{"id":106700,"date":"2025-11-05T10:00:39","date_gmt":"2025-11-05T16:00:39","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/?p=106700"},"modified":"2026-08-19T05:28:28","modified_gmt":"2026-08-19T10:28:28","slug":"ecdga-%e4%ba%ae%e7%9b%b8-2025-%e5%b9%b4%e7%be%8e%e5%9b%bd%e9%a3%8e%e6%b9%bf%e7%97%85%e5%ad%a6%e4%bc%9a%ef%bc%88acr%ef%bc%89%e5%b9%b4%e4%bc%9a","status":"publish","type":"post","link":"https:\/\/www.erdheim-chester.org\/zh\/ecdga-at-the-2025-american-college-of-rheumatology-acr-annual-conference\/","title":{"rendered":"ECDGA \u4eae\u76f8 2025 \u5e74\u7f8e\u56fd\u98ce\u6e7f\u75c5\u5b66\u4f1a\uff08ACR\uff09\u5e74\u4f1a"},"content":{"rendered":"<p>\u4e0a\u5468\uff0c, <strong>ECDGA\u4e3b\u5e2d\u9edb\u5b89\u00b7\u65bd\u83b1\u7eb3<\/strong> \u548c <strong>ECDGA \u5de5\u4f5c\u4eba\u5458\u6770\u7f57\u59c6\u00b7\u4ea8\u68ee<\/strong> \u4ee3\u8868\u4e86 <strong>\u57c3\u5c14\u5fb7\u6d77\u59c6-\u5207\u65af\u7279\u75c5\u5168\u7403\u8054\u76df\uff08ECDGA\uff09<\/strong> \u5728 <strong>\u7f8e\u56fd\u98ce\u6e7f\u75c5\u5b66\u4f1a\uff08ACR\uff09\u5e74\u4f1a<\/strong>, \uff0c\u53e6\u6709 <strong>\u7c73\u5854\u5229\u00b7\u68ee\u535a\u58eb<\/strong>, \uff0c\u4e00\u4f4d\u6765\u81ea <strong>\u963f\u62c9\u5df4\u9a6c\u5927\u5b66\u4f2f\u660e\u7ff0\u5206\u6821<\/strong>.<\/p>\n<p>\u4ed6\u4eec\u6b63\u5171\u540c\u63d0\u9ad8\u4eba\u4eec\u5bf9\u2026\u2026\u7684\u8ba4\u8bc6 <strong>\u57c3\u5c14\u5fb7\u6d77\u59c6-\u5207\u65af\u7279\u75c5\uff08ECD\uff09<\/strong> \u5728\u4e16\u754c\u5404\u5730\u7684\u98ce\u6e7f\u75c5\u5b66\u5bb6\u3001\u4e34\u5e8a\u533b\u751f\u548c\u7814\u7a76\u4eba\u5458\u4e4b\u4e2d\u3002\u901a\u8fc7\u6559\u80b2\u63a8\u5e7f\u3001\u4e13\u4e1a\u5408\u4f5c\u548c\u4e2a\u4eba\u53c2\u4e0e\uff0c\u4ed6\u4eec\u6b63\u81f4\u529b\u4e8e\u63d0\u9ad8\u4eba\u4eec\u5bf9\u8fd9\u79cd\u7f55\u89c1\u75be\u75c5\u7684\u8ba4\u8bc6\uff0c\u5e76\u63a8\u52a8\u65e9\u671f\u8bca\u65ad\u548c\u6539\u5584\u6cbb\u7597\u3002.<\/p>\n<p>ACR\u5e74\u4f1a\u6c47\u805a\u4e86\u6570\u5343\u540d\u81f4\u529b\u4e8e\u6df1\u5316\u5bf9\u98ce\u6e7f\u75c5\u53ca\u7f55\u89c1\u708e\u75c7\u6027\u75be\u75c5\u8ba4\u8bc6\u4e0e\u6cbb\u7597\u7684\u4e13\u5bb6\uff0c\u56e0\u6b64\u6210\u4e3a\u5f70\u663eECD\u4ee5\u53ca\u591a\u5b66\u79d1\u534f\u4f5c\u91cd\u8981\u6027\u7684\u7406\u60f3\u5e73\u53f0\u3002.<\/p>\n<p>\u6211\u4eec\u5f88\u81ea\u8c6a\u80fd\u62e5\u6709 <strong>\u9edb\u5b89\u3001\u6770\u7f57\u59c6\u548c\u68ee\u535a\u58eb<\/strong> \u4ee3\u8868ECD\u60a3\u8005\u7fa4\u4f53\uff0c\u5e76\u81f4\u529b\u4e8e\u786e\u4fdd\u57c3\u5c14\u5fb7\u6d77\u59c6-\u5207\u65af\u7279\u75c5\u5728\u533b\u5b66\u754c\u7ee7\u7eed\u83b7\u5f97\u66f4\u591a\u5173\u6ce8\u3002.<\/p>\n<p><strong>\u611f\u8c22\u60a8\u81f4\u529b\u4e8e\u63d0\u9ad8\u516c\u4f17\u5bf9\u65e9\u4ea7\u513f\u8111\u75c5\uff08ECD\uff09\u7684\u8ba4\u8bc6\uff0c\u5e76\u4e3a\u53d7\u8be5\u75c5\u5f71\u54cd\u7684\u60a3\u8005\u53ca\u5176\u5bb6\u5c5e\u642d\u5efa\u6c9f\u901a\u6865\u6881\uff01<\/strong><\/p>\n<p><a href=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/11\/IMG_9514-scaled.jpg\"><img loading=\"lazy\" decoding=\"async\" class=\"alignnone size-full wp-image-106803\" src=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/11\/IMG_9514-scaled.jpg\" alt=\"\" width=\"2560\" height=\"1920\" srcset=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/11\/IMG_9514-scaled.jpg 2560w, https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/11\/IMG_9514-1280x960.jpg 1280w, https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/11\/IMG_9514-980x735.jpg 980w, https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/11\/IMG_9514-480x360.jpg 480w\" sizes=\"(min-width: 0px) and (max-width: 480px) 480px, (min-width: 481px) and (max-width: 980px) 