00\u6709\u201d\u5230\u5e95\u662f\u4ec0\u4e48\u610f\u601d\uff1f <\/p>\n
\u6839\u636e\u7f8e\u56fd\u7f55\u89c1\u75c5\u7ec4\u7ec7\uff08NORD\uff09\u7684\u5b9a\u4e49\uff0c\u5728\u7f8e\u56fd\uff0c\u5982\u679c\u67d0\u79cd\u75be\u75c5\u7684\u60a3\u75c5\u4eba\u6570\u5c11\u4e8e20\u4e07\u4eba\uff0c\u5219\u88ab\u89c6\u4e3a\u7f55\u89c1\u75c5\u3002\u4f46\u5bf9\u4e8e\u60a3\u6709\u57c3\u5c14\u5fb7\u6d77\u59c6-\u5207\u65af\u7279\u75c5\uff08ECD\uff09\u7684\u5bb6\u5ead\u6765\u8bf4\uff0c\u201c\u7f55\u89c1\u201d\u4e00\u8bcd\u5f80\u5f80\u6709\u7740\u66f4\u4e3a\u5207\u8eab\u7684\u611f\u53d7\u3002. <\/p>\n
\u90a3\u4e48\uff0c\u5728\u7f8e\u56fd\uff0c\u65e9\u4ea7\u7a76\u7adf\u6709\u591a\u7f55\u89c1\u5462\uff1f <\/p>\n
\u7531\u7f57\u7eb3\u5fb7\u00b7\u6208\u535a\u58eb\u4ee3\u8868Histio-Care\u7f51\u7edc\u9886\u5bfc\u7684\u4e00\u9879\u6700\u65b0\u7f8e\u56fd\u7814\u7a76\uff0c\u6709\u52a9\u4e8e\u5bf9\u6b64\u8fdb\u884c\u5ba2\u89c2\u5206\u6790\u3002 \u8be5\u7814\u7a76\u5229\u7528\u56fd\u5bb6\u764c\u75c7\u767b\u8bb0\u7cfb\u7edf\uff08SEER\uff09\u7684\u6570\u636e\uff0c\u62a5\u544a\u79f0\u7f8e\u56fd\u6bcf1000\u4e07\u4eba\u4e2d\u65b0\u589e\u7684ECD\u75c5\u4f8b\u603b\u53d1\u75c5\u7387\u4e3a1.3\u4f8b\u3002.<\/p>\n
\u8fd9\u4e00\u6570\u636e\u6709\u52a9\u4e8e\u89e3\u91ca\uff0c\u4e3a\u4ec0\u4e48\u65e9\u671f\u513f\u7ae5\u53d1\u5c55\uff08ECD\uff09\u5e38\u5e38\u88ab\u8bef\u89e3\uff0c\u4ee5\u53ca\u4e3a\u4ec0\u4e48\u8bca\u65ad\u8fc7\u7a0b\u5f80\u5f80\u5982\u6b64\u6f2b\u957f\u3002. <\/p>\n
\u5728ECD\u5168\u7403\u8054\u76df\uff08ECDGA\uff09\uff0c\u6211\u4eec\u6bcf\u5929\u90fd\u5728\u52aa\u529b\u786e\u4fdd\u201c\u7f55\u89c1\u201d\u5e76\u4e0d\u610f\u5473\u7740\u201c\u5b64\u7acb\u201d\u3002\u901a\u8fc7\u63d0\u9ad8\u516c\u4f17\u610f\u8bc6\u3001\u652f\u6301\u7814\u7a76\u4ee5\u53ca\u8fde\u63a5\u5168\u7403\u60a3\u8005\u53ca\u5176\u5bb6\u5c5e\uff0c\u6211\u4eec\u81f4\u529b\u4e8e\u786e\u4fddECD\u60a3\u8005\u80fd\u591f\u5f97\u5230\u8ba4\u53ef\u3001\u5c3d\u65e9\u786e\u8bca\uff0c\u5e76\u5728\u6cbb\u7597\u7684\u6bcf\u4e00\u6b65\u90fd\u83b7\u5f97\u652f\u6301\u3002. <\/p>\n
\u65e9\u671f\u513f\u7ae5\u53d1\u80b2\u969c\u788d\uff08ECD\uff09\u867d\u4e0d\u5e38\u89c1\u2014\u2014\u4f46\u8fd9\u4e2a\u7fa4\u4f53\u975e\u5e38\u56e2\u7ed3\u3002.<\/p>\n
\u5728\u201c\u7f55\u89c1\u75c5\u65e5\u201d\u4ee5\u53ca\u6bcf\u4e00\u5929\uff0c\u611f\u8c22\u60a8\u4e0e\u6211\u4eec\u540c\u884c\u3002.<\/p>","protected":false},"excerpt":{"rendered":"
As we prepare for Rare Disease Day, it\u2019s a good time to ask a simple question: What does \u201crare\u201d really mean? In the U.S., a disease is considered rare if […]<\/p>\n","protected":false},"author":24,"featured_media":114256,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","cybocfi_hide_featured_image":"","footnotes":"","_links_to":"","_links_to_target":""},"categories":[51],"tags":[],"class_list":["post-114257","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-news"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/posts\/114257","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/users\/24"}],"replies":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/comments?post=114257"}],"version-history":[{"count":0,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/posts\/114257\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/media\/114256"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/media?parent=114257"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/categories?post=114257"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/tags?post=114257"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}