980px, (min-width: 981px) and (max-width: 1280px) 1280px, (min-width: 1281px) 2560px, 100vw\" \/><\/a> <a href=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/11\/IMG_9503-scaled-1.jpg\"><img loading=\"lazy\" decoding=\"async\" class=\"alignnone wp-image-175241 size-full\" src=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/11\/IMG_9503-scaled-1.jpg\" alt=\"\" width=\"2560\" height=\"1920\" srcset=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/11\/IMG_9503-scaled-1.jpg 2560w, https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/11\/IMG_9503-scaled-1-1280x960.jpg 1280w, https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/11\/IMG_9503-scaled-1-980x735.jpg 980w, https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/11\/IMG_9503-scaled-1-480x360.jpg 480w\" sizes=\"(min-width: 0px) and (max-width: 480px) 480px, (min-width: 481px) and (max-width: 980px) 980px, (min-width: 981px) and (max-width: 1280px) 1280px, (min-width: 1281px) 2560px, 100vw\" \/><\/a> <a href=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/11\/IMG_9498-scaled-1.jpg\"><img loading=\"lazy\" decoding=\"async\" class=\"alignnone wp-image-175240 size-full\" src=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/11\/IMG_9498-scaled-1.jpg\" alt=\"\" width=\"2560\" height=\"1920\" srcset=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/11\/IMG_9498-scaled-1.jpg 2560w, https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/11\/IMG_9498-scaled-1-1280x960.jpg 1280w, https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/11\/IMG_9498-scaled-1-980x735.jpg 980w, https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/11\/IMG_9498-scaled-1-480x360.jpg 480w\" sizes=\"(min-width: 0px) and (max-width: 480px) 480px, (min-width: 481px) and (max-width: 980px) 980px, (min-width: 981px) and (max-width: 1280px) 1280px, (min-width: 1281px) 2560px, 100vw\" \/><\/a><\/p>","protected":false},"excerpt":{"rendered":"<p>ECDGA President Diane Schriner, staff member Jerome Henson, and Dr. Mitali Sen, rheumatologist from the University of Alabama at Birmingham, attended the American College of Rheumatology (ACR) Annual Conference to raise awareness about Erdheim-Chester Disease (ECD).<br \/>\nTheir efforts help ensure ECD is recognized by clinicians and researchers around the world. Thank you, Diane, Jerome, and Dr. Sen, for representing the ECDGA and our community!<\/p>","protected":false},"author":14,"featured_media":106701,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","cybocfi_hide_featured_image":"","wds_primary_category":0,"footnotes":"","_links_to":"","_links_to_target":""},"categories":[51],"tags":[5293,387,374,3292,3844,5294],"class_list":["post-106700","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-news","tag-acr2025","tag-ecdga","tag-erdheimchesterdisease","tag-patientadvocacy","tag-rarediseaseawareness","tag-rheumatology"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/posts\/106700","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/users\/14"}],"replies":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/comments?post=106700"}],"version-history":[{"count":2,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/posts\/106700\/revisions"}],"predecessor-version":[{"id":175243,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/posts\/106700\/revisions\/175243"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/media\/106701"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/media?parent=106700"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/categories?post=106700"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/tags?post=106700"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